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Old 01-31-2009, 01:31 AM   #1
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dantexaiver HB User
constant vertigo

OK I dotn know how to write this all down but here it goes in point form

when i was 16 heading towards 17 i started to develop really bad spells of vertigo or dizziness balance was slightly off sort of it felt like the very world was moving when infact it wasn't like i could be sitting down and it feels as if my body is sensing things are moving right out from under neath me .

when i was 17 i ha an attack so bad i was bed ridden for weeks didnt want to even get out of bed i was so scared. i had test after test done nothing coul be found the neurologist put me on valium i had an allergic reaction two er visits in a week during that time i was having so much trouble sleeping being on that drug i felt wired and out of control as if a mysterious force was making me flail all around with dizziness i couldn't sit still i was wired.

After that valium incident was over i went on not knowing what was wrong i had a few attacks between the ages of 17 and 19 where it felt so bad i couldn't sit still i had to walk in a very fast pace around the house to even feel somewhat alright

after i graduated in 2003 i had a panick attack full out attack like i describe above my body felt weak very weak i was again bed ridden for a week doctor put me on paxil i was on it until 2005 in which i took my self off it it helped reach a sense of calm but it messed me up . i managed to start coping with the vertigo trying to ignore it as i went about my life . i avoided beign bounced around as it woul really set me off.

since being on paxil i have tried wellbutrin and recently the past year been on and off ciprilex. ciprilex being the one closest to even working but still not sure what to make of it. but even today at 24 im still suffering from this moving feeling as if the grounds being taken right out from underneath me at times. large wide pen spaces set me off also bright white rooms an shiny floors. sometimes it feels like i am being dragged down to my right side and even laying down i can still feel as if things are moving sometimes. this problem really heats up when my anxiety gets going as well. for years now my doctors i have seen have treated it as anxeity attacks and depression .

I grew up with adhd and anxiety attacks here and there but nothing as bad as what i ahd when i was older. even to this day off and on i feel the anxiety and stressed out i just try to live with it an deal with it

I dont know if its adhd biting me in the as or what but since i left high school and out on my own i really had trouble concentrating and just living in life my minds as if its always could and in a constant whirl wind thoughts ontop of others. Also has been biting me in the as job wise

The doctor wants me to take a double team of Dexedrine for adult adhd and ciprilex for the anxiety and depression but the bad part is cant afford them im layed off an looking for work

Last edited by dantexaiver; 01-31-2009 at 01:51 AM.

 
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Old 01-31-2009, 05:59 AM   #2
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bethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB User
Re: constant vertigo

Welcome to the boards, dan!

It sounds like your doctors have ruled out the obvious possible causes....if this is the case, you may have to do some investigative work on your own. I would suggest learning about Babesiosis which is a co-infection of lyme disease and is notorious for causing vertigo and some of your other symptoms. Babesiosis is a blood borne parasite and does not respond to most antibiotics but has been know to respond to Mepron.

A number of your symptoms suggest lyme or lyme coinfections. Unfortunately most doctors, specialists included, are not well versed in the diagnosis and treatment of lyme and the infections that can coexist with lyme. Special testing needs to be done and even then it can be unreliable.

You can find more info on the lyme boards.

Bethsheba

 
Old 02-16-2009, 03:41 AM   #3
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Re: constant vertigo

I have suffered from constant dizziness for 3-4 years now. Much the same, I will be standing in line and it feels like the FLOOR IS FALLING OUT, then the worst part is lying down each night (couch, bed, chair, etc) I will get bouts of SUDDEN FALLING, FEEL LIKE I AM GOING TO FAINT, COMPLETE SHIFT IN BALANCE, etc.

TESTS: You want tests? MRI, CT, Tilt Table, ENg, VNG, VEMP, blood work, neuro exams, ENT exams, optho exams, regular PCP visits, etc, etc. The only thing they have come up with is a vestibular disorder (possibly in my right ear) - but no loss of hearing, no ringing in ears, no fullness in ears, little to no nystagmus when Dix-Halpike performed (if you do not know this test, it is the most basic of dizzy tests) and I am running out of sanity in the mean time.

RESULTS: The dizziness is ruining my life, has almost disabled me, constantly worried about my condition and have yet to solve the riddle. I can barely sleep, wear a CPAP for apnea (though not overweight at all) and have constant anxiety from this condition wherein I take 1mg of Xanax (total is 1mg) each day to maintain sanity.

CONCLUSION: Nothing yet, I am searching every day for some sort of solution but it has been ongoing. I wish I had better news, but just know there are people out here who feel similar (never the exact same) as you and plod thru it.

 
Old 02-16-2009, 04:14 AM   #4
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Titchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB User
Re: constant vertigo

There was an article in Good Housekeeping and s egment on the Today show some time around late summer last year about a vertigo cure. It is done by neurologists and consists of some sort of manual adjustment of the neck. i don't know if it applies to your condition or not but you might look into it. It adjusts some crsytals in the ear.

 
Old 03-05-2009, 11:09 PM   #5
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Re: constant vertigo

Quote:
Originally Posted by TheGent View Post
I have suffered from constant dizziness for 3-4 years now. Much the same, I will be standing in line and it feels like the FLOOR IS FALLING OUT, then the worst part is lying down each night (couch, bed, chair, etc) I will get bouts of SUDDEN FALLING, FEEL LIKE I AM GOING TO FAINT, COMPLETE SHIFT IN BALANCE, etc.

TESTS: You want tests? MRI, CT, Tilt Table, ENg, VNG, VEMP, blood work, neuro exams, ENT exams, optho exams, regular PCP visits, etc, etc. The only thing they have come up with is a vestibular disorder (possibly in my right ear) - but no loss of hearing, no ringing in ears, no fullness in ears, little to no nystagmus when Dix-Halpike performed (if you do not know this test, it is the most basic of dizzy tests) and I am running out of sanity in the mean time.

RESULTS: The dizziness is ruining my life, has almost disabled me, constantly worried about my condition and have yet to solve the riddle. I can barely sleep, wear a CPAP for apnea (though not overweight at all) and have constant anxiety from this condition wherein I take 1mg of Xanax (total is 1mg) each day to maintain sanity.

CONCLUSION: Nothing yet, I am searching every day for some sort of solution but it has been ongoing. I wish I had better news, but just know there are people out here who feel similar (never the exact same) as you and plod thru it.
how do you cope with yours? me it feels like im being raged down to my left side i usually feel fullness pressure feeling in my right ear and minor ringing every so often. maybe the right ear controls the left side? right now i feel like im being pulled forward and im sitting down

maybe im going at this all wrong all these years maybe my anxiety depression an stuff like that an dizziness vertigo has to do with a inner ear problem?

 
Old 03-16-2009, 11:29 AM   #6
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Re: constant vertigo

My doctors once prescribed Paxil to me. I took it for a few weeks. At the very least I was relaxed and dizzy.

 
Old 06-12-2009, 12:47 PM   #7
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solone HB User
Re: constant vertigo

know what u mean.i have had vertigo 4 years .still taking meclazine and it helps a little

 
Old 06-19-2009, 08:04 AM   #8
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Re: constant vertigo

know how u feel. unfortunately I have total hearing loss along with that constant feeling of pressure.the only thing has kept me sane is having a cochlea implant.i was told u should drink lots of water to help counteract the dizziness.it stinks when u get that feeling and r unsure when it will hit really hard.it has got me very limited on stuff i can do for four years now.still not used to it.

 
Old 06-20-2009, 06:19 AM   #9
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Re: constant vertigo

Wow, while I am not a doctor, but both my father and brother are: and honestly I know more about inner ear disorders than half the ENT's I visit, since I study it weekly............

You have

1) Fullness in the ear
2) Tinnitus - ringing
3) Dizzy spells
4) Hearing loss?

Sounds like Meniere's (M) Disease, since you have at least 3 of the 4 elements present. Go to an ENT for a VEMP study or ECOG. Also, get a hearing test, M's disease usually causes hearing loss after a long period of time. In my case, I have no fullness, tinnitus or hearing loss, ruling out at least 3 of the 4 elements of M.

It is not a dangerous or fatal condition, and there are some treatments to alleviate your symptoms. I would suggest Bonine (over the counter) and Meclizine or even sea bands. Try the *sea bands, they are $7, and that may alleviate your symptoms as well.

*Mal De Debarqment is also something to look into. A rare diagnosis, but if you have been on a boat in the past 6-12 months and experience symptoms since departing........it could be that as well. In your case, I am leaning towards M's disease.

 
Old 06-20-2009, 04:36 PM   #10
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Re: constant vertigo

I have been dealing with vertigo for about 11-12years now. I'm not on any Rx, it seems my body adjusts when I have an attack. It's hard to explain to people, they assume I'm talking about dizziness and crack jokes. I use to get upset over that but I'm use to it now.

My on set of vertigo began on a plane, (on my way to Salem MA. no less lol) I thought it to be jet lag or something, but 3-4 days later I still had it. I decided to try motion sickness pills, didn't work, so, as I was on vacation, I felt it to be OK to get good and drunk. lol! Well, the next day wasn't so good! lol! As soon as I returned home, I went to see my GP, he gave me anti-anxiety pills and I also was "calm and dizzy". I tried to cut sodium out of my diet, (easier said than done) and that seemed to work for a while, but it came back about a month later. I then went to see an ENT, he examined me, gave me a hearing test, and asked me some questions, he called me a liar! Next, I saw a neurologist, he also examined me, induced vertigo, and asked me some questions. I was very upset with the inducing and began to cry, he then call me a baby and walked out! (At the time, I had no insurance. I was beside myself and needed help badly and was treated poorly) Then I discovered someone who practiced alternative/natural health. She had a 3 month waiting list and I was on it! She told me I had scar tissue in my left ear. I was amazed at this because my attacks would pull me to the left. I told my Mom, and she said when I was 4, I had tubes put in my ears and I got a MASSIVE ear infection in my left ear! That's when I concluded that I had found the cause of my vertigo. (vertigo is a symptom of the illness)

The funny thing I discovered about my vertigo attacks is that they happen when there is presipitation (sp?) in the area. I can predict snow or rain better that someone with RA!!!

Anyway, I hope you find the solution you are looking for. Sometimes you can't just treat the symptoms, you need to treat the illness.

 
Old 06-20-2009, 07:02 PM   #11
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alexandria j HB User
Re: constant vertigo

you know, a lot of what has been said in this thread has been a lot like what i have been feeling! i'm starting to think that it could be an inner ear problem as well. it seems to effect me most when i'm tired? today it's been kind of bad and i've felt light headed all day i only fell a few times but it's so annoying! i don't feel like ppl take me seriously and i just wish it would stop

 
Old 06-29-2009, 05:10 PM   #12
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Re: constant vertigo

So, Dantexaiver, whatever happened? Did you find a Dr. that could help you? I'm curious if it turned out to be Meniere's, or something else.

If you can, update us.
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