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Dizziness / Vertigo Message Board
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Old 04-11-2011, 03:46 PM   #1
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Undiagnosed Chronic Constant Lightheadedness

I have had severe lightheadedness for 30+ years which is constant and 24/7 and it's getting worse by the day. I did hit my head at age 6 on the edge of a camper trailer. I float like I am on a pontoon boot waving back and forth and up and down every time I move. I find it extremely difficult to sleep and cannot sleep on my side (makes me way too dizzy - cannot tolerate it!).

I have seen many specialists, ENT, MRI of ears, Neuro, Otologist, Chiro and others... most like to prescribe meds which does nothing. I tried valium, meclizine and others. No go.

I never get sick when I get severe debilitating dizzy spells which make me bedridden. I was once in bed for over 30 over and didn't move at all except to go to the bathroom which was pure hell.

Has anyone had this constant heavy floating sensation. It sucks. I used to run long distances but can't anymore. I used to run on a treadmill but once i get off it, I still feel as if I am still running. Does any know why this feeling happens? My life is going down the tubes fast.

Any help is greatly appreciated. I wishing for a miracle and I'm NOT kidding!

 
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Old 04-11-2011, 06:02 PM   #2
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Re: Undiagnosed Chronic Constant Lightheadedness

A history involving head trauma immediately points to BPPV.

I had severe BPPV and experienced all the symptoms you mention. My case was so severe that I couldnt walk or lay down. I have greatly benefited from several Epley maneuvers.

 
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Old 04-18-2011, 05:35 PM   #3
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Re: Undiagnosed Chronic Constant Lightheadedness

Don, I can relate to your condition. I have had the dizziness / balance issue for 10 years. Had all the tests like you, with no diagnosis. It got so bad, I got extremely depressed and was put on Cymbalta. Fortunately, the anti-depressant calmed the imbalance feelings a bit, it's still there in the background just not as bad. I don't know what I would have done if my Neurologist had not suggested this drug. Hope you feel better soon.

 
Old 05-17-2011, 09:23 PM   #4
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Re: Undiagnosed Chronic Constant Lightheadedness

Don:

You might have meniere's disease. I do. It has something to do with the amount of fluid in my inner ear. I take decongestants often to keep the fluid from building up in my ear. Also, I avoid food or drink with histamines, especially beer and wine. I still can't sleep on one side, but I am much better now that I regularly take decongestants and never drink beer or wine. I went from being dizzy, a lot, to just being light-headed sometimes.

Last edited by Cantsleeponside; 05-17-2011 at 09:25 PM.

 
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