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Old 11-07-2009, 07:01 PM   #1
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Zoe26 HB User
Any VERTIGO sufferers out there? Please help. Strikes again...

Hey there, I would really appreciate any help/info from anyone out there who is knowledgeable about Vertigo or who has suffered from it before.

I don't know what kind of Vertigo I have exactly since it's not exactly an on-going thing (like I'm dizzy every day or if I turn my head too fast or something). I've been told both Viral Labyrinthitis and BPPV by doctors. But I'm pretty young and have had 3 major acute Vertigo episodes within 5 years. I can't find a correlation between any of them to figure out what causes the attacks. I was never under any stress during any of them. The first time, I was in the movies. The 2nd time, I was home on the computer. This final time, a couple days ago, I was taking a nap. Each time I suddenly got extremely dizzy like the world's spinning - like if I moved my head at all I felt a long swooosh like everything was a blur. Inability to focus my eyes, lost complete balance, and had run to the toilet expecting to throw up - which sometimes happens later once I'm in the ER and they've driven me around in the ambulance like crazy and moved me from bed to bed instigating the motion sickness more.

I just don't know what to do anymore. This is scary, dehabilitating, and extremely unpleasant to live with. It's depressing. I have to stay home, attempt to rest now after my acute episode has passed, but still feel dizzy and nauseous, and they pretty much told me there's nothing I can do about it.

I was told they don't really know what causes Vertigo and it's a sticky problem. There's nothing to really fix it except for vestibular therapy which I don't feel will help it from coming back in my case. Not to mention it sounds unpleasant and not like something I want to do for the rest of my life.

I was let go out of the hospital after staying overnight, getting some fluids, increasing my Potassium to where it should be, and they occasionally gave me some Zofran and Meclizine, but not much considering how sick I felt. I mean I was practically unconscious, but they didn't really seem to care.

I wasn't even given a prescription when let go. So I'm sitting here with nothing to help me feel better, still feeling like crap, and worrying about how long this will take to go away.

I'm on Clonazepam .5 mg 3x daily already, so that's probably why they didn't give me anything else to take. But it's not helping since I've already been on that dosage for months for other reasons. Does anyone recommend a drug I should ask my doctor about to try to get a prescription for in addition to this? Or will it be overkill with the Clonazepam?

I have some leftover Bonine chewables here, but I'm scared to take them.

I just don't know what to do. Any advice? Should I just sit at home and sleep? Eat normally? What should I do? This is torture.

FYI, this last Vertigo attack came after I had taken 2 Benadryls for allergy reasons and was taking a nap. Makes no sense to me. Do you think this caused it?

I'd like to add that I've done MRI's and CTs and all that, and they all come out negative.

Would also like to add that I recently finished a Medrol dose pack (like prednisone) and Augmentin for a possible sinus infection in reaction to a post-nasal drip I've been having for the past couple months. If anything, I would think this would be the best time NOT to have a Vertigo attack after taking these medications.

Last edited by Zoe26; 11-08-2009 at 01:27 PM.

 
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Old 11-14-2009, 08:45 PM   #2
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calimomma HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

Hi there,

Are you having any other sypmtoms? A few years ago, I had a couple of vertigo attacks like the ones you describe. I was also having other symptoms like pain and ringing in the ears. The vertigo also happened at random times, like sitting on the couch watching t.v. I was totally relaxed and then WHAM! The vertigo would strike. I did a bunch of testing, which led to the diagnosis of a perilymph fistula. A very rare condition, usually caused by some sort of trauma, but can sometimes happen sporadically. I was pregnant at the time that I first started the symptoms. Do a google search of "perilymph fistula" and see if your symptoms sound similar. I had surgery to repair the fistula and all was well afterwards. However, now a few years later, I have hearing loss and tinnitus. My doctor believes I have another condition called otosclerosis. It is strange to me to have two unrelated conditions in the same ear so close together...I wish I knew what was going on and how to fix it all.

Another condition came to mind while reading your post-Meniere's Disease. Has your doctor mentioned it to you? My grandmother suffered from it for a years and the main symptom was vertigo attacks.

Hang in there. I hope you get some answers soon!

 
Old 11-15-2009, 08:11 AM   #3
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ptater HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

Vertigo is horrible. I've had 4 bouts of it over the past 15 years. Each time I was incredibly nauseous. I went to an ENT specialist who diagnosed me has having benign positional vertigo. After reading articles on line, I agree with this diagnosis. Iím most susceptible laying down on my right side. Needless to say I avoid that position.

One thing to is the Epley Manueveur. It really worked for me. I was amazed. I'm including a link which describes this maneuver along with information on benign positional vertigo.

http://www.dizziness-and-balance.com/disorders/bppv/bppv.html

Good luck!

 
Old 11-16-2009, 08:13 AM   #4
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Monkey100 HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

Quote:
Originally Posted by Zoe26 View Post
Hey there, I would really appreciate any help/info from anyone out there who is knowledgeable about Vertigo or who has suffered from it before.

I don't know what kind of Vertigo I have exactly since it's not exactly an on-going thing (like I'm dizzy every day or if I turn my head too fast or something). I've been told both Viral Labyrinthitis and BPPV by doctors. But I'm pretty young and have had 3 major acute Vertigo episodes within 5 years. I can't find a correlation between any of them to figure out what causes the attacks. I was never under any stress during any of them. The first time, I was in the movies. The 2nd time, I was home on the computer. This final time, a couple days ago, I was taking a nap. Each time I suddenly got extremely dizzy like the world's spinning - like if I moved my head at all I felt a long swooosh like everything was a blur. Inability to focus my eyes, lost complete balance, and had run to the toilet expecting to throw up - which sometimes happens later once I'm in the ER and they've driven me around in the ambulance like crazy and moved me from bed to bed instigating the motion sickness more.

I just don't know what to do anymore. This is scary, dehabilitating, and extremely unpleasant to live with. It's depressing. I have to stay home, attempt to rest now after my acute episode has passed, but still feel dizzy and nauseous, and they pretty much told me there's nothing I can do about it.

I was told they don't really know what causes Vertigo and it's a sticky problem. There's nothing to really fix it except for vestibular therapy which I don't feel will help it from coming back in my case. Not to mention it sounds unpleasant and not like something I want to do for the rest of my life.

I was let go out of the hospital after staying overnight, getting some fluids, increasing my Potassium to where it should be, and they occasionally gave me some Zofran and Meclizine, but not much considering how sick I felt. I mean I was practically unconscious, but they didn't really seem to care.

I wasn't even given a prescription when let go. So I'm sitting here with nothing to help me feel better, still feeling like crap, and worrying about how long this will take to go away.

I'm on Clonazepam .5 mg 3x daily already, so that's probably why they didn't give me anything else to take. But it's not helping since I've already been on that dosage for months for other reasons. Does anyone recommend a drug I should ask my doctor about to try to get a prescription for in addition to this? Or will it be overkill with the Clonazepam?

I have some leftover Bonine chewables here, but I'm scared to take them.

I just don't know what to do. Any advice? Should I just sit at home and sleep? Eat normally? What should I do? This is torture.

FYI, this last Vertigo attack came after I had taken 2 Benadryls for allergy reasons and was taking a nap. Makes no sense to me. Do you think this caused it?

I'd like to add that I've done MRI's and CTs and all that, and they all come out negative.

Would also like to add that I recently finished a Medrol dose pack (like prednisone) and Augmentin for a possible sinus infection in reaction to a post-nasal drip I've been having for the past couple months. If anything, I would think this would be the best time NOT to have a Vertigo attack after taking these medications.
Can I suggest you look up the Inner Ear forum on this site - it will give you lots of information about your condition. You may have to do some exercises which are all explained in the link.

 
Old 11-16-2009, 10:47 PM   #5
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Zoe26 HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

I don't have any other symptoms or "problems" besides the very sudden, acute, serious Vertigo attack. It's not normal dizziness. It doesn't happen when I sleep in certain positions or move my head too fast, on a normal basis. It occurs all of a sudden while doing something random like watching a movie, sitting on the computer or waking up from a nap. Those have been my 3 main experiences. Another time I felt just extremely nauseous and like I was ABOUT to get a Vertigo attack while driving in a car with a bunch of friends, but it never turned into Vertigo, however the nausea stuck with me for months and months. Very odd and no doctor was able to tell me why.

I've been trying to find a connection like allergies or something that might cause them but I can't figure anything out for sure.

I don't think it's Meniere's or BBPV because no doctor has told me so after several tests. My hearing is apparently perfect, I don't have any ringing, I pass all tests normal. Most of them said it sounds like viral labyrinthitis or just that I have sensitive inner ears and have to live with this problem whenever it comes, deal with it, and let it pass.

Each time I've ended up in the hospital but I can't go on doing that if I keep getting attacks. I simply don't know how I would deal with it at home though. I literally go almost unconscious, pass out on the floor, can't move my head or I'll puke, can't think, and basically just want to die. It's horrible.

I saw my general doctor today again and as usual he gave me general descriptions of Vertigo and basically said "deal with it, there's nothing you can do."



But thanks for the replies, and I welcome more. I did end up discovering the Inner Ear thread later, thanks again.

Oh, one more thing, what other tests do you recommend I do? I've done MRI's of the brain, CTs, all those ear and hearing tests, and a VNG once.

Quote:
Originally Posted by calimomma View Post
Hi there,

Are you having any other sypmtoms? A few years ago, I had a couple of vertigo attacks like the ones you describe. I was also having other symptoms like pain and ringing in the ears. The vertigo also happened at random times, like sitting on the couch watching t.v. I was totally relaxed and then WHAM! The vertigo would strike. I did a bunch of testing, which led to the diagnosis of a perilymph fistula. A very rare condition, usually caused by some sort of trauma, but can sometimes happen sporadically. I was pregnant at the time that I first started the symptoms. Do a google search of "perilymph fistula" and see if your symptoms sound similar. I had surgery to repair the fistula and all was well afterwards. However, now a few years later, I have hearing loss and tinnitus. My doctor believes I have another condition called otosclerosis. It is strange to me to have two unrelated conditions in the same ear so close together...I wish I knew what was going on and how to fix it all.

Another condition came to mind while reading your post-Meniere's Disease. Has your doctor mentioned it to you? My grandmother suffered from it for a years and the main symptom was vertigo attacks.

Hang in there. I hope you get some answers soon!

Last edited by Zoe26; 11-16-2009 at 10:55 PM.

 
Old 11-17-2009, 12:55 AM   #6
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care_berry HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

I am so sorry you are going through this vertigo. That sounds so horrible. I am not an expert or anything like that, but do tend to read a lot about health because I used to suffer from my own health issues. One thing comes to mind though. By any chance have you been tested for vitamin deficiencies? I caught a medical mysteries type show a while ago and there was a woman who had the vertigo you described. It turned out that in her case, it was a simple B vitamin deficiency (I believe it was B12) and she had to just go and get B12 injections since her body wasn't absorbing it properly. Just a guess here but she may have been suffering from gluten intolerance and could have caused her inability to absorb the vitamin. But anyways, that just popped into my mind when I read your question. Maybe this could be helpful or maybe not, but it's just a thought and it couldn't hurt to throw a few more ideas out there!

 
Old 11-17-2009, 10:41 AM   #7
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Zoe26 HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

Quote:
Originally Posted by care_berry View Post
I am so sorry you are going through this vertigo. That sounds so horrible. I am not an expert or anything like that, but do tend to read a lot about health because I used to suffer from my own health issues. One thing comes to mind though. By any chance have you been tested for vitamin deficiencies? I caught a medical mysteries type show a while ago and there was a woman who had the vertigo you described. It turned out that in her case, it was a simple B vitamin deficiency (I believe it was B12) and she had to just go and get B12 injections since her body wasn't absorbing it properly. Just a guess here but she may have been suffering from gluten intolerance and could have caused her inability to absorb the vitamin. But anyways, that just popped into my mind when I read your question. Maybe this could be helpful or maybe not, but it's just a thought and it couldn't hurt to throw a few more ideas out there!
Of course, thanks for the extra info, always appreciated. But I've had blood tests, don't they check your vitamins in that or do I have to specify that I want me B vitamin/B12 checked? Wouldn't they automatically do that themselves? Someone has brought this up to me before, too. I would think my doctors would have caught something so simple by now.

 
Old 11-17-2009, 06:10 PM   #8
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care_berry HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

I don't know if through the blood tests they checked for vitamin levels. I would call the doctor's office and ask specifically if they did and what the results were. If they didn't, I would surely get tested. I would imagine they probably didn't check for it. I could be wrong though. You would think they would catch something so simple as that, I know right? I had the same kind of thing happen to me with anxiety/panic. They could never figure it out until I went through alternative ways and found out the attacks were caused by a simple gluten allergy. Sometimes we have to be our own best advocates and do our own research!

 
Old 07-01-2010, 11:08 PM   #9
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Re: Any VERTIGO sufferers out there? Please help. Strikes again...

I can only say that I have had vertigo for over 7 years now and I was told that it won't go away. I understand the frustration of no drugs to help. Although my dr. takes me very serious when I tell him how debilitating it makes me feel. There really isn't much you can do. I take antivert for attacks, but really what's the point when the attack last a few seconds or so. To me taking the pill afterwards does nothing for me. I had a real bad one last night and I assumed it was because my body was so tired and I was fighting it. I have also noticed when I have a sinus infection I tend to have more episodes. There are different things that bring it on. As they say, there is really no known reason for it.

 
Old 06-25-2012, 01:45 PM   #10
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Re: Any VERTIGO sufferers out there? Please help. Strikes again...

hi to all sufferers of vertigo.my name is kenneth and i have suffered from vertigo since i was first diagnosed with it back in 1996 while working in a factory and it was the company nurse saw to me.I felt very weak all over and also very light headed also and saying to myself how could i possibly have got hit with this strange experience i was having and there it was i had vertigo.Over the years since i have had a regular occurrence of vertigo.sometimes i would be ok in a few hours or i could have it for a week or so.I am currently taking a tablet called STEMITAL a small white tablet which i continue to take and since last saturday have had a touch of it and today being monday still have it so as i said i can have it for a few hours or a few days.The first time i got it i thought i was the only one suffering from vertigo but when friends and family heard about it they also knew of people who have suffered from it so then i knew i was,nt the only one.I really pity anyone who sufferes from it because it can really knock you back alot.thank you.ken

 
Old 06-25-2012, 05:50 PM   #11
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marrie12 HB Usermarrie12 HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

Hi I have alot of issues with dizziness and vertigo and am a celiac, you mentioned something about gluten in your post of 3 years ago, I was wondering if you or the docs found a connection or what you have done for your vertigo?

Thank you
Marrie12

 
Old 07-13-2012, 01:34 PM   #12
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florida max HB User
Re: Any VERTIGO sufferers out there? Please help. Strikes again...

I am not a doctor, but was recently diagnosed with Benign Paroxysmal Positional Vertigo(BPPV). This is the most common cause of dizziness, the problem is caused when small debris in the inner ear is dislodged and floats into the semicircular canal. My vertigo symptoms started after I had dental work performed and my initial thought was that I had a bad infection from that work. I suffered for 2 Ĺ months before being advised to see an ENT Specialist.
My symptoms were severe bed spins usually lasting 5-10 seconds when laying down for bed, rolling over, or rising from bed. I also feeling anxious, I had trouble focusing, headaches, tired eyes and complete fatigue. Some days were terrible and I never really felt stable.
I went to an ear & balance center located in central Florida. Was diagnosed, treated and cured in one visit. The treatment was performed using an Epley chair which basically is a chair that you get strapped into and slowly they spin you in many directions while they monitor your eye movement with special goggles. The goal is to reposition that debris into the correct area in your inner ear. I left the treatment that day dizzy so I would recommend a driver. The dizziness lasted another few hours and slowly cleared. I got a good night sleep (the first in months) and woke to a stable world. It has been three weeks since the treatment and I have had no reoccurring dizziness at all.
There are instructions on doing the Epley maneuver at home, but the ENT uses the Epley chair to confirm that you have BPPV before treatment and then a computer verifies that your condition is repaired by watching your eye movements. Many people who try to performe the Epley maneuver at home only make things worse.

 
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