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Dizziness / Vertigo Message Board
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Old 01-31-2009, 02:31 AM   #1
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dantexaiver HB User
constant vertigo

OK I dotn know how to write this all down but here it goes in point form

when i was 16 heading towards 17 i started to develop really bad spells of vertigo or dizziness balance was slightly off sort of it felt like the very world was moving when infact it wasn't like i could be sitting down and it feels as if my body is sensing things are moving right out from under neath me .

when i was 17 i ha an attack so bad i was bed ridden for weeks didnt want to even get out of bed i was so scared. i had test after test done nothing coul be found the neurologist put me on valium i had an allergic reaction two er visits in a week during that time i was having so much trouble sleeping being on that drug i felt wired and out of control as if a mysterious force was making me flail all around with dizziness i couldn't sit still i was wired.

After that valium incident was over i went on not knowing what was wrong i had a few attacks between the ages of 17 and 19 where it felt so bad i couldn't sit still i had to walk in a very fast pace around the house to even feel somewhat alright

after i graduated in 2003 i had a panick attack full out attack like i describe above my body felt weak very weak i was again bed ridden for a week doctor put me on paxil i was on it until 2005 in which i took my self off it it helped reach a sense of calm but it messed me up . i managed to start coping with the vertigo trying to ignore it as i went about my life . i avoided beign bounced around as it woul really set me off.

since being on paxil i have tried wellbutrin and recently the past year been on and off ciprilex. ciprilex being the one closest to even working but still not sure what to make of it. but even today at 24 im still suffering from this moving feeling as if the grounds being taken right out from underneath me at times. large wide pen spaces set me off also bright white rooms an shiny floors. sometimes it feels like i am being dragged down to my right side and even laying down i can still feel as if things are moving sometimes. this problem really heats up when my anxiety gets going as well. for years now my doctors i have seen have treated it as anxeity attacks and depression .

I grew up with adhd and anxiety attacks here and there but nothing as bad as what i ahd when i was older. even to this day off and on i feel the anxiety and stressed out i just try to live with it an deal with it

I dont know if its adhd biting me in the as or what but since i left high school and out on my own i really had trouble concentrating and just living in life my minds as if its always could and in a constant whirl wind thoughts ontop of others. Also has been biting me in the as job wise

The doctor wants me to take a double team of Dexedrine for adult adhd and ciprilex for the anxiety and depression but the bad part is cant afford them im layed off an looking for work

Last edited by dantexaiver; 01-31-2009 at 02:51 AM.

 
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Old 01-31-2009, 06:59 AM   #2
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bethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB User
Re: constant vertigo

Welcome to the boards, dan!

It sounds like your doctors have ruled out the obvious possible causes....if this is the case, you may have to do some investigative work on your own. I would suggest learning about Babesiosis which is a co-infection of lyme disease and is notorious for causing vertigo and some of your other symptoms. Babesiosis is a blood borne parasite and does not respond to most antibiotics but has been know to respond to Mepron.

A number of your symptoms suggest lyme or lyme coinfections. Unfortunately most doctors, specialists included, are not well versed in the diagnosis and treatment of lyme and the infections that can coexist with lyme. Special testing needs to be done and even then it can be unreliable.

You can find more info on the lyme boards.

Bethsheba

 
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Old 02-16-2009, 04:41 AM   #3
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Re: constant vertigo

I have suffered from constant dizziness for 3-4 years now. Much the same, I will be standing in line and it feels like the FLOOR IS FALLING OUT, then the worst part is lying down each night (couch, bed, chair, etc) I will get bouts of SUDDEN FALLING, FEEL LIKE I AM GOING TO FAINT, COMPLETE SHIFT IN BALANCE, etc.

TESTS: You want tests? MRI, CT, Tilt Table, ENg, VNG, VEMP, blood work, neuro exams, ENT exams, optho exams, regular PCP visits, etc, etc. The only thing they have come up with is a vestibular disorder (possibly in my right ear) - but no loss of hearing, no ringing in ears, no fullness in ears, little to no nystagmus when Dix-Halpike performed (if you do not know this test, it is the most basic of dizzy tests) and I am running out of sanity in the mean time.

RESULTS: The dizziness is ruining my life, has almost disabled me, constantly worried about my condition and have yet to solve the riddle. I can barely sleep, wear a CPAP for apnea (though not overweight at all) and have constant anxiety from this condition wherein I take 1mg of Xanax (total is 1mg) each day to maintain sanity.

CONCLUSION: Nothing yet, I am searching every day for some sort of solution but it has been ongoing. I wish I had better news, but just know there are people out here who feel similar (never the exact same) as you and plod thru it.

 
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Old 02-16-2009, 05:14 AM   #4
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Re: constant vertigo

There was an article in Good Housekeeping and s egment on the Today show some time around late summer last year about a vertigo cure. It is done by neurologists and consists of some sort of manual adjustment of the neck. i don't know if it applies to your condition or not but you might look into it. It adjusts some crsytals in the ear.

 
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Old 03-06-2009, 12:09 AM   #5
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dantexaiver HB User
Re: constant vertigo

Quote:
Originally Posted by TheGent View Post
I have suffered from constant dizziness for 3-4 years now. Much the same, I will be standing in line and it feels like the FLOOR IS FALLING OUT, then the worst part is lying down each night (couch, bed, chair, etc) I will get bouts of SUDDEN FALLING, FEEL LIKE I AM GOING TO FAINT, COMPLETE SHIFT IN BALANCE, etc.

TESTS: You want tests? MRI, CT, Tilt Table, ENg, VNG, VEMP, blood work, neuro exams, ENT exams, optho exams, regular PCP visits, etc, etc. The only thing they have come up with is a vestibular disorder (possibly in my right ear) - but no loss of hearing, no ringing in ears, no fullness in ears, little to no nystagmus when Dix-Halpike performed (if you do not know this test, it is the most basic of dizzy tests) and I am running out of sanity in the mean time.

RESULTS: The dizziness is ruining my life, has almost disabled me, constantly worried about my condition and have yet to solve the riddle. I can barely sleep, wear a CPAP for apnea (though not overweight at all) and have constant anxiety from this condition wherein I take 1mg of Xanax (total is 1mg) each day to maintain sanity.

CONCLUSION: Nothing yet, I am searching every day for some sort of solution but it has been ongoing. I wish I had better news, but just know there are people out here who feel similar (never the exact same) as you and plod thru it.
how do you cope with yours? me it feels like im being raged down to my left side i usually feel fullness pressure feeling in my right ear and minor ringing every so often. maybe the right ear controls the left side? right now i feel like im being pulled forward and im sitting down

maybe im going at this all wrong all these years maybe my anxiety depression an stuff like that an dizziness vertigo has to do with a inner ear problem?

 
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