Hello, I am trying to find some answers when doctors haven't been able to come up with any. I will attempt to be brief but there are a lot of details:
I am a 40 year old woman, physically fit and a healthy weight, otherwise healthy. Daily I take multivitamins, Concerta for ADD, and occasionally will use Ambien.
2011-diagnosed with acid reflux after seeing the ENT for chronic (years) post nasal drip and globus sensation. Prescribed numerous PPI's and antacids over the course of the next year which did not help. I then progressed into nausea, feeling like I had something stuck in my chest, terrible taste in my mouth, overwhelming fatigue, excessive belching, vertigo on occasion, hoarseness, upper respiratory symptoms like coughing and runny nose, reflux that I can feel come into the back of my throat.
Spring 2012- I went through several endoscopies and a Ph monitoring test, all normal except for a small hiatal hernia. Upper GI showed constant reflux, Manometry indicated nutcracker esophagus. Developed about 30 food allergies indicated by blood work. (These would cause upper respiratory symptoms and included chicken, grapes, apples, soy, dairy, wheat, pretty much everything )
I then went to see a chiropractor that practices applied kinesiology. He said I did not have too much acid but not enough and gave me betaine HCL which cured my symptoms in 3 days, all of them. For 10 months I was symptom free.
Early 2013: Symptoms come back, this time worse. The belching was the worst, painful, and would last from 2-3 weeks almost constantly. Betaine seemed to make the symptoms worse. Tried baking soda which alleviated the belching. Had a couple of episodes of the belching accompanied by a sever pain under my left ear lobe. This would come on very quickly, stay for 3 or 4 hours, then be gone.
I go back to my PCP in April, he does blood work, all normal. He sent me to a new GI specialist who orders more blood work and a gastric emptying test. Both are normal EXCEPT for a slight elevation in total bilirubin. (2.5) AK CHiro insists it's the acid I need and adjusts the hernia but symptoms only get worse.
My current symptoms come and go in severity. I can have all of them- nausea, burping, feeling like there is something stuck under my chest, extreme fatigue, reflux (sometimes when doing pushups or burpees early in the morning I would have to stand up quickly as whatever was in my stomach would come up. This is not accompanied by nausea) and a terrible taste in my mouth, and excessive saliva. Sometimes just one or two at a time. I do not have the runny nose or coughing currently and have not for about a year.
Gi doc prescribed hyscomine which made nutcraker symptoms worse. He then prescribed Bentyl on Wednesday this week which hasn't had an effect yet. He blew me off. Did not care to look further, just wants to treat symptoms.
I no longer take the betaine. I will occasionally take apple cider vinegar. I will use Pepcid when I start feeling the reflux burn or when I start belching which helps somewhat with the reflux and does get rid of the belching, thankfully.
I am very frustrated and hoped maybe someone might have experienced something similar and be able to point me to another possible diagnosis that I could talk to my doctor about.
One clue here - the elevated billirubin. Has anyone mentioned gallbladder issues? Have you had an ultrasound or HIDA scan? If not, I would. The elevated billirubin is a sign of possible gb issues. Mine was elevated when they found stones and I had it removed.
My doctor did not mention gallbladder issues. I googled elevated total bilirubin after seeing my blood work results and considered that I should mention it to my doctor but since I didn't have any other clinical signs I didn't. I think I will. Thank you.
Well, yes. It's not usually an overnight thing, particularly if it's a non functioning gb instead of stones. That will get progressively worse and can manifest as nausea and too much (high ejection rate) or not enough (too low ejection rate) bile. I'd certainly ask. It may not be all your problem but it certainly could be part. Obviously the hernia isn't helping things either. They could repair both via lap procedure at the same time....if gb is part of the issue.