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Old 03-26-2009, 10:30 AM   #1
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GeorgeKoch HB User
Migraine-Associated Vertigo (diagnosis I got)

I was just recently (Monday) diagnosed with migraine-associated vertigo, and I have a few questions about both the disorder itself and my particular experience with it.

Is this the right board for asking such questions?

George

Last edited by GeorgeKoch; 03-26-2009 at 10:30 AM.

 
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Old 03-26-2009, 10:36 AM   #2
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pamg6 HB User
Re: Migraine-Associated Vertigo (diagnosis I got)

Hi George,

Sorry about the dx, but hope you are doing well. Yes, this is a good forum as well as going back to the "health Issues" section and scroll to 'Inner Ear Issues" alot of us started there because we have what is known as 'Silent Migraine"....no headaches. Alot of us were missed dx with VN or Labs which is Inner Ear related....so that is why a bunch of us gravitate to that area. I hope this helps!!

Pam 3

Last edited by moderator2; 03-27-2009 at 08:15 AM. Reason: posted disallowed website(s) - please read the posting rules

 
Old 03-26-2009, 12:29 PM   #3
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GeorgeKoch HB User
Re: Migraine-Associated Vertigo (diagnosis I got)

OK, a bit of info first:

I began having nonspinning dizziness (not vertigo, that is) on Jan. 22. Finally got to see Dr. Tim Hain on Monday, Mar. 23. He agreed that the VN diagnoses were wrong because, among other things, I and my family have a history of migraines, and none of the balance tests or eye tests he did indicated loss of vestibular function, balance, etc.

In the course of these ~9 weeks, I've had 2 or 3 "good days" (about once every 3 weeks) in which the dizziness is almost unnoticeable; I'll have head pain or headache instead.

The rest of the time, though, the dizziness is pretty much constant -- from shortly after the time I wake up to the time I go to sleep. (I sleep OK.)

I also actually enjoy (at times) driving and computer usage, because it can sometimes help me not notice the dizziness (not feel it). Other times, those two activities aren't so easy. I was even dragged off to a movie last night and wasn't feeling dizzy while I was watching the big screen.

So anyway, my question is whether any of this seems unusual for Migraine-Associated Vertigo. Some of my most difficult (dizzying) activities are just walking, yardwork, etc. I've been told that left untreated, MAV dizziness can last months or years.

Do you suppose (since my work involves extensive computer usage daily) maybe I've just acclimated over the years to screens and monitors, such that they don't bother me?

I can't pin down why the occasional rare day comes up when I feel almost normal (except for a headache). I'm told MAV dizziness is continuous. Mine is "nearly so" -- not episodic.

I'm going to stop talking since I'm rambling a bit. My guess, no one has a 100% "typical" case of MAV; there's probably always something a little different or unusual for each person who experiences it.

Last edited by GeorgeKoch; 03-26-2009 at 12:30 PM.

 
Old 03-26-2009, 04:34 PM   #4
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pamg6 HB User
Re: Migraine-Associated Vertigo (diagnosis I got)

Hi,

I wish I knew more, but I am thinking that the walking and yardwork involves moving and I know that we migraneurs can be/are motion sensative. I think a good place to start is to get the book "Heal Your Headache" by Dr. David Buchholz (yes, 2 h's!!!). This book is a good place to start as it goes over everything that has to do with migraine/silent migraine. He lists ALL symptoms, triggers (very important to learn what your personal triggers are) meds, food triggers etc. This book was one of the lifesavers for me when this all began for me almost 2 years ago. My sx were pretty much 24/7 except when sleeping, so it was really hard to figure out my personal triggers. Once my migraine preventatives began to quick in, I was better able to see what mine were. I will list them for you, so as to hopefully help you. I notice huge symptoms when the BAROMETRIC PRESSURE changes ie...storms rolling in etc., FLOURESCENT LIGHTING (which is everywhere!!! so I have to wear a visor to head off the lights), lots of NOISE,PEOPLE, ACTIVITY,STRESS,COMPUTER SCREENS....just to name a few!!!!! So really my life changed totally when this hit me, but I just had to learn a new normal!!!! Hang in there and let us know how you are doing.
Pam 3

 
Old 03-26-2009, 06:27 PM   #5
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GeorgeKoch HB User
Re: Migraine-Associated Vertigo (diagnosis I got)

Thanks Pam.

Oddly, for the first time (well, with one exception), I began getting a stiff neck and a little bit of lower-back pain yesterday evening through today.

Probably stress!

The doctor did give verapamil to treat the MAV, and I've heard great things about it (the medicine, not the disorder. heh) and he's quite confident it'll work. I begin taking it tonight. (Unfortunately, it's supposed to take 2-4 weeks to do its thing.)

I'll look into that book, for sure. Thanks again.

 
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