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Old 06-05-2010, 06:55 AM   #1
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Undiagnosed Vertigo

Hi there,

Any help with this problem would be greatly appreciated. I have been suffering from Vertigo for approx 1 year now, which changes in severity from day to day and seems to go through mild weeks and severe ones. I have had many other symptoms although none are consistent. The Vertigo is worse in shops and busy places such as Heathrow airport where i work. lying down I am fine and sitting in general when i can rest my head usually helps unless I am having a severe attack. When the attack is bad the only thing i can do is lie down.

Other symptoms have been
Loss of vision when moving quickly
Pains in fingers and hands (dull ache)
Pin ***** sensations anywhere in body
Heat sensitivity
cold shivers
Jaw clenching (could be stress related)
Fingers and hand tremors which seem to be directly related to severity of vertigo
Physical adrenaline even when feeling calm minded
Itching skin (may be unrelated?)
Inability to concentrate as Vertigo makes me feel Drunk and mind is fuzzy

I am a Hypnotherapist and have a good understanding of stress and the mind and am sure these symptoms are not caused by stress although definately get worse when i am stressed or hot.
So far I have seen 3 Neurologists and have had entire blood works tested, although slightly deficiant in b12 the injections have not improved Symptoms which i had months ago. I have had 3 MRI scans of brain and spine, the brain had a slight shadow which the neurologists felt could be nothing or something. I have had a Lumbar Puncture which showed negative.

Having done a lot of research online I seem to fall into many possible catagories and yet always with varying symptoms.
I am not working as i am unable to walk around the airport and driving is hit or miss. Please help

 
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Old 06-05-2010, 07:32 AM   #2
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Re: Undiagnosed Vertigo

That's just such an awful thing to have, I'm so sorry.

Off the top of my head...are you on any medications? for anything?

My only experience with vertigo (and my gosh, I would not wish that on anyone, it's horrible) was while I was taking Lyrica for nerve pain. I mentioned what I thought to my GP and he said "I doubt it", "I've never heard of that before"...well once I stopped that med my vertigo went away.

He did test my inner ears (you can read about this under vestibular disturbances). I'm sure, if you've been to a Neurologist they have done this for you.

Keep reading and searching...good luck to you!

 
Old 06-07-2010, 05:16 AM   #3
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Re: Undiagnosed Vertigo

Hi there, no i am not taking any medication The only thing I take is the contraceptive pill. I am going to change that this month just incase.

Thanks so much for the reply, I hope all is well with you?

 
Old 12-18-2010, 04:28 PM   #4
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Re: Undiagnosed Vertigo

This sounds like a vestibular problem, not a central problem, hence why the MRI's did not catch any problems. I would suggest that you see an otologist who can properly diagnose vestibular problems. I think that your other physical problems are probably not connected to the vertigo, but I cannot say definitively because I am not a doctor. It is likely that you have something called BPPV. You can test yourself for BPPV with the Dix Halpike Maneuver, and the Epley maneuver is most likely the cure.

 
Old 12-22-2010, 08:34 PM   #5
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Re: Undiagnosed Vertigo

OMG!! I have exactly the same symptoms you have!! and mine is also undiagnosed... a doctor told me that maybe high cortisol levels could be causing it, but in my case my cortisol leves were normal..i hope this could help, maybe you should get you cortisol checked..

Dont you also feel when you lie down that your whole body and your inner ear is beating like your heart?

Last edited by carolinega; 12-22-2010 at 08:35 PM.

 
Old 12-22-2010, 10:12 PM   #6
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Re: Undiagnosed Vertigo

I have the same thing you have, but I see stars occasionally and cant concentrate on things, I feel as if my subconscious part of my mind is more active than my normal mind.I do things without me thinking about them and I also seem to zone out alot, like my mom will be driving home with me and on the way home i will think of stuff, and later I snap back into reality like, oh yeah, Im in my moms car going home. And I get frustrated and sad because I cant act like myself and dont know whats going on. Its like if everything is just a dream that I won"t wake up from.

 
Old 01-09-2011, 08:01 AM   #7
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Smile There is help

Hi .. I can totally relate to you. I agree with you needing to see a vestibular specialist. After a year and a half of dealing with this I seen a vestibular doctor when neurologists had no answers. I always felt like my brain was bouncing. Now I'm told I have bi lateral vestibular loss. < edited > Best of luck!

Last edited by hb-mod; 01-11-2011 at 05:38 AM. Reason: Please do not post unapproved websites, per Posting Policy. Thanks!

 
Old 01-09-2011, 12:45 PM   #8
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Re: Undiagnosed Vertigo

Hello.... i aswell have a undiagnosed dizziness ... had it since my third tri of pregnancy and had it ever since.. 1 year and 9 months now -_-

Pains in fingers and hands (dull ache)
I get pin sensations in my hands and feet sometimes legs
Heat sensitivity
cold sensitivity
Jaw clenching..sort of like what ur teach do when your cold when i lie down (i have to lie down on my left side only way i can handle it)
Itching skin
Inability to concentrate
a ton of sensitivity to any visual stimulation like stores and my eye roll to the back of my head when i close my eyes (im not having a sezier) they just do it by them selves
i also see floaters and starz

any how jus wanted to say that because it nice hearing from others who r going what your going through... you know people dont know how tough it is... im 21 years old i now cannot drive... cant excercise ... ive gained weight... i have to be in a wheelchair outside of the house because you dont always have things to grasp on plus i may fall... now my daughter is walking and i just cant keep up... its over whelming im jus praying thatt they find the anwer one day... hang in their best of luck

Last edited by sileray; 01-09-2011 at 12:46 PM.

 
Old 01-09-2011, 09:41 PM   #9
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Re: Undiagnosed Vertigo

It is good that you are doing research to find the cure for your problem, but I would recommend seeing a specialist because vertigo is one of the most difficult things to diagnose. However if you want some simple diagnostic reasoning to test yourself, please read my discussion post below this one.

Last edited by bindar; 01-09-2011 at 09:50 PM. Reason: Edit

 
Old 01-09-2011, 09:46 PM   #10
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Re: Undiagnosed Vertigo

Dear ertigo78 and sileray,

Balance problems are common, if you dont know the cause, you should start by assuming it is the most common cause, which also happens to be the easiest to treat. Your dizziness/imbalance may be caused by BPPV, the most common variant (Posterior Canal BPPV) of BPPV can be easily treated with an Epley maneuver. I previously suffered from BPPV, and my symptoms matched yours. Since then, I have treated a family member who had the same problem. BPPV does NOT only cause positional vertigo, but dizzyness and imbalance also.

If the Epley maneuver fails, consider BPPV canalithiasis or cupulothiasis of the Anterior or Horizontal Canal.

If that treatment fails, then you can rule out BPPV as a cause. Then consider MAV, which would certainly be a logical deduction with the symptoms you provided.

Patients suffering from balance problems often experience uncomfortableness with visual stimulation and it is difficult for people to concentrate on normal things because their brains are having to concentrate on keeping balance. The vestibular system is the primary means of keeping balance, so when that system is faulty, the body relies on the brain and the eyes for balance.

The other extraneous symptoms you mention are not likely related to the dizziness.

Last edited by bindar; 01-09-2011 at 09:52 PM.

 
Old 01-10-2011, 07:12 AM   #11
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Re: Undiagnosed Vertigo

thank you so much for that insight... im going to try that menuvour ...
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Old 01-11-2011, 11:52 AM   #12
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Re: Undiagnosed Vertigo

Hi Everyone,

Just a quick update as I have finally been diagnosed with POTS..(postural orthostatic Tachycardia Syndrome) So myself and neurologists were way off mark for a while. Please look up the symptoms and description to see if this fits any of your situations?? Hope this helps x

 
Old 01-11-2011, 04:13 PM   #13
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Re: Undiagnosed Vertigo

Vertigo78

So let me get this straight... before you were diagnose with this... your symptoms resembled that of virtigo ?? because i have virtigo with all virtigo symptoms ... but im also having trouble with my blood pressure dropping upon standing causes alot of discomfort pain and shortness of breath as my heart beats slow and painfully hard as it recovers from the blood pressure drop BUT my doctor also believes i have a undected arrythmia cause another seperate symptoms of mine..... now with that being said my blood pressure is always running low... 100s 90s and even drops to 84 ... .... so sorry i rambled on but i just wanted to know did they at first believe u had virtigo? and how did they go about diagnosing this?
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Old 01-14-2011, 12:40 AM   #14
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Re: Undiagnosed Vertigo

Quote:
Originally Posted by sileray View Post
Vertigo78

So let me get this straight... before you were diagnose with this... your symptoms resembled that of virtigo ?? because i have virtigo with all virtigo symptoms ... but im also having trouble with my blood pressure dropping upon standing causes alot of discomfort pain and shortness of breath as my heart beats slow and painfully hard as it recovers from the blood pressure drop BUT my doctor also believes i have a undected arrythmia cause another seperate symptoms of mine..... now with that being said my blood pressure is always running low... 100s 90s and even drops to 84 ... .... so sorry i rambled on but i just wanted to know did they at first believe u had virtigo? and how did they go about diagnosing this?
I think a clarification is necessary. POTS and arrhythmia are cardiovascular conditions, therefore they cause dizziness, not vertigo. Here is the difference:

Vertigo is a false sensation of movement. If you have vertigo, it will feel like either you or the room is spinning. This frequently causes nausea.

Dizziness is the lightheaded or disoriented feeling you have when you stand up too quickly and your blood pressure drops.

Vertigo and dizziness are caused by different things, therefore it is important to understand which condition you are experiencing.

Last edited by bindar; 01-14-2011 at 12:41 AM.

 
Old 01-15-2011, 05:25 AM   #15
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Re: Undiagnosed Vertigo

Sorry for not being a little more specific. First of all POTS is easiest determined by the rise in heart rate on standing(over 30beats per minute). I believe the vertigo was caused by the postural migraines the pots were causing, although this is still yet to be confirmed. I was advised by a neurologist that and dizziness or imbalance can leave you with the vertigo sensation often with no reason. Looking back i realise that the difference between being lightheaded/ dizzy and vertigo were often present at the same time... ( the lack of blood in head also created a movement sensation). Hope this helps, and most importantly this covers all the random symptoms I am experiencing. Let me know how you all get on. Really goodby explained this ok.

 
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