I was so happy to find this board as i thought i was going mad with my foggy head. My symptoms started over a year ago, but then i got pregnant with my second child and thought everything was pregnancy related. My ears felt continually blocked and i had pressure through my head, for this reason i thought it was sinuses, although there was never any dripping. i got better towards the end of my pregnancy and felt great for 2 weeks after he was born in early Oct 2002. This may be related to hormones. Then 2 weeks post natal i had a rush feeling up my neck and head and then i felt cut off in a strange way, this feeling has been with me on and off in varying degrees since then. I have also had mild vertigo which frightened me. When it got bad and i went to see a neurologist and had mri etc i really freaked out and the foggy feeling got worse, which makes me feel that anxiety can make that feeling worse although, i'm sure i was never anxious before this. I was only diagnosed with vertigo migraine in jan 2003 and was relieved that was all i had, although it has been thoroughly debilitating in many ways and like many of you will be celebrating and never moaning again when it goes. at present i'm taking serc for vertigo - only 1 week in so it was interesting to see that it may take a month to work. my neurologist said the cut-off feeling is anxiety but after reading these pages i realize that it probably isn't but is definitely made worse with anxiety. After reading through the pages on hormones i'm sure migraines are affected by hormones and so i'm also taking natural progesterone cream, hoping this will all start working soon. At the moment my ears hurt and i feel cut off but i know it doesn't stay this way all the time so i just try and grin and bear it. going out helps even if i feel yucky as it helps take my mind off things and entertains my toddler and baby. when you feel foggy in the head its hard to be optimistic and any other symptoms that may be unrelated tend to become apart of the disorder. my glands at the front of my throat come up all the time and sometimes i feel as though i have the flu, but my neurologist said my symptoms are to consistent to be a virus?? whatever it is i just want it to go away.
Sorry to rant on but its just so good to find a group of people who understand that horrible cut off feeling.
How do you know which ear you have it in? Only through tests? If so, what kind? I haven't made it to an ENT yet and I am praying my doc will refer me on my visit this Monday. I sometimes feel as if my right ear is blocked and when I try to pop it, it pops but never on its own. Do people with labyrinthitis usually feel something going on in their ears? I do have a sensitivity to light, but not all the time. Also, I'm not sure if my doctor will give me a referral. Any advice on how to convince him without offending him?
Ok, people with L'itis do have problems and feelings in their ears, yes, but only really at the start. Mine stopped after about 2 mths. They can only tell which ear is affected by tests, yes, these arent really worth doing to be honest. If your Doc does not refer you, then you must go to another Doc or see an ENT privately. Hope this helps.
I'm kind of confused now. Up until now, I was pretty sure I had L'itis but I really never had any problems with my ears. I did noticed a lot of pressure around my temples and my ears seemed plugged. But as for obvious pain and discomfort, not really. Is it poosible it could still be L'itis or not?
Yep it does sound like L'itis though I'm not a dcotor. L'itis does produce blocked ears, slight pain etc at the start. I still get popping occasionally now 5 mths on. You can also have slight hearing loss. Go to an ENT. Say you want to be referred. If they wont, say you will go Private and go. My Doc was about to refer me but told me it would take 4 mths to get there so she suggested I went privately.
After feeling crappy this week with flu and ears hurting blocked feeling, now the foggy feeling i rang my neurologist yesterday. he was very helpful and said that he still thinks its MAV (migraine associated vertigo) however i can have tests for a mild case of miniers (i don't think i have this). The reason i think its MAV is that my eyes are light sensitive, i have pressure through my forehead and temples and i did get classical migraines as a child. i asked could it be a virus and he said i could certainly have an underlying virus that is causing the migraine. that explains the never getting on top feeling and the glands etc. unfotunately they can't test for viruses that would cause this because at my age 35 i would probably have the antibodies in my system anyway. he works along side a nuero otolgoist and was happy for me to see him. he even suggested I go to an ENT but i said i already did that and had the pressure tests etc everything was fine. I really like my neurologist so i will stick with him he is one of the best in melbourne and has seen so many patients that i suppose i i have to have faith in what he says. the good news is he is always optomistic and says i will feel better soon, and i don't think they would say that if they didn't believe it.
i feel so foggy now that i can't remember what its like to be normal but i do believe we will all get better
Kippers, I also have pressure in my temples and sensitivity to light (but not all the time). I have never had a history of migraines and haven't had too many problems with headaches in general. I am so frustrated listening to your story of going to this doctor and that doctor and still not receiving a definite diagnoses. I am feeling so discouraged! I am just starting this doctor thing and I haven't even seen an ENT yet! But I'm glad you are optimistic about the situation. I think our attitude in dealing with this situation means a lot. We only bring more stress on ourselves when we try and control this situation when we can't. I only wish I could remember that all of the time! Noey
Don't get me wrong, i'm not frustrated with my diagnoses, my neurologist said it was MAV. I only doubted that when i read some of these posts. I'm only frustrated with trying to cure it. I think we all have to remember that we are all different and we will all have slightly different symptoms, even if we are diagnosed with the same thing. If my neurologist says its something i have to believe him. i will have further tests, just to confirm that it is MAV. I just went and had acupuncture and i really like the way chinese medicine looks at things, they don't label something they look at the whole system and patterns, maybe thats a good way to look at it. I've never had headaches either only migraine when i was young, i think its a good idea to go to a good doctor and see what they say. I have also heard cranial sacral therapy is very good for migraines and i'm going to investigate that as well. How long have you had your symptoms??
Please share your neurologist and neurotologist details with me! I have seen an ENT who I am very unimpressed with and I really need to explore the MAV route. I am a long term headache and migraine sufferer but developed dizziness 7 months ago. I have had general improvement, especially in the last month but the symptoms are not constant and I certainly can't ignore the MAV diagnosis with my history.
Noey: Regarding your question about how you know which ear is affected; I was convinced mine was in the right hear...At the beginning of my lab, my right ear had alot of pressure, pain (not too bad, just occasional twinges of pain) and popping..But after having an ENG done, (a test where they have you follow lights, positional changes, and hot and cold water in your ears) the tests showed that my problem was in my LEFT ear, not my right!
Jen I'm not sure if i'm allowed to put details of specialists on here?? where abouts in australia do you live? you can acutally ring the royal college of physicians in your state and they will give you the web address where you can search for neurologist specialising in ears. but if you are in victoria then there are only 2 one in east melbourne and one in malvern. let me know how you go. i wish i could just tell you their names but i'm not sure if thats ok. once you have their names get a referal from your GP. good luck