For those who have either searched out for help for a balance problem, or who are just starting to get a balance disorder, consider seeking out one of the 12 Rotary Chair specialists to have the latest comprehensive tests. (Over 13 tests performed in that chair).
Bloomsburg University has a pioneer doctor, Dr. Gonzales, who can perform such detailed tests for all things ear related, or may be able to give info of where you might find a similar specialist in your area.
My friend just got a diagnoses after 14 years and 59 doctors of all kinds, (ENT's and Neurologists included), by going through the 2 hour testing on the rotary chair. Its no fun, so don't yell at me if you have a hard time completing the tests, when the chair spins on one way or another. BUT, if you can stick it out, like my friend just did who HATES anything spinning even just a little but, then you too might get a specific diagnosis as to what exact part of the ear could be malfunctioning. (The Utricle, for example). The Chair's tests pinpoint all areas of the ear, one at a time, to narrow down the possibilities of having an inner ear problem for balance or dizziness issues. That way, the ear can be '"properly" ruled in or out.
Hope you all get in a rotary chair nearest you and get HELP!
Hey thanks for that info. I just got tested at the U of Mi and they did some thing in a rotary chair but I am not sure if it was a complete as what you list. I will check and compare. The test was still inconclusive. I woke up dizzy in 08 and have been dizzy every since. At first it was just anoying now it is dibilitating. I am mostly housebound and can not drive. My dizziness is a wierd off balanced thing too. I can look at the plates in my cupboard and they vibrate. It feels like it is in my eyes but I had them tested by a neuro optomoligist and they are ok. I am just so tired of it all. Thanks again.
Oh man,,so sorry of what you are going through. But know this, my friend has the same sensations and worse much longer and did get diagnosed after being in that chair for 2 hours. Over 13 tests.
Maybe get in touch with thee expert in all things balance and that chair, Dr. Gonzales at Bloomsburg, U., PA. Hang in there, and someday you will get that diagnosis. Then hopefully a good solution. Keep at it. Bloomsburg next maybe?
Take CARE, Johnny D
Thanks Johnny. I am about to scream but it tells me there is hope. Can I ask you what if any thing they did for your friend? Is he better?
I am going to try and get in contact with that Dr for sure. Not sure if U of Mi has the same stuff. I could always send him my results from them that would list what they did and he could compare. Might save me a trip or let me know I need one.
Mike was diagnosed with a malfunctioning Utricle organ in the middle ear. Since that is a fairly new condition, with the Chair being the only way of detecting such a thing, (and many other things as well), that doctor is currently drawing a specific rehab program that he will give to Mike's local Balance specialist, (who refered MIke to Gonzales). Those two docs are colleges, so they both want to be the same page as far as the rehab, and where that will be done, since this is new territory, which some PT's don't even buy into the new findings of the Chair. (Not knowing form school training has most skeptical. BUT, the Rotary chair is showing more and more that there is much that the ENT's and PT's don't know yet. So, the PT's might have to be trained first in knowing exactly what to have Mike do at each visit, being specific to the Utricle organ retraining that is needed.
Mike is just waiting, in other words.
Previously, he had Vestibular rehab,,the usual kind that did nothing, because they didn't have this new info of Mike's cause of his problems. So, they did the usual, general rehab for balance. It made him worse at one session.
Yes,,,keep hope alive. Mike wanted to NOT see another doctor after his 40th,,,,then 41st, and so on. Dr. Gonzales ws his 60th. So, like anything else that takes not giving up, so does trying to find a diagnosis. It CAN be found, if knowing who to go to and why. It took Mike and I many trips to docs passing him of to another, then another, until the balance doc told him to see HIS GURU. He sure was right.
BUT, the results of any rehab is still unknown. Not telling now bad that organ is without going in and seeing it for real. So, once rehab starts, we just have to hope for more good results. Mike's wife is also not in great health, so one of them at least has got to start getting better soon.
Wow it sounds like me. I have had PT 3 times. Made me worst except I enjoyed the one the did some manual message of my neck area. You can imagine holding the head so stiff day to day to keep spins at a minimum is tuff on the neck and shoulder muscles. Also sleeping propped up on several pillows is tuff. I am in Mi and not sure if I can get to Philly but I will check out this Vertigo/neuro man at U of Mi in Sept and see what he thinks. Because I have an autoimmune disease called Sarcoidosis they tend to blame everything on that and the treatment is always more steroids. Well my disease has settled down some and now I want to see what else has been brewing for 3 straight years. I live like a hermit and rarely go out. Small outings to the store with help or a Dr appt is about it. I am hating life right now but not giving up. Really need to find some answers. I did some laundry this morning and changed my bed. That is the extent of what I can do by moving around today.
Thanks for the info. I did look up that Dr and could not find him but did find where he works. It did not list that program so I may have to call if I need to go.