So, this is my third post on this site about the same thing. i apologize for anyone who is sick of hearing from me. but here it is. i got dizzzy, real true vertigo 2 weeks ago in the middle of night out of no where. went back to bed, dizzyness finally died down and i fell asleep.. now, since then, ive had this gross feeling of lightheadedness, weakness, fatigue, almost like my legs are shakey, feeling like im tilting, top heavy, etc. these come in waves, while soemtimes i feel okay for a bit, then it hits again. so i see my doctor, she says my lymph nodes are swollen, must have virus in inner ear. so she says rest u'll be fine. recently, gettin all worried it hasnt gone away, so i go to see ENT. he looks in my ears, gives me a hearing test. does anybody kno if the hearing test gives him anything useful? cuz he never commented bout viral cause of vertigo, but said he thought it was from having knee surgery, cuz i've been on cruthces for a month and immobile. so now im thihnking what the hell? so imma see another doctor tomorrow, and plead with him to do some tests.. like a blood work or scan of my head cuz im worrying sick that its something serious and life threatening. both docs said dont worry, but i want some reassurance, like something more than somebody flashin a look in my ears. cuz this feeling sucks.. now i've read more bout TMJ, cuz i grind my teeth and even had tension problems in my temples. does anybody know if this could cause it too? Also, i heard that ENT's arent real good at knowing whats going on in the inner ears? is this true? i heard that a nuero-otologist, or however u spell it is better to see. is this true? what should i do.. i mean i dont care if i have these symptoms as long as im okay and not having some brain disease. anywayz, any help would be great.. so i can finally shut up and stop buggin you people
Sounds like inner ear to me; probably labyrinthitis. It is most likely nothing life threatening; just something miserable to deal with until it goes. Talk to your doctor about your anixiety. I'm not sure where you are from but if you are in the US they will probably do an MRI and bloodwork to rule out the serious stuff first. My experience with ENT's has been unpleasant and I feel they really know nothing about the inner ear, but that is only my opinion (and maybe a few others on this board). I learned about a neurotogist from the people on this board and that is who I am seeing. They deal specifically with dizziness and inner ear stuff. I'd recommend one of them over and ENT.
Stress and anxiety from this disorder I have found to be the worst so try to relax or it will just make all your other symptoms worst. I know this oh too well for I've been battling this stuff since the beginning of January. I've gotten better, but very slowly. Everyones recovery is different; some have recovered in 6 - 8 weeks while others in three years.
Last edited by gloria2936; 09-23-2005 at 05:28 AM.
Anyone on this board who has had labyrinthitis has probably gone through what you are dealing with now and yes we all agree that it sucks big time. We have all felt like we are dealing with something more serious and that is probably because it involves out head and the dizziness provokes those yucky symptoms that make you think you have had a stroke or some serious disease.
If you head to the ENT or neuro-otologist, ask for some tests which will indicate if there has been any damage to the inner ear, then you will know for sure that it is inner ear and can deal with the symptoms better. Unfortunately time is really the best healer in all of this. Ask for an ENG, caloric test, rotary chair test etc.
Most of all, try to stay as positive as you can, keep moving! The movements that make you feel the worse are the ones your brain needs you to do to heal faster.
Hope you are having a better day, I've been there and never want to go back, but the good news is that I have come out the other side feeling normal again!
hey guys, thanks for commenting, i really appreciate it. so i saw another doctor today, told him my story of how it happened and symptoms. he gave me some nerve test, where u follow the finger, check my eyes, balance, feeling in hands and bottoms of feet, and basically said im perfectly normal, and that he feels that its nothing serious, because most people who do have serious illness fail, or have problems doing what i did.. so anyway, he said he felt it was inner ear labyrninths, and that it could take a while to go away. he said doing tests now after 2 weeks, he really didnt feel necessary. so pretty much i have 3 docs telling me im okay and too relax, which i probably should. you guys are right though, the anxiety kills you, makes it worse. And it is true, because its ur damn head, u freak, thinking its something horrible, cuz the feelings you get from this are indeed horrible. i think down the road i'll see a neurotogist if it persists, just because they sound more specified in that area, and ask for those tests you mentioned. all in all this has probably been one of the worst and most lousy 2 weeks of my life.. haha, its really a bummer, with all the worrying. but i really gotta get back to normal, and start doing things and get my mind off it. anyhow, thanks again.
That is what we are here for Scott. After nine months of this for me, I still posts requests for comfort and help. It is terrible because you don't feel yourself. It kind of takes control of your mind. Hang in there. Other people on this board have proven that you can recover from this but takes time and lots and lots and lots of patience.
Do anything you can to take your mind off it. It helps with recovery.
Just a brief suggestion from someone who has totally been in your shoes.... do a search on vestibular rehabiliation therapy and begin some of the simpler exercises - you have received advice from "voices of experience" here on this board - and they're right - the more you are able to move about, the sooner you'll begin to compensate! (Though difficult due to the knee surgery, look up the Cawthorne VRT, which you can do sitting down.) Try to ride the wave of brain fogginess, disequilibrium and all of the other miserable symptoms - they WILL ease up!!!
im figuring im gonna start doin weights and some exercising as much as i can to try to get back to normal.. this is just horrible. but i tried the moving programs the ent gave me.. he actually said dont do em till 2 or 3 weeks have past and im not better, but i tried them anyway. and it made me feel like garbage. can this happen? over doing it? if so, is it good to push through some what to get your head back online? also, im gettin this fatigue feeling too, shakey.. uh.. where's the magic pill to rid me of this!!:
im figuring im gonna start doin weights and some exercising as much as i can to try to get back to normal.. this is just horrible. but i tried the moving programs the ent gave me.. he actually said dont do em till 2 or 3 weeks have past and im not better, but i tried them anyway. and it made me feel like garbage. can this happen? over doing it? if so, is it good to push through some what to get your head back online? also, im gettin this fatigue feeling too, lightheaded, shakey.. uh.. where's the magic pill to rid me of this!!:
Sorry that you are still going through this junk. It is possible to overdo it and especially at the start it is easy to do too much. It is not good to try to work through it - you won't and you will feel worse. Just do the first exercises and do them a couple of times a day for a short while. You can build up but at the moment everything is flared up with you. Your brain is trying to work out what is going on and when you do the exercises it starts to get used to the movements and starts coping with it.
Don't worry about the fatigue and shakiness, I still get it and I have had this for 11 months. It is horrible but in me it shows that my body is dealing with the dizzyness.
i will for sure thanks. i can't believe im only 22 and dealing with this stuff. anyway,
i've noticed here for a bit, that i feel better after i've been lying down for a bit. does anybody know why this is or talked to ther ents or speicialists who might have said why? it seems if im standing for a while, or doin stuff, i'll start to feel gross. then if i lay down on the couch or something then get up later, i feel a bit better.
I've been reading your thread for the last several days and it sounds very similar to what I have been through the last 6 weeks or so...it literally came out of nowhere with dizziness, nauseau (couldn't eat much), fatigue, sweats, shaking...scared me to death and I went to 2 ENT's for opinions. Bottom line - mine is viral (vesitbular) and will take some time to pass. As you noticed on this board everyone is fantastic and everyone has symptoms that are a little stronger than the others...mine has progressed over the 6 weeks and I feel much better although I am nowhere near myself as of yet...the dizziness is now more of an offbalance feeling which is better than before. I still have some nauseau but I went for a follow up to my ENT yesterday and he seems to think that it will probably run its course over the next 2 to 4 weeks...think of it like mono or bronchitis or pneumonia...if you know someone who has had something like that it does take a little while for them to recover and the best medicine is time...I'm at about 85% and I have good days and bad days, good hours and bad hours but it is getting better...I know feeling this way is a real bummer especially if you are active like I am...no baseball for 3 months just in case I have a spell in the middle of a play and get hit in the coconut with the ball...just try to keep in mind that your doc could have said a number of things when he/she took a look at ya and they could have been much worse than what they did say...we all go in expecting the worse because most of us have never experienced anything like this, but we didn't hear the worst...rather than an issue with your ears that will get better (slowly I know, but it will get better), it could have been something that involved a lot more docs, a lot more tests and a lot more time...be thankful that you are posting on this board instead of another and take advantage of the great people on this board...just reading the posts makes me feel better.
I'll see ya on the boards and we will get through this together.
thanks for the advice sportsfan. last night was horrible night. didnt go to sleep till 5 30am. felt okay when i went to bed, not great but okay, then i started feeling really bad, like things were gonna start spinning and that i might faint. freaked out big time, called ENT at 4am, he felt it wasn't anything serouis, and to fight it out unless i coudlnt hold anything down, then he said go to ER if thats the case. so i fell asleep finally and woke up, and today i feel aweful, head feels full and heavy, dizzy, like i might faint. called ENT again, the 4th doc ive spoken too, and he felt that it wasn't anything life threatening, and called in some medication so i could sleep at night if it gets real bad. my question is, is this normal to get nailed like that? i thought i was feelin better, where i could function, and now this hits me so its got me all worried, even though the docs seem to not be so concerned. i kept talkin to the ENT how horrible i felt, and he said he could order an MRI this coming week. and i really hope he does, just to give me some peace of mind. he also said he thought it is that positional vertigo. but i don't know. why do both ENT's i've talked to seem to not say its viral labs, but say its attributed to not being mobile after surgery? and both medical docs say it is probably viral labs. i'm confused, extremely upset, and i hope to God all the docs are right and its not serious. i just can't believe something that isn't really serious could cause all this.
I'm really sorry you are deailng with this. You will get better. This very much sounds like an inner ear problem. You will have good days, bad days, and it will come and go. Just because you were feeling better and then get hit with it again, doesn't mean it is anything more serious. I promise. I had a virus damage my inner ear four years ago and had the room spin out of nowhere on me. It didn't last long, but from then on I had that off balance feeling, like I would get really dizzy at any second feeling. I felt like I was spinning, even though the world looked normal. When I walked I sensed the floor was swaying. It wasn't fun. I got this when I was 24, so it really freaked me out. It lasted six months, and then I was better. I was fine for four years. Now, four years later, it came back, due to a really bad case of bronchitis that caused decompensation. My brain pretty much forgot how it fixed things, and I felt bad again. Same symptoms. Same stuff. I'm six months into it now, and I do feel a lot better. But, I do have days when things are worse. It can feel really bad and get better, and go back and forth until your brain really figures stuff out. It's important to try and stay active so your brain can learn to compensate. I know you had surgery, so you do your best with that. I had an MRI and it came back normal. So you are probably okay too. Get it done though, just to put your mind at ease. If you can get an ENG test (inner ear test), go get one. It will tell you where your inner ear damage is and how much. I think you should push for one. Try to see a neurotologist (spelling?) they deal with dizzy stuff better than ENTs.
6 weeks into it does seem like a long time, but it may take months. I'm not saying this to freak you out, but to let you know that it can take longer, so if you aren't out of the woods yet, that doesn't mean it won't go away. It doesn't dissappear, but gradually leaves, with the setbacks becoming less and less.
I'm really really sorry you have to deal with this. Try to put your mind at ease that this isn't something more serious. I know it's hard because of how bad you feel, but it really isn't something worse. Amazing how bad your ears can make you feel, isn't it?
Hang in there, get some rest, and keep looking for helpful doctors. I healed from this once, and I am getting there again, so you will be fine.
thanks alot. yeah, this is actually my 2nd week of this and you said it perfect. its really hard to even explain to people how it feels, unless they've had it too. and the more you think about it, and analyze it, the worse it seems. just tryin to get through the weekend so i can go see the ent on monday or tues and get that mri. i'll definitley go see a neurotologist down the road i actually took a mezkaline, i think its called, who knows if i spelled that right. but i took one just a little bit ago, so hopefully that relaxes me and i stop thinking im about to die. but besides that, thanks for all the support of u guys, it really helps, cause the docs seem to get perturbed and their egos bent outta shape if u talk to them too much, or ask them "are u sure?" too many times. when ur dealing with this, it is really like ur in some kind of nightmare or dream state. crazy..
so im addin this through an edit. tonight, right after i wrote the top part of this thing, i freaked out big time.. felt horrible, i mean horrible. no spinning room, but inside my head felt like it was gonna burst, felt so full, as did my sinuses that are all plugged up. got all disequilibriumed, if thats a word, and felt faint and the whole 9 yards. so my parents took me to the ER. got a really nice doc, who explained inner ear stuff to me after hearing my story, and i swear he was 100 times as nice as the damn ENT i saw the other day. this guy actually took the time to explain, and went as far as to say that if you want a CT Scan he'd give me one to ease my mind. so i did, and thank God it came back normal.. so i sunk in the bed there finally relaxed that im not dying, cuz thats how i felt. they also gave me some thing close to valium to relax me and calm down the inner ear, which seems to be working, making it bearable. so now, i have to find a good ent, or a neurtologist. somebody who can help me out cuz my old ENT, wow, not goin back to him. whew, glad the worrying part is over in the serious illness respect.
Last edited by Sco24; 09-25-2005 at 12:08 AM.
Reason: more info
Sounds like you are not only dealing with the inner ear thing but a big dose of anxiety to go along with it which is a pretty common thing. Sometimes I thought the anxiety was worse than the actual inner ear symptoms. Maybe work on some meditation type breathing exercises to calm yourself down when you feel at your worst.
After a dealing with all of this for a few months I went to see a councellor who specialized in CBT to help me deal with my symptoms and it was one of the best moves I have ever made.
Stay calm and get some exercise, maybe long hikes or walks to both help with the head and to tire youself out to help you sleep.
Hope you have a better day today.