It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Dizziness / Vertigo Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-26-2009, 02:00 PM   #1
Junior Member
(female)
 
Join Date: Jun 2009
Location: california
Posts: 34
leeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB User
dizziness/vertigo/headaches/migraines

I have had chronic headaches since I was in my teens. In my mid twenties I started getting migraines, along with more frequent bad headaches and dizziness, especially around my period in my late twenties. I never really did much about it; I ignored it and went on with life in pain every day eating Excedrin and vicodin. It was a way of life that I thought I had to live with. When I turned 30 I had a severe vertigo attack (thought I had a stroke or something). I never felt anything like this in my entire life. Now I've been suffering from chronic daily vertigo for the last year, ever since this attack. I never had vertigo or motion sickness until now. I had tons of tests done; all which were normal accept one of my ear tests showed I was having a minimal amount of vestibular disturbance. My MRI & MRA of the brain and neck were normal and I had no hearing loss or ringing in the ear (Meneire's Disease). Also Meneire's Disease vertigo attacks don't last any longer than 24 hours for the most part. I have read and done my research about every ear disorder/illness/disease problem possible. Neck disorders, brain disorders, asked doctors tons of questions and talked with other people about their illnesses. The number one rule is, if you don't have hearing loss you most likely don't have an ear disease, other than possible trauma, virus or bacterial infection. All possible ear diseases/tumors and or trauma of the ear was ruled out. So what was causing this vestibular disturbance? I even went to the HOUSE EAR CLINIC in L.A. and they suggested I see a neurologist (but that was months later during my investigation for a diagnosis). I saw many, many doctors, including neurologists, none of which could help me. They kept thinking it was BPPV, but BPPV does not last all day long 24/7, day after day. It comes and goes in bouts of vertigo spells usually with head movement as the calcium crystals will dislodge and move back and forth in the inner ear. You can have BPPV your entire life but you don't have the symptoms all day long. Also there is surgery that can help correct it, if it disrupts your life enough.

Doctors kept giving me quick fix drugs (Ativan :lorazepam, diazepam: AKA valium, antivert etc) for my severe vertigo attacks and bad headaches, which only heavily sedated me and it never got rid of the symptoms (I found out later these drugs are bad for migraine patients: Dr. said its like giving me alcohol and meclizine only works for so long). Finally, I had a second ENT doctor suggest it might have something to do with my history of headaches and migraines. I saw a UCLA neurologist. All the symptoms I had told him (I had other symptoms as well, some strange) he explained, were from migraines. He had seen hundreds of people like me and groups of families like me. Migraines are a hereditary disease he said (which a few of my family members also have). He said especially since my MRI/MRA was normal and I had no hearing loss it was confirmed that migraine was the cause. He said vertigo is the second most common symptom of migraines and doctors still don't know exactly why it can affect the inner ear.

He was the first doctor to tell me with confidence, “You will get better” instead of saying “You need to be optimistic" like all the other doctors. He also said migraines can cause stroke like attacks/symptoms but are reversible; not like a stroke. I finally got a diagnosis after almost a year of hell! I never gave up. I read online information daily. I kept seeing doctors until it finally lead me to the right place. Migraines can change throughout your life and symptoms will come and go but you will always have migraines because it is a hereditary disease, but you don't have to live with the symptoms. I wish I would have learned more and taken better care of myself when I was younger. I could have prevented this attack and all this constant vertigo that had greatly taken away my independence and created so much anxiety and depression. I cried all the time, I wanted to die; I did not want to live in a world where my mind was always spinning out of control. The doctor also explained that anxiety/depression is the worse for migraines. It will trigger them and make it harder to treat it. I had to get this problem under control and keep telling myself I will get better, even on the bad days.

Before all this vertigo, I was in a toxic relationship (emotionally stressful) for 2 1/2 years. Six months after dating this person I started getting sick all the time. My headaches were worse, migraines more consistent and I would get dizzy many times. I didn't understand what was happening to me. On top of that, my boyfriend at the time was an insomniac and he would never let me sleep. I had sleep disturbance ever since I met him. My diet also changed too! I'm not blaming everything on him; it was my fault that I stayed with a person like this for too long. I tried leaving him 3 times! He kept promising me he would change and was seeing his cousin who was a psychiatrist. The point I'm trying to say here is, don't lose your happiness over anything. Not even love, because if that person, or job, or place or whatever it is, is not making you happy than get out, get out right away. It’s not worth your life, your health, your happiness. STRESS KILLS!

Anyone with headaches/migraines NEEDS to read this book called HEAL YOUR HEADACHE: the 1 2 3 Program by David Buchholz. He is a neurologist that has worked with migraine patients for over 2 decades. I actually learned about this book from a woman on a message board, explaining her strange symptoms and vertigo. She had drop attacks, burning sensation on her scalp, headaches, severe vertigo and many other problems. It seemed like she was in more worse of a condition than me. She got on migraine medication, followed this book and is now living a normal life again. Her doctor recommended this book to her. I bought it cheap online and boy did this book describe me and my symptoms perfectly. This book explains other patients and their strange symptoms: numbness (even on one entire side of the body), sinus problems, scalp problems, visual problems, and many other things that you would not think would be related to migraine, and you don't have to have a headache with these other symptoms. Also, the UCLA doctor that I saw says migraines are hereditary, that's true, and the doctor in this book also agrees but also believes everyone has the migraine mechanism, EVERYONE! It’s just a matter of time if you trigger it or not! The reason why your doctor has not been able to help you is because most doctors don't know how to help you. Most doctors don't know much about complicated migraines and most doctors don't want to deal with you. Migraines are complicated and can have many, many, types of symptoms that people and doctors never put 2 and 2 together. We as migraine sufferers have to live more simple lives, you must keep your stress down, you must sleep,( the 2 most important triggers of migraine) know what foods trigger your headaches (caffeine #1, MSG, alcohol, chocolate, old cheeses), you must control anxiety and depression as best possible. These are all of which really trigger migraines and make it harder for your body to heal. Stop taking daily quick fix drugs for your migraines (Excedrin, vicodin, imitrex etc). It causes reoccurring headaches/migraines. There are other triggers that this book talks about as well. Please read this book, it will help you if you follow what this book has to say. It has helped me! I’ve been on treatment for a month now. I follow the diet, I do mild yoga, massage sometimes, and I have been on migraine medication for about a month now. It is working! I’m not fully recovered just yet. The medication can take 2-3 months to see much improved results and if it doesn’t work I will try the next migraine medication that the doctor recommended (which by the way there is no such thing as a daily migraine medication other than methysergide, which is rarely used because of the concern for scarring internal organs. Most other medications used for migraines were formulated to help other illnesses and found out through trial and error that it reduced symptoms of migraine). Just to let you know I don’t like being on medication, I’ve always preferred and done the more natural approach in my later years (vitamin B2, fish oil, feverfew, ginger, magnesium, peppermint oil, many other herbs and supplements, ayurvedic treatment, chiropractic, massage: which only worked to a small degree for me) but this is what I have to do for now because I am chronic. I don’t like the side effects (usually dizziness and sedation) but they start to subside after a few weeks. You do not have to get on medication.

Just follow this books suggestion for a couple of months and if you have no relief the next step is migraine medication. Also you do not have to be on medication all your life, because migraines usually come and go throughout your life time. For some people who have chronic headaches their entire life is mostly because of all the over the counter medications they are always eating and the wrong foods, no sleep and stress; like I was! The most important thing is to keep your migraine triggers down as much as humanly possible. If you really want to change your life for the better, your going to have to put in the TIME! That's all there is to it, no ifs, buts, or wants. JUST DO IT!

I have noticed a difference. I don’t have weird numbing spells in my brain anymore or on the side of my face or pressure build up and my chronic neck pain and tension is gone. The pressure and pain in my ear has reduced tremendously. My vertigo and headaches have decreased and I don’t get as much motion sickness in the car. I have a long journey ahead of me and as much as I would like to be cured over night, I have to remember I was sick for a very long time and it will take time to fully restore my health again. I will stay positive and keep you posted with my recovery over the next few months.

I suggest you do some research and find a well renowned neurologist that specializes in migraines and balance disorders. Read this book, and if the doctor does not understand what you are saying, telling, asking them, then get a new doctor. Keep trying till you find the right doctor. Even if you have to go outside your insurance and pay a bit more money. It is worth it to have your health back, your life back, and your happiness. All I want to do is help other people to not have to go through what I went through, that is why I’m telling you my story. Your migraines can change for the worse. Please take care of yourself and don't ignore your pain.

Last edited by Administrator; 09-24-2011 at 05:49 AM.

 
The following 4 users give hugs of support to: leeshy215
blueskygirl (02-07-2011), carolinadewitte (06-22-2011), Pat Texas (08-31-2011), tammychastain39 (05-20-2011)
The Following 16 Users Say Thank You to leeshy215 For This Useful Post:
bartonse (03-17-2011), bfunshine (01-14-2011), bindar (09-23-2011), carolinadewitte (06-22-2011), HeyTrud (08-07-2011), Leroyeastbay (02-04-2011), Natasha00 (12-29-2010), Nirvana74 (06-05-2012), NovMoon (11-15-2011), Plane Jane (04-29-2011), renteria (05-22-2012), reumi (01-10-2011), robobble (03-16-2011), snew2010 (12-14-2010), talkaboutit (11-19-2011), Yfd (09-19-2012)
Sponsors Lightbulb
   
Old 07-04-2009, 11:59 AM   #2
Senior Member
(female)
 
Join Date: Mar 2008
Location: Colorado, USA
Posts: 184
Arggg HB UserArggg HB UserArggg HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Hi Leeshy,

I used to get chocolate migraines, headaches, sinus pressure, and ear infections until I gave up dairy (esp. milk and ice cream) and fruit juice. And chocolate, of course. My symptoms were never as severe as yours.

It's important to pursue a natural alternative to constant medication. I used to take occasional ibuprofen (I'm talking 10 pills a month max!) and it shut my kidneys down. I have to take Tylenol now, which doesn't work very well, and it's linked to liver failure.

Anyway, good luck! I hope you feel a lot better.

P.S. I had an insomniac boyfriend like yours a long time ago. He would turn on loud music, blare the TV, vacuum right next to my ear, etc. Anything to wake me up. The joke was on him - I can sleep through anything. I found out only because he told me he'd done these things. He wasn't even ashamed of doing them.

Last edited by Arggg; 07-04-2009 at 01:15 PM. Reason: insomniac boyfriend

 
Old 07-04-2009, 09:00 PM   #3
Senior Veteran
(male)
 
Join Date: Jan 2009
Posts: 509
friendsville HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

I admire anyone who can live with vertigo,which I have never had with my dizziness.Thank you for your thorough assessment of your maladies.I take Meclizine for my dizziness,and it helps a lot.I still have balancing problems,and some days, my balance is good.I have read here of some success by visiting a
Neurotoligist(SP?),for these ear disorders.I may have had one Migraine,but my wife
had them and I couldn't enter "her" bedroom for 3 days a month. Bill

 
Old 07-05-2009, 04:28 AM   #4
Senior Veteran
(male)
 
Join Date: Sep 2003
Location: Sydney, Australia
Posts: 2,297
studyin HB Userstudyin HB Userstudyin HB Userstudyin HB Userstudyin HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Good write-up Leeshy. Everything you said is right on the money. The only thing I would throw in the bin is stuff like Ayurvedic medicine and chiropractic. The latter can relieve a sore neck or back *temporarily* but no better than physio and it's probably a lot cheaper (chiros like you to keep coming for the rest of your life). Feverfew, B2 and magnesium are worth a shot to reduce background noise but likely not good enough to hit the main event.

Best ... Scott

 
Old 07-15-2009, 07:33 PM   #5
Newbie
(male)
 
Join Date: Jul 2009
Posts: 5
regal94 HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

leeshy, what kind of test did they do to determine you have a vestibular disorder?

 
Old 07-16-2009, 05:20 AM   #6
Junior Member
(female)
 
Join Date: Jun 2009
Location: North Ga
Posts: 10
Anniemom HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Leeshy215, I got that bk--Heal Your Headache, The 1-2-3-Program and I found I had gone to one of the Dr.'s who highly recommended it in Atlanta.....and I had thought he was just a balance specialist and I also thought he had made some diagnosis he wasn't qualified to make until I read how qualified he was in this book--haven't finished this bk but I see why you highly recommend......that Dr. told me 3 yrs ago all my vertigo was due to migraines and I didn't believe him bcu I don't have pain but your taking the time to share all you did has helped me tremendously, brought back a lot of things that Dr. told me I dismissed....and I think I can pretty much accept my diagnosis now and be thankful I don't have the pain and my vertigo is much better....PTL.

 
Old 07-16-2009, 01:42 PM   #7
Junior Member
(female)
 
Join Date: Jun 2009
Location: california
Posts: 34
leeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Thanks Anniemom, I’m glad I could help you

Regal94,
As for the ear tests, I had a hearing test that also determined if I had any fluid build up in my inner ear, which I did not and my hearing is still great. I had an MRI of the brain which also shows the inner ear structure to a small degree. It too also looks for any swelling, fluids/build up, and tumors, which I had none. I had a balance test done along with this other test but I can't remember the name. The balance test was basically stepping on a plank with a colored picture/wall in front of me. The doctor moves the plank below me many different ways to see how well my balance was. I passed that test. The 2nd part of this test was tracking my vestibular function I guess. The doctor put sensory stickers on my face and a hat/helmet on my head. I had to look at a dot on the wall and shake my head left to right without blinking as much as possible. Then I had to shake my head up and down, still staring at the dot on the wall. This was the test they said I was having a minimal amount of vestibular disturbance. I guess my eyes were not matching up perfectly with the movement of my head/motion/inner ears. The last test was a VNG test. I think that's what it was called? I had to wear eye goggles and follow laser dots on the wall/ceiling. That part of the test I checked out fine. The second part is when the doctor put hot and cold air in each ear. My right ear was always the ear that bothered me. The doctor said everyone is different when it brings on vertigo spells. I was already dizzy at the time but when she put the cold air in my right ear I got severe vertigo (a good 60 seconds), then she did the left and I had mild vertigo. Basically, the test came back saying that my left ear was weaker than my right? Hope this helps a bit!

Oh, and technically I don't have a vestibular disorder; I was diagnosed with migraine associated vertigo. The migraines are affecting my inner ear somehow, which doctors are still doing research to find out exactly why migraines can affect the inner ear? That's what's causing my vestibular disturbance, so I guess it is or isn't a vestibular disorder?

Last edited by leeshy215; 07-16-2009 at 08:38 PM.

 
Old 08-06-2009, 02:39 PM   #8
Junior Member
(female)
 
Join Date: Jun 2009
Location: california
Posts: 34
leeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Hello Everyone!
I just want to give you an update on my prognosis with my migraines and vertigo, like I promised. Again, if you have not read my original post, I was suffering from vertigo for the last year and had it constantly from November 2008, to June 2009. I finally got a diagnosis from a specialized neurologist and was put on the right medication. I started taking medication for my migraine associated vertigo (MAV). Before that, I could barely get out of bed for months; now I can walk around all the time. I have been taking my medication for 9 weeks now. I started off with 10mg the first week, and was having a hard time increasing my medication 10mg every week. I could not do it! Every time I tried taking 20mg I would get really sedated and pretty dizzy. I must say though, after taking this medication for only two weeks, my spinning sensation (vertigo) dizziness went away. I still have dizziness but it’s not the spinning vertigo dizziness, which I’d much rather have normal dizzy than spinning dizzy. After a month, I was finally able to get up to 20mg, and now it’s so much easier to increase the dosage. The neurologist wanted me to take between 40-60mg, which at the time I thought there was no way I can take that amount. Well, this week I started on 50mg. When I got to 20mg, I took it for a week and instead of “BAM” taking a third pill (30mg), I just slowly added in each day part of the third pill and by the end of the week I could take the entire pill, which was now 30mg. So basically, I gave myself two week increments to increase my dosage by 10mg and it made things so much easier. I still feel a bit sedated here and there, especially in the morning and I have excessive dry mouth, and every time I would take the next higher dosage I would have chest pains and some palpations for a few days. I will get up to 60mg in another two weeks.

As for my symptoms, yes, I still get headaches everyday but they have been decreasing in pain over the weeks. I had a terrible headache this last month for four days during my period but they weren’t as intense as they used to be during this time (usually migraine intense). Also, I got pretty dizzy on/off and I lost my balance two times but I didn’t make myself worry. I knew it was because I had a bad headache and it was affecting me in that way and I would feel better after it passed; and it did. I have come a long way from where I use to be to where I am now. I am astonished at how a little ol’ pill can change my brain function. Also, keeping my depression and anxiety down helps, and eating to a migraine diet. I pretty much only eat fresh fruits and veggies, fresh meat and fish, juice, and for sweet treats I eat snicker doodle and short bread cookies, vanilla ice cream, honey on toast and oats/honey granola bars. I have always had a really bad sweet tooth, especially for chocolate that I can no longer have. I am 5’5” and weigh 120lbs now. I have lost 8lbs already in the last two months.

I still have slight pain in my right ear and still get dizzy when I’m in a car, so I’m not driving just yet. Every time I go into a store I get dizzy, especially grocery shopping, but I’m trying to force my body back to its normal function I guess you could say. I don’t know if it is activity induced or if the dizziness is being caused with activity while looking at several objects in the store? Also, it doesn’t help after getting out of a car. When I had my tests done, one of them came back saying that my vestibular function was slightly off. Meaning my eyes and my inner ears weren’t matching up perfectly together. So my inner ears are telling my brain one thing, as I am in motion and my eyes are telling my brain another thing, as I’m looking around. So if they aren’t matching up properly it confuses the brain (causing dizziness). I still get frustrated sometimes, some days I still cry, but try to stay positive for the most part, and my mother helps keep me positive and tells me all the time I will get better. So I’ve been on this medication for about two months now and I still have one more month to go. The doctor said to give it three months, but I have read other people’s postings on migraine associated vertigo and it took them 3 ½ to 4 months to make a full recovery. They were just like me; could barely walk and had all kinds of dizzy problems. So that’s what I am shooting for. As of now, I can do so much more activity, like walk my dogs, bike ride around the block, work on my music (guitar), clean the house, paint, type on the computer, go to stores and movies with family and friends, all of which I could not do, or barely do at all before. I still have to take it pretty easy though, as I get fatigued easily and still get dizzy. The worse for me is that time of the month, riding in cars, and going grocery shopping. I hope all of you that have read my original post got some form of information that is helping you. Cheers to you all and I will be in touch with my prognosis in the next month or two!

Also, here are a few specialized doctors (top neurologists etc.) in the nation that have spent their entire career researching and working with patients with balance disorders and migraine, that help us to better understand our illness. Some of these doctors are Dr. David Buchholz (John Hopkins University), Dr. Robert Baloh (Ronald Reagan UCLA Medical Center), Dr. Steven Rauch (Harvard Medical School), and Dr. Timothy C. Hain (Northwestern University Medical School). You should read information about their research, contact one of these doctors, or be seen by one if needed.

Last edited by leeshy215; 08-06-2009 at 02:46 PM.

 
The Following User Says Thank You to leeshy215 For This Useful Post:
Nirvana74 (06-05-2012)
Old 08-16-2009, 10:11 PM   #9
Veteran
(female)
 
Join Date: Mar 2002
Location: ,Ontario, Canada
Posts: 497
sonic HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

hi leeshy...can you tell me the name of the meds you are on? are there any side effects like increased appitite...low libido...depresion...etc.
sounds like i may have MAV....i always thought i had menieres.
so many drs & still no answers.

 
Old 08-17-2009, 12:25 AM   #10
Junior Member
(female)
 
Join Date: Jun 2009
Location: california
Posts: 34
leeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB Userleeshy215 HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Hello Sonic,

Well for the first month I had a hard time with the medication nortriptyline starting at only 10mg. I thought I could never get between 40-60mg and this week I'm working my way up to 60mg. I actually look forward to the next dosage because every time I increase, my symptoms decrease. It is actually an anti-depressant so it also helps with depression and anxiety. But again, the first month was the hardest with sedation and dizziness. The second month got so much easier to increase the mg. I've read about many people saying how sedated or dizzy they got on migraine medication and gave up after a few weeks. Please don't give up it gets so much easier after a couple months. Now I don't feel like I have any side effects accept just dry mouth (but everyone is different). Every time I did increase to the next 10mg I would feel pretty tired for a few days but it would get better. Also doctors prescribe the medication to increase the dosage every week. I increased the dosage every two weeks like I describe below and I think that made it much easier as well. I have not felt any other changes in my body as for side effects. This medication is one that has the least severe side effects or noticeable I guess you can say side effects. I also do light yoga at home until I can get back to my yoga class I use to take and I walk my dog every night for 15-20minutes. I did massage every week for about 1 1/2 months and now I go in every 2 weeks. It helps reduce stress (great for migraine sufferers) and increases blood circulation. I eat to a migraine diet (have lost 10lbs) and many people have told me about the benefits of acupuncture for vertigo, dizziness and migraines. I will do that when I find the right doctor. Also, I have barely driven for several months other than on the better days could drive to the closest store down the street. I still get a bit dizzy in the car but today I actually drove around my city and I'm purchasing a new car this week. I wanted to wait to make sure I would get better and could drive again. I’m almost there! Hope this information helps you. Let me know if you have any more questions. Good luck to you, and I hope you start feeling better soon!

Oh, I just read your other post about your medication. Don't take anything with caffeine; it is so bad for people with migraines. That's probably why you got migraines from this medication. You should read my original post #1 if you have not already yet. It should help give you more information about you migraines.

Last edited by leeshy215; 08-17-2009 at 12:37 AM.

 
Old 08-20-2009, 11:09 PM   #11
Veteran
(female)
 
Join Date: Mar 2002
Location: ,Ontario, Canada
Posts: 497
sonic HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

thanks for the info....im a bit leary of going back on anti-depresants..they make me feel emotionless (kwim)? i was on celexa a few yrs ago..& the reason i stopped was b/c it killed my sex drive.
but...i am open to anything that will give me relief. i have had no migraines for the past few days..but alot of dizzy spells. when im like this i dont even want to leave the house...
;-(

 
Old 08-22-2009, 07:15 PM   #12
Member
(female)
 
Join Date: Jan 2007
Location: Mobile, AL, USA
Posts: 94
velvetrance HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Quote:
Originally Posted by sonic View Post
thanks for the info....im a bit leary of going back on anti-depresants..they make me feel emotionless (kwim)? i was on celexa a few yrs ago..& the reason i stopped was b/c it killed my sex drive.
but...i am open to anything that will give me relief. i have had no migraines for the past few days..but alot of dizzy spells. when im like this i dont even want to leave the house...
;-(
I understand your situation very well. I started getting migraines at 15! and out of no where, I would get mine about once a month if not more. At that point I could handle (triptans) migraine medication but after a while I developed a reaction to it and some anti-nausea medication, It was then I saw a neurologist and not only did I have TMJ i had severe, screaming my head off I also later found out I had muscle spasms all over my head and if you are $$$ enough to get this stuff, Topomax works WONDERS. It's prevention which I think is better than treatment. Also there are things in your diet you can avoid like coffee, chocolate, cheese, and red wine. Drinking tons of water helps but I think they are realizing Migraine Prevention could be a very easy lifestyle change.

 
Old 08-23-2009, 06:18 AM   #13
Junior Member
(female)
 
Join Date: Jun 2009
Location: North Ga
Posts: 10
Anniemom HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

I want to know how you found out that it was spasms you were having all over your head.....that is what I feel like I have when I have the upside down vision illusion....and did your tongue/throat burn with Topamax, palms of hands peel/effect your memory? I am coming off of it right now but it was great in some ways...loved losing weight......real interested in spasms in your head, never heard of anyone else saying that.....anniemom

 
Old 08-23-2009, 01:10 PM   #14
Veteran
(female)
 
Join Date: Mar 2002
Location: ,Ontario, Canada
Posts: 497
sonic HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Quote:
Originally Posted by velvetrance View Post
I understand your situation very well. I started getting migraines at 15! and out of no where, I would get mine about once a month if not more. At that point I could handle (triptans) migraine medication but after a while I developed a reaction to it and some anti-nausea medication, It was then I saw a neurologist and not only did I have TMJ i had severe, screaming my head off I also later found out I had muscle spasms all over my head and if you are $$$ enough to get this stuff, Topomax works WONDERS. It's prevention which I think is better than treatment. Also there are things in your diet you can avoid like coffee, chocolate, cheese, and red wine. Drinking tons of water helps but I think they are realizing Migraine Prevention could be a very easy lifestyle change.
wow...thats interesting...i was just reading about the side effects...some people have lost weight on it..but some are very moody & tired. i guess you have to do what is best for you. its all about qaulity of life, wish it wasnt so hard to decide.

 
Old 08-24-2009, 06:04 AM   #15
Junior Member
(female)
 
Join Date: Jun 2009
Location: North Ga
Posts: 10
Anniemom HB User
Re: People with dizziness/vertigo/headaches/migraines MUST READ THIS

Velvettrance: There is a very informative article abt Topamax on Mayo Clinic's site, highly recommended ...am glad it is generic now and not as costly...so glad it works for you......I felt best in yrs except for side effects, effecting my memory was bad--sure didn't need that....however, am very interested in how your neurologist determined you had spasms all over your head? How did he/she come to the conclusion that it was spasms? anniemom

Last edited by Administrator; 09-24-2011 at 05:52 AM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Wow! People Like Me/Life With Recurrent Dizziness dizzydame7 Inner Ear Disorders 1 06-26-2011 10:46 PM
1 year and counting: vertigo, headaches, dizziness toddg25 Dizziness / Vertigo 13 05-09-2010 03:08 AM
Dizziness and hormones? centaur1201 Inner Ear Disorders 21 08-28-2008 07:09 PM
Migraines - My Drugs review (glad i've found a community of people that understand) chaseldine Headaches & Migraines 1 01-11-2008 11:11 AM
the link between hormones and dizziness amww Inner Ear Disorders 16 10-09-2007 05:32 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:31 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!