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Old 06-17-2013, 05:39 PM   #1
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sparky2013 HB User
Slow transit throughout the GI Tract (please Help)

Hello,

Firstly great forum, i hope im posting this in the right section.


I am currently really suffering i will give you a bit of background of my medical history of surgery:

2 year old: Gangerine Peritinitis

20 years old: multiple adhesions removed, due to bowel obstruction.

and several times surgery for bowel obstructions.


I have been in and out of hospital and had huge problems throughout my life, but this has got worse.

i was recently referred to a specialist who is one of the best in the UK along with a great professor of the bowel.

after some thorough tests by the new consultant i was diagnosed with colonic Inertia (slow transit in large bowel) and chronic slow transit in my small bowel. (I'm currently suffering bleeding)

i also have a para-umbilical hernia, but that's the least of my worries at the moment.

i suffer with immense pain, and bloating, and am just generally beyond fed up now, i cant do much nowadays, due to this and my epilepsy, which is very uncontrolled.

The reason i'm posting this thread is to see if anyone else has chronic slow transit in both the small and large bowel?

My consultant has been down every avenue i had the device fitted through my spine to try and get my bowel working, which failed, and have had every drug and laxative possible, and even off licensed drugs prescribed without any luck,

the consultants arranged a meeting, with me and the professor to discuss our next step, which they said could only be an Ileostomy, at the meeting the professor said that the Ileostomy will not cure it, as there is no fix for my condition, and that the Ileostomy will either make me feel a little better, or could make me extremely worse, especially as my small bowel transit is chronicly slow, which my Ileostomy would rely on to run right. Im really stuck on what to do now, i'm 31 years old, and have 2 young children, i struggle on a daily basis, as i said i have tried every treatment, and have not long come out of hospital which i was in for 9 weeks. I was told i could not go home as after tests my colon and small bowel was packed, and i was hugely distented and unwell, and they said there was a risk that my bowel could perforate. my consultant eventually let me go home after lots of persuasion, and im now to make up my mind, on what the next step shall be. im an irrigation programme at the moment along with Enymas and lots of other medicines, but these are not working, and im feeling very unwell again. My consultant prescribed me Gastrografin 10ml twice a day, whilst i make a decision on whether i have the ileostomy or not. im very reluctant on having this as i dont want to be any worse than i am, im struggling to cope as it is now. if the consultants was certain that the ileostomy would work i would most certainly have the procedure done, just to give me some of my life back. They said the ileostomy could be reversed, but i would have to wait 12 months for this.

If anyone has had the same kind of problems could you please contact me, and let me know.

Im struggling to digest anything, including my medication, which is also causing me to have seizures with my epilepsy.

Im really suffering, on a daily basis now. and have done for long, and its just getting worse. This has took over my life, i just want some normality back.

Im forever having NG tubes through my nose, and all the other horrible stuff that comes along with Gastro distention. And have honestly just had enough now.

Please Help.

Last edited by sparky2013; 06-17-2013 at 05:47 PM.

 
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Old 06-17-2013, 05:45 PM   #2
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com77 HB User
Re: Slow transit throughout the GI Tract (please Help)

Why don't you get a second opinion?

Last edited by moderator2; 06-17-2013 at 05:58 PM.

 
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Old 06-22-2013, 08:09 AM   #3
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carly33 HB User
Re: Slow transit throughout the GI Tract (please Help)

Hi I am 33 and suffered from rectal prolapse and Solitary rectal ulcer syndrome. I had rectopexy surgery in November 2012. Unfortunately it has made me worse and now suffer from colonic inertia and been in and out of hospital also many times. I have no feeling I need to open my bowels and rely on 12-14 suppositories a day to give me just slight relief from my discomfort. I also suffer from chronic anal pain every day which is very debilatatating. I am also under a professor in the U.K who has basically said he can't offer me anything else except peristeen irrigation and sacral nerve stimulation surgery. I also suffer from gastroparisis and a hiatus hernia and have had 2 Botox injection treatments for this which has helped. Before the Botox I couldn't eat anything solid and relied on slim fast milk shakes every day, and lost a lot of weight.
I have asked my GP for a second opinion regarding my colonic inertia and anal pain as I am suffering awfully every day and the pain whilst on the toilet is agony. Unfortunately I have made that area sore, red, and swollen due to the trauma I put it through just to do a normal bodily function that people take for granted! So been given steroid cream by my GP. I also feel exhausted all the time and just feel so drowsy from all my meds that I have to take daily. I recently had abdo x ray and it showed faecal matter throughout my colon.
Can anyone relate to my awful situation

Last edited by carly33; 06-22-2013 at 08:13 AM. Reason: Duplicate

 
Old 06-22-2013, 08:11 AM   #4
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carly33 HB User
Unhappy Re: Slow transit throughout the GI Tract (please Help)

Hi I am 33 and suffered from rectal prolapse and Solitary rectal ulcer syndrome. I had rectopexy surgery in November 2012. Unfortunately it has made me worse and now suffer from colonic inertia and been in and out of hospital also many times. I have no feeling I need to open my bowels and rely on 12-14 suppositories a day to give me just slight relief from my discomfort. I also suffer from chronic anal pain every day which is very debilatatating. I am also under a professor in the U.K who has basically said he can't offer me anything else except peristeen irrigation and sacral nerve stimulation surgery. I also suffer from gastroparisis and a hiatus hernia and have had 2 Botox injection treatments for this which has helped. Before the Botox I couldn't eat anything solid and relied on slim fast milk shakes every day, and lost a lot of weight.
I have asked my GP for a second opinion regarding my colonic inertia and anal pain as I am suffering awfully every day and the pain whilst on the toilet is agony. Unfortunately I have made that area sore, red, and swollen due to the trauma I put it through just to do a normal bodily function that people take for granted! So been given steroid cream by my GP. I also feel exhausted all the time and just feel so drowsy from all my meds that I have to take daily. I recently had abdo x ray and it showed faecal matter throughout my colon.
Can anyone relate to my awful situation

 
Old 06-22-2013, 03:36 PM   #5
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Terlin HB User
Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by carly33 View Post
Hi I am 33 and suffered from rectal prolapse and Solitary rectal ulcer syndrome. I had rectopexy surgery in November 2012. Unfortunately it has made me worse and now suffer from colonic inertia and been in and out of hospital also many times. I have no feeling I need to open my bowels and rely on 12-14 suppositories a day to give me just slight relief from my discomfort. I also suffer from chronic anal pain every day which is very debilatatating. I am also under a professor in the U.K who has basically said he can't offer me anything else except peristeen irrigation and sacral nerve stimulation surgery. I also suffer from gastroparisis and a hiatus hernia and have had 2 Botox injection treatments for this which has helped. Before the Botox I couldn't eat anything solid and relied on slim fast milk shakes every day, and lost a lot of weight.
I have asked my GP for a second opinion regarding my colonic inertia and anal pain as I am suffering awfully every day and the pain whilst on the toilet is agony. Unfortunately I have made that area sore, red, and swollen due to the trauma I put it through just to do a normal bodily function that people take for granted! So been given steroid cream by my GP. I also feel exhausted all the time and just feel so drowsy from all my meds that I have to take daily. I recently had abdo x ray and it showed faecal matter throughout my colon.
Can anyone relate to my awful situation
Have the same problem after inguinal hernia surgery and now hiatal hernia , do you have shortness of breath and does it hurt more when sitting it is for me please let me know also have impacted stool and can't pass enimas nolonger

 
Old 06-22-2013, 03:44 PM   #6
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carly33 HB User
Re: Slow transit throughout the GI Tract (please Help)

Hi yes I have terrible shortness of breath my GP has put me on 2 types of inhalers but it comes and goes its awful. It also keeps me awake on a night it's so bad. Yeh and it also hurts me to sit or stand for too long but especially sitting its awful

 
Old 06-22-2013, 05:31 PM   #7
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Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by carly33 View Post
Hi yes I have terrible shortness of breath my GP has put me on 2 types of inhalers but it comes and goes its awful. It also keeps me awake on a night it's so bad. Yeh and it also hurts me to sit or stand for too long but especially sitting its awful
Do the inhalers help is your breathing problems from the hernia? In my case when I inhale there feels like there is a belt around me squeezing so I can't get a full breath. And sitting also hurts my lower abdomin and makes it harder to breath, is this the same for you? I wish you the best.

 
Old 06-23-2013, 07:02 AM   #8
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carly33 HB User
Re: Slow transit throughout the GI Tract (please Help)

Not sure what shortness of breath is caused by but it does feel like there is a tight band round my chest. The inhalers help for a bit then it comes back again, I get pain in my coccyx area when I am sat for too long and when stood for too long I get severe stomach cramps.
Hope you feel bit better today

 
Old 06-23-2013, 07:22 AM   #9
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Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by carly33 View Post
Not sure what shortness of breath is caused by but it does feel like there is a tight band round my chest. The inhalers help for a bit then it comes back again, I get pain in my coccyx area when I am sat for too long and when stood for too long I get severe stomach cramps.
Hope you feel bit better today
My shortness of breath feels like its coming from to much stool inside suppositories don't work no more I can feel the stool in my lower gut I can only pass formed stool but some how it's building up inside me don't eat much any more and hard to sit because of belly pain and body feels heavy my spine seams to be out of wack because I think I lost my core muscles

 
Old 06-23-2013, 10:01 AM   #10
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com77 HB User
Re: Slow transit throughout the GI Tract (please Help)

Bloating can push up on the diaphragm, which can push up on the lungs causing shortness of breath. In addition to improving regularity, do exercises to strengthen your abdominal muscles. And don't forget that daily cardiovascular (aerobic) exercise has a direct impact on digestion. The proper way to do aerobic exercise is to bring your heart rate up into your target zone through repetitive exercise of large muscles and to keep it in that zone for at least 20 minutes continuosly. The target zone is usually 60 - 80% of the maximum heart rate for your age. Search for "target heart rate" if you don't know what this means.

 
Old 06-23-2013, 10:25 AM   #11
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Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by com77 View Post
Bloating can push up on the diaphragm, which can push up on the lungs causing shortness of breath. In addition to improving regularity, do exercises to strengthen your abdominal muscles. And don't forget that daily cardiovascular (aerobic) exercise has a direct impact on digestion. The proper way to do aerobic exercise is to bring your heart rate up into your target zone through repetitive exercise of large muscles and to keep it in that zone for at least 20 minutes continuosly. The target zone is usually 60 - 80% of the maximum heart rate for your age. Search for "target heart rate" if you don't know what this means.
How do you exersize when your so impacted and you can't breath ?

 
Old 06-23-2013, 11:02 AM   #12
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Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by com77 View Post
Bloating can push up on the diaphragm, which can push up on the lungs causing shortness of breath. In addition to improving regularity, do exercises to strengthen your abdominal muscles. And don't forget that daily cardiovascular (aerobic) exercise has a direct impact on digestion. The proper way to do aerobic exercise is to bring your heart rate up into your target zone through repetitive exercise of large muscles and to keep it in that zone for at least 20 minutes continuosly. The target zone is usually 60 - 80% of the maximum heart rate for your age. Search for "target heart rate" if you don't know what this means.
How do you clean out , I can't get an enima out and with the neuropathy I have I don't have much leg strenghth and hand cordination, but how do you clean out I also have urine retention

 
Old 06-23-2013, 12:59 PM   #13
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carly33 HB User
Re: Slow transit throughout the GI Tract (please Help)

I feel the same I can feel the stool in my lower gut and My tummy feels very heavy. Have you tried micralax enemas before u can get them from your GP. Did you say you have tried suppositories before. I find they don't really work anymore I use a box of 12 every night and I only go a tiny bit, never feel relieved. I also pass very hard stool in balls ( very painful)
Have you tried laying on your side with your legs up, I find it helps the trapped wind and the stomach cramps associated with sitting

 
Old 06-23-2013, 01:10 PM   #14
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Re: Slow transit throughout the GI Tract (please Help)

Quote:
Originally Posted by carly33 View Post
I feel the same I can feel the stool in my lower gut and My tummy feels very heavy. Have you tried micralax enemas before u can get them from your GP. Did you say you have tried suppositories before. I find they don't really work anymore I use a box of 12 every night and I only go a tiny bit, never feel relieved. I also pass very hard stool in balls ( very painful)
Have you tried laying on your side with your legs up, I find it helps the trapped wind and the stomach cramps associated with sitting
Yes I have been on all of those through my gastro bowel control program now every thing is worse I can go once in a while large amounts have to flush a few times it all comes at once but I still have this bloating and never relieved . How does this iragation work I dread the thought of it?

 
Old 06-23-2013, 01:50 PM   #15
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Re: Slow transit throughout the GI Tract (please Help)

I make myself go with a box of suppositories every night otherwise I would never go and would get extremely clogged up, I will get a few lumps coming out and sometimes nothing but would be so uncomfy otherwise. I am always very bloated though whatever I do so I can relate with you, it feels like I need to put a pin in my tummy and let all the gas out like a balloon! When you do go is it accompanied with cramps and nausea?
I am also waiting for this irrigation thing but not sure how it even works, it doesn't sound very nice to have to do though. Have your doctors suggested sacral nerve stimulation to you at all
So glad I can talk and relate to someone who knows what we are having to contend with on a daily basis

 
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