So it was 6 years ago that I started with waking up from a dream with spinning that would last a few seconds. This happened once every few months or so. About that same time I noticed that high volume sounds or my own screaming would make my left ear contract or I'd hear a tv static like sound sound. weird.
Then I notice that twice a year I would get the slow spin sensation that would last a few days and I'd have to take meclizine to keep from getting nauseaus. Now I'm still getting the night vertigo once or twice a month but it is followed by 8 days of slow spin like I'm on a boat. It's horrible.
I've seen an ENT for years who has tried diaretics, verapamil, she's given me valium to control the spells which works. She sent me for phys therapy. And ruled out BPPV cause she put me in some weird positions and nothing happened. I've had the a CAT scan and MRI found nothing. She sent me to an allergist, nothing. She put water in my ears and made me spin, while looking at my eyes, nothing..
Now I'm going to an orthodontists to look at TMJ although I have no pain in my face and no signs of grinding.
Hi there! Well, it sounds like a very similar story to many folks who come to this board. If your dizzies are not due to BPPV, then they are probably caused by migraine. Look up migraine associated vertigo or vestibular migraines. Read "Heal Your Headache" and/or Dr. Hain's info. pages. Treatment includes medicine to prevent migraines. If verapamil did not work for you, your doc may need to try something else. Best to see a headache specialist or neurotologist for this.
Hi there! Vestibular neuritis could be related in some way. Inner ear testing (VNG) usually shows some kind of inner ear damage if this is the case (you'll have abnormal eye movements and/or show signs of a loss on caloric testing). However, usually VN does not come and go over the course of years, although some think that a rare form can, I believe. Others think that is likely related to migraine. I also think vestibular neuritis set off my dizziness, but migraine issues have kept it going. VN often seems to set off migraine associated vertigo..it's a strong trigger.
If you want to get to the bottom of it, you should probably look into VNG testing with a neurotologist.