Well it seems there are a lot on here that have some awful symptoms and I feel for everyone as I completely understand. Just wondering if anyone has this and can assist...here goes:
About 3-4 months ago now I was at a shopping centre and had an intense pain all of a sudden in the front of my head, loss vision for approx 2 seconds (felt like things were spinning) and finally came too. From there, had an onset of nausea which passed. From then on, I have had dizziness 24/7. 3 Days later I had an interstate trip so was on a plane for about 2 hours - no pain though. A week later I had an episode where I thought the credit card machine in front of me was moving, but this passed after approx 20-30 seconds. The next day I had another plane ride (heading home) - again this was 2 hours, but no pain. The dizziness hasn't stopped since then. I have had issues along the way with being anxious, but I know this because I was "getting used to the feeling", hence scared me a few times.
When I enter a shopping centre, or an office, etc I now get an onslaught of dizziness to the point where the front of my head feels like its being ripped in two. When I head outside, the dizziness settles down (never disappears), however, the headache subsides to a dull pain. Because of this, I haven't been in a shopping centre much (only if I absolutely have to) and its extremely difficult going to work - if at all.
I have been to a Neurologist and had a CT and MRI/MRA/MRV however nothing to explain. I saw an ENT (whom I believe either didn't believe me or doesn't have expertise in the inner ear) who said " I don't know - you should go to this ENT to go to a balance clinic". I have another appointment with another ENT whom will try and send me to an Otoneurological Diagnostic Centre (in Adelaide, South Australia).
I had thought it was MAV, however I thought MAV was episodic (which mine isn't - its constant). Its such a wierd feeling - its almost like my eyes are fighting with the rest of my head (or vice versa).
Thoughts / Comments - anyone wish to shed some light