I've been using the Transderm Scop patches continually since 6/20/11. They work great and are good for three days (72 hours). But they're expensive, even with insurance. I've tried to come off them a few times, but each time I've tried, I got violently ill, to the point of vomiting continuously - enough to lose 5# in a single day. I recently learned that many people suffer withdrawal symptoms coming off of scop - some after using only one patch! And guess what - the symptoms of withdrawal are almost identical to the symptoms for which the patch was prescribed in the first place! Which begs the question: when I stop using the patch, are my symptoms due to withdrawal from the patch? Or do I still have vertigo? How on earth would anybody know?
I went to my family doctor last week and told him I needed help to get off the scop. Instead, he told me to go refill my prescription as he wants me to keep using the patches for another three weeks. I told him that I thought a couple of patches in the last box were defective, because my symptoms started returning prior to 72 hours (once at around 60 hours and once at around 48 hours). He told me if it happens again to put on a new patch, but to also keep the old one on for eight more hours, then remove it.
My MRI showed no brain tumor (the good news) but indicates there is some demyelination going on (the bad news). Both my family doctor and the ENT mentioned MS as one possibility. Also "something-encephalopathy-something" (a really long word, I can't remember it since I don't know what it means. My neuro appointment is next week.
Anyway, I'm feeling pretty decent using the scop patches - they certainly do work well. Worst side effect is occasional sternum pain that started when I started using the patches. But getting off the patches is going to be a *****. Guess I'll cross that bridge when I come to it.