Well it seems there are a lot on here that have some awful symptoms and I feel for everyone as I completely understand. Just wondering if anyone has this and can assist...here goes:
About 3-4 months ago now I was at a shopping centre and had an intense pain all of a sudden in the front of my head, loss vision for approx 2 seconds (felt like things were spinning) and finally came too. From there, had an onset of nausea which passed. From then on, I have had dizziness 24/7. 3 Days later I had an interstate trip so was on a plane for about 2 hours - no pain though. A week later I had an episode where I thought the credit card machine in front of me was moving, but this passed after approx 20-30 seconds. The next day I had another plane ride (heading home) - again this was 2 hours, but no pain. The dizziness hasn't stopped since then. I have had issues along the way with being anxious, but I know this because I was "getting used to the feeling", hence scared me a few times.
When I enter a shopping centre, or an office, etc I now get an onslaught of dizziness to the point where the front of my head feels like its being ripped in two. When I head outside, the dizziness settles down (never disappears), however, the headache subsides to a dull pain. Because of this, I haven't been in a shopping centre much (only if I absolutely have to) and its extremely difficult going to work - if at all.
I have been to a Neurologist and had a CT and MRI/MRA/MRV however nothing to explain. I saw an ENT (whom I believe either didn't believe me or doesn't have expertise in the inner ear) who said " I don't know - you should go to this ENT to go to a balance clinic". I have another appointment with another ENT whom will try and send me to an Otoneurological Diagnostic Centre (in Adelaide, South Australia).
I had thought it was MAV, however I thought MAV was episodic (which mine isn't - its constant). Its such a wierd feeling - its almost like my eyes are fighting with the rest of my head (or vice versa).
Thoughts / Comments - anyone wish to shed some light
I second your suspicions of MAV. Actually, MAV isnt necessarily episodic, it has been documented to cause continuous symptoms such as you are experiencing.
I would recommend seeing another Neurologist, but it wouldnt hurt to go to the Otoneurological Diagnostic Centre also just to make sure that there are no other problems.
I was so sorry to read your story as your symptoms seem quite severe. I was diagnosed recently with BPPV but am going for a CT scan, bloodwork etc to rule anything else out. What I found interesting about your story is that you feel better when you're outside and so do I. When I am inside anywhere for too long, I have to go outside or I start feeling very dizzy and my vision becomes unaligned, like you are describing. Reading other posts, I am wondering if you might have Migraine Associated Vertigo? I don't know and I don't even know for sure what I have but I used to get migraines..but the odd thing is before my first vertigo episode, I had not had a migraine in years. Of course the worst thing about everyone's stories in this forum is the lack of a sound diagnosis and being made to feel like it's a psychological thing by some doctors. Up until this, I have been extremely healthy all my life and all of a sudden onset vertigo. What the hell? I wish you luck in your journey for a solution and was also wondering if you've been to an optomertist to have your eyes checked...just in case. I know it's like finding the perpetual needle in a haystack.
Best wishes,
Plane Jane
Quote:
Originally Posted by odysey
Hey All,
Well it seems there are a lot on here that have some awful symptoms and I feel for everyone as I completely understand. Just wondering if anyone has this and can assist...here goes:
About 3-4 months ago now I was at a shopping centre and had an intense pain all of a sudden in the front of my head, loss vision for approx 2 seconds (felt like things were spinning) and finally came too. From there, had an onset of nausea which passed. From then on, I have had dizziness 24/7. 3 Days later I had an interstate trip so was on a plane for about 2 hours - no pain though. A week later I had an episode where I thought the credit card machine in front of me was moving, but this passed after approx 20-30 seconds. The next day I had another plane ride (heading home) - again this was 2 hours, but no pain. The dizziness hasn't stopped since then. I have had issues along the way with being anxious, but I know this because I was "getting used to the feeling", hence scared me a few times.
When I enter a shopping centre, or an office, etc I now get an onslaught of dizziness to the point where the front of my head feels like its being ripped in two. When I head outside, the dizziness settles down (never disappears), however, the headache subsides to a dull pain. Because of this, I haven't been in a shopping centre much (only if I absolutely have to) and its extremely difficult going to work - if at all.
I have been to a Neurologist and had a CT and MRI/MRA/MRV however nothing to explain. I saw an ENT (whom I believe either didn't believe me or doesn't have expertise in the inner ear) who said " I don't know - you should go to this ENT to go to a balance clinic". I have another appointment with another ENT whom will try and send me to an Otoneurological Diagnostic Centre (in Adelaide, South Australia).
I had thought it was MAV, however I thought MAV was episodic (which mine isn't - its constant). Its such a wierd feeling - its almost like my eyes are fighting with the rest of my head (or vice versa).
Thoughts / Comments - anyone wish to shed some light
