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Old 01-24-2013, 11:09 AM   #1
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Question Gastroparesis, maybe?

I've been trying to see my doc for awhile but she's been MIA...so I'm set up to see her "fill in" in a few days. I've been seen by him before and he is a joke of a doctor. So before I allow him to talk me out of what I believe to be my diagnosis, I thought I'd get some opinions here.

I was diagnosed with type 2 diabetes about 9 months ago. It's believed I could have had it a long time before then. I have neuropathy in my feet/legs/hands. I have hypothyroidism. I do not have a gall bladder. Since my diabetic diagnosis I have lost 50 lbs. For the past 3 months I havent been trying to lose due to a knee injury and I can't be active like before. Yet I'm still losing....probably about 10 lbs so far just this month. Diet hasn't changed but I'm guessing I'm eating less and maybe not realizing it due to pain, etc.

I have been able to control my sugar and keep it on avg 120ish.. That was UNTIL it skyrocketed into the 400s on November 27th and has stayed that way since. Thetes no amount of metformin or change in food that will bring the numbers down. Also through December I was having daily nausea and stomach pain and a lot of belching (I still have these symptoms daily). I bought pregnancy tests, negative of course. I thought maybe it was my meds and high sugars. Skip ahead Jan 1st...I thought I had gotten food poisoning. Stomach pains, cramps, bloating and nausea intensified. Pain was unreal. I was having nasty belches that were really huge and drawn out. All I had eaten was a spring roll. 6 hrs later I puked. The food was clearly undigested whole particles. I instantly felt better, but still lousy and dehydrated.

A week later same thing happened. This time about an hour after eating less than a handful of corn chips at night. Puked, felt better. A few days later it happened again, and now just a few days ago again. Clearly undigested food and about 4-5 times of almost projectile vomiting in a row and I felt better. Just very sore, weak and dehydrated. I feel weak all the time but just assumed its my diabetes. It's like my muscles are hurting too and very weak. I feel full a good portion of the time. Sometimes I dint want to eat, othertimes I'm starving but it's like I feel as if I've just drank 3 big glasses of water and have no room left.

If it wasnt for the crazy sugar levels I could MAYBE see this as something else. But my numbers, paired with the symptoms and the fact I already have at least one type of neuropathy, it seems likely to me GP could be the issue. I have to prepare myself for how much I'm willing to stand my ground and push my doctor for testing. Mainly since I have no INS and am self pay and I think they try to go bare minimum on me because of that fact. Any advice, ideas or possible other causes are appreciated. I'd also like to note that eating salads and raw veggies now make me sick for the first time in my life, encase there's significance there, and also I now have heart palpitations when in rest ONLY. Lastly, laying down does not make my symptoms worse. Thanks to anyone who reads this!

 
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Old 01-26-2013, 12:05 AM   #2
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Re: Gastroparesis, maybe?

i'm having some of the same symptoms....I do not have diabetes that i know about ....
When i go to sleep sometimes i'm having problems, can't sleep, i feel restless, anxious, at one time i felt like i was having sleep apnea or something then i get hit with the gas, belching, acid. Right around Christmas i ate two things particularly which seemed to set this off....one was a pizza with nitrate meats and the other was bangers and mash. After that i felt really sick missed a lot of sleep, everything i ate bothered me, I was up belching really badly all night, i mean it was ridiculous, went to the ER a few times and got a GI cocktail because my stomach was spasming and i couldn't sleep. I also got the feeling that something was stuck in my throat. I was taking nexium, pepcid complete, enzymes, you name it...simethicone, carafate....I had a few days where i ate next to nothing....because it wasn't worth it to eat...i just had a blender drink one day.

I was sure from the research i did that i had either H Pylori (ulcer) or a Parasite or i'm gluten intolerant....i still don't know waiting for my endoscopy....I decided to treat it as both holistically just in case. So i started eating pumpkin seeds (pepitas) a handful a day, having some coconut oil and ginger (candied) each day with each meal, eating anti-parasite foods, pineapple, pomegranate juice, etc...in my smoothies... This and eating a raw /vegan diet is about the only way i get to sleep at night for the moment. Every time i try something cooked or meat/fish for dinner i don't sleep at night. Obviously i shouldn't have to eat raw /vegan to get by....but it's the only thing my stomach will tolerate right now. I was able to stop all the medications after a few days....eating this way.

Basically i eat smoothies for breakfast, salad at lunch, salad at dinner or a raw /vegan meal, no coffee, no tea, no chocolate, no alcohol, no citrus, no tomato, no dairy (except yogurt). I ate some cereal today and it gave me instant heartburn. I ate a bagel /cream cheese and salmon at lunch and seemed ok, and had sushi for dinner...but am up tonight not as bad as previous nights...but going back to raw vegan tomorrow.

oh the weird part is the raw vegan desserts don't bother me....i can eat nuts etc.
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Last edited by SuzyQPA2; 01-26-2013 at 12:08 AM.

 
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Old 01-26-2013, 12:19 AM   #3
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Re: Gastroparesis, maybe?

Oh and note this insomnia & stomach problem only started after eating those two things around Christmas....I do have GERD but was previously able to eat pretty much everything except oranges/spicy/tomato things.
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Old 01-26-2013, 01:08 PM   #4
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Re: Gastroparesis, maybe?

Quote:
Originally Posted by SuzyQPA2 View Post
Oh and note this insomnia & stomach problem only started after eating those two things around Christmas....I do have GERD but was previously able to eat pretty much everything except oranges/spicy/tomato things.
I was diagnosed with GERD yrs ago but I don't believe I actually had it as symptoms didn't come back. I too have sleep issues. I also had sleep apnea but it only lasted during pregnancy 4 yrs ago. I can't tolerate any veggies or salad as it brings about this new "sickness" quickly. I was juicing my own fruits but can no longer do that because it spikes my sugar worse. Mine comes as flare UPS I think because some days I can tolerate most food and be normal, then I'll have a few rough days randomly where I can't. I am going to the doctor tomorrow. I have no idea what tests will be done or what all can cause this. When I find out, I will post here.

 
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Old 01-26-2013, 02:49 PM   #5
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Re: Gastroparesis, maybe?

Make them test your gallbladder
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Last edited by SuzyQPA2; 01-26-2013 at 02:50 PM.

 
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Old 01-26-2013, 02:54 PM   #6
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Re: Gastroparesis, maybe?

Quote:
Originally Posted by SuzyQPA2 View Post
Make them test your gallbladder
I haven't had a gall bladder for about 4 yrs. My first attack of this sickness was certainly comparable to a gall bladder attack. That may give them an idea though about what it could be since it felt like one. I may seek out a specialist if they can't figure it out.

 
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Old 01-29-2013, 12:09 PM   #7
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Re: Gastroparesis, maybe?

Just an update: I had the gastric emptying test today. I meet with the doc in 6 days and should find out results. I know the test isn't supposed to hurt or cause discomfort but it did with me. I had bad constant lower stomach pain, as well as a bit od stabbing pain and towards the end lots of gurgling and could feel like a fluttery feeling or movement. My tummy has been in pain since. It may be from actually eating the sandwich, since eating causes pain.

I watched the photos the machine took over the course of the 2 hrs. The very last photo which was taken about 110 minutes into the test showed the radioactive particles as being dissolved and broken up. They were clearly still there, but broken down. Not sure if that signifies anything, but just adding what I observed. I will post when I find out results.

 
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Old 01-31-2013, 06:00 PM   #8
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Re: Gastroparesis, maybe?

cool - i go for my endoscopy tomorrow - anxious about it....
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Old 01-31-2013, 06:04 PM   #9
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Re: Gastroparesis, maybe?

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Originally Posted by SuzyQPA2 View Post
cool - i go for my endoscopy tomorrow - anxious about it....
Good luck! Hope you get some good results. I know the nerves are hard to deal with. Hang in there!

 
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Old 02-04-2013, 09:38 AM   #10
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Re: Gastroparesis, maybe?

Got results today and I wS actually borderline rapid emptying, which shares similar side effects with delayef emptying. I believe he said emptying should occur between 60-105 minutes and mine occured around 57 minutes, so it's nothing major that needs intervention. Since my sugar has went down symptoms are better so I'm thinking that the high sugar exacerbated the symptoms which could be somewhat from rapid emptying. He was a bit puzzled and didn't expext that. Neither did I because I should have been having low sugar not high sugar. Well, either way I got my answers. I just hope I don't have any more issues or my emptying time speeds up any more.

 
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Old 02-16-2013, 12:19 PM   #11
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Re: Gastroparesis, maybe?

I have the same symptoms. I am not a diabetic yet, though both my parents are. I think it's damage to the vagus nerve and I'm going to find out. I have a regular doc, and now a functional medicine doc who thinks I might have a candida issues, so I just started taking Diflucan for this. Whatever it is, I share your nightmare, I am so hungry and just afraid to eat. I had been taking pain meds, stopped taking them a month ago, just took a half of one today because I can no longer handle the pain, needed a break today. I have a neurology appt coming up and I'm going to ask that they test this nerve. I've just had it. Let me know what you find out.

 
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Old 02-16-2013, 02:09 PM   #12
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Re: Gastroparesis, maybe?

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Originally Posted by stcloudmom View Post
I have the same symptoms. I am not a diabetic yet, though both my parents are. I think it's damage to the vagus nerve and I'm going to find out. I have a regular doc, and now a functional medicine doc who thinks I might have a candida issues, so I just started taking Diflucan for this. Whatever it is, I share your nightmare, I am so hungry and just afraid to eat. I had been taking pain meds, stopped taking them a month ago, just took a half of one today because I can no longer handle the pain, needed a break today. I have a neurology appt coming up and I'm going to ask that they test this nerve. I've just had it. Let me know what you find out.
Thats funny because I was recently put on Diflucan for the same issue and the meds didnt work. But as a diabetic I am prone to those infections and they are hard to treat. It took them over a yr to diagnose my diabetes...their tests said I was fine. The ER test showed I had diabetes for probably a very ling time. I suggest buying a $20 disposable meter at Walmart, it comes with strips. Log your fasting sugar everday after waking up. It's worth the $20 just to be sure and check it over a few week period. My gastric emptying test came back that I'm borderline RAPID which shares some side affects as slow emptying but my high sugar made symptoms more intense. So my idea was right but on the other side of the emptying spectrum. Hopefully you'll find out soon what is going on. Good luck!

 
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Old 02-18-2013, 08:26 PM   #13
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Re: Gastroparesis, maybe?

Found out I have a hiatal hernia discovered raw vegan helps my condition out
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Old 02-18-2013, 08:37 PM   #14
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Re: Gastroparesis, maybe?

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Originally Posted by SuzyQPA2 View Post
Found out I have a hiatal hernia discovered raw vegan helps my condition out
I'm glad they found out, but I'm not familiar all that well with hernias. For the Past 2 days I have had very bloody bowel movements. I know TMI but I thought it could be related to some of this stuff. I did take a positive pregnancy test today. Now I'm wondering if that hasn't played a part. I've wondered about hernias, ulcers, etc but I need to look into those as I don't know much about them. Hopefully you are able to handle yours well and the diet continues to work well. For me, I think theres more wrong than just borderline rapid emptying, but who knows.

 
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Old 02-19-2013, 07:35 AM   #15
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Re: Gastroparesis, maybe?

Quote:
Originally Posted by LuvlyAthena View Post
Thats funny because I was recently put on Diflucan for the same issue and the meds didnt work. But as a diabetic I am prone to those infections and they are hard to treat. It took them over a yr to diagnose my diabetes...their tests said I was fine. The ER test showed I had diabetes for probably a very ling time. I suggest buying a $20 disposable meter at Walmart, it comes with strips. Log your fasting sugar everday after waking up. It's worth the $20 just to be sure and check it over a few week period. My gastric emptying test came back that I'm borderline RAPID which shares some side affects as slow emptying but my high sugar made symptoms more intense. So my idea was right but on the other side of the emptying spectrum. Hopefully you'll find out soon what is going on. Good luck!
The thought has occurred to me regarding blood sugar. I just did fasting test for my doc. But, I can buy the strips and Walmart, and the machine, and start testing. I should be on the watch for that. I have a gasto appt on Wed, I'm sure they'll ask for an emptying testing as well. I see the neuro week after next. I'll let you know what they saw. I just went to the chiropractor and he did wonders for the rib pain, of course it comes back because I think it's a musle/nerve problem, but it was delightful for the remaining of the day.

I am doing better eating, not so much bloat, so I think the Diflucan was a good choice for me. I was having yeast infections, not really even that, just irritation, that never seemed to go away. I have Hashi's too so it could have been that, I was greatly helped by upping my Synthroid. I think this is just a mixed bag for all of us. Do I think I have Fibro? Yeah, I do, I thought that a year or so back when the rheumatoid doc said I did not. This new doc said hands down he thinks that's what wrong, plus the yeast. If the Diflucan doesn't work, at least I'm still on track with more traditional medicine. If they can't find anything obvious on this next expensive attempt I'm making at having an answer, then I'll just accept that it's all Fibro related and do my best to live with it. I still find it hard to believe that I do not have an answer,not having a real answer is hard to wrap your mind around, ya know? Even when they say Fibro, your mind just can't accept it.

 
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