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Dizziness / Vertigo Message Board
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Old 09-21-2011, 11:56 AM   #1
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First time user

Hi,
I am so pleased to have found this site.
My symptoms started in 2003 with subtle movements on the tv screen and leaves on trees. Throughout the years they progressed into having problem walking up and down the aisles in a supermarket, driving, in malls or anywhere there is a lot of fast traffic, or people. Peripheral "business" gets me disoriented.
I have been to numerous doctors, had many tests run and the only diagnosis I was given was "safeway syndrome" and "supermarket syndrome". I've done physical therapy and exercises and nothing has really helped. I was diagnosed with narrow angle glaucoma right after all this began.
I haven't been able to drive on busy highways for years and restrict my driving to local 25mph streets. Like all of you, it has changed my life completely. I feel sometimes, even my family doesn't understand as, like someone else mentioned, nothing shows on the outside.
I look forward to reading what others have to say - it's a comfort knowing that there are people out there like me.

 
Old 09-21-2011, 09:55 PM   #2
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Re: First time user

Do (or have you ever) you also suffer headaches?

 
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Old 09-22-2011, 06:13 PM   #3
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Re: First time user

I had migraines when I was younger but haven't had any bad headaches for several years now. I did find a European medical website that called the problem "visual vertigo" and listed all the symptoms I have. I don't have the usual "vertigo" though.

 
Old 09-22-2011, 06:29 PM   #4
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Re: First time user

would you say that you have alot of aspartame in your daily intake ??

 
Old 09-23-2011, 11:30 AM   #5
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Re: First time user

Quote:
Originally Posted by mixedupmom View Post
I had migraines when I was younger but haven't had any bad headaches for several years now. I did find a European medical website that called the problem "visual vertigo" and listed all the symptoms I have. I don't have the usual "vertigo" though.
The symptoms you describe are very common in a condition called migraine associated vertigo. Your history of migraine headache makes this very likely. Most people experience MAV symptoms independent of the headache, and during headache-free intervals of time. In some people, MAV causes short vertigo attacks, and in others it causes chronic visual vertigo or motion intolerance (like you).

I would recommend reading more about this condition, and avoiding migraine food triggers. I would also speak with a doctor about migraine prophylactic medication. The good news is that the majority of people are able to suppress MAV and live a normal life.

I dont have MAV, but I know many people with this condition. Your symptoms and history sound exactly like theirs. All of them have been able to control their symptoms with the changes I mentioned above.

Last edited by bindar; 09-23-2011 at 11:37 AM.

 
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Old 09-24-2011, 03:46 PM   #6
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Re: First time user

Thank you for that info. I have never attached it to my headaches as like I said I haven't had any for years. I have my symptoms continually but they get worse under the conditions I've mentioned. I will certainly read up about MAV and ask my doctor about that. I know I used to take pills for migraines but don't remember what. I also watched what I ate. I found out about three years ago that I am gluten intolerant now so am on a gluten free diet.
Thanks again.

 
Old 09-24-2011, 03:52 PM   #7
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Re: First time user

Quote:
Originally Posted by momoftrio View Post
would you say that you have alot of aspartame in your daily intake ??
No, I don't use any type of sugar free products.

 
Old 09-25-2011, 03:17 PM   #8
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Re: First time user

Most MAV patients dont attribute their dizziness to migraine because the symptoms occur separate.
Some common migraine literature will say that MAV is episodic and not continuous. However, most experts understand that some patients experience continual MAV symptoms as you describe.

Good luck.

Last edited by bindar; 09-25-2011 at 03:19 PM.

 
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Old 10-26-2011, 02:08 PM   #9
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Re: First time user

This message is foir mixedupmom. I also have had these same symptoms. They started about 7 years ago and have gotten worse but are still mild. I must use a shopping cart if I go to a home depot or lowes. Any mall makes me feel off balance. I have been to (2) ENT doctors, had an MRI done. Also been to two balance centers. One of them at the Univ of Penn. I went to Phy therapy and I am no better. All my tests come back that I am healthy. I am a professional, very healthy person and I can still go about my daily life but I am concerned this will get worse as I get older.

I cannot have a converstaion with someone while standing. I must rock back and forth or sit. I do not believe this is anxiety related or migraine related. It must be visual or nerve related.

Any help or things to try would be appreciated.

Thanks

 
Old 11-02-2011, 04:38 AM   #10
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Re: First time user

I just wanted to let you know i have similar symptoms and like JMR01, i am also sure this is not MAV. Driving, crowds and supermarkets are a problem for me as there is a lot of movement and visual stimuli sending conflicting messages to my brain. My first visit to an ENT ended in a diagnosis of MAV although no testing of ANY sort was done. I think MAV is sometimes an untestable but common condition which should, for us dizzies, be treated only as part of a process of elimination in getting to the bottom of these symptoms. I have had a few different medications for MAV and cut out all caffeine, sugar etc from my diet with no success. I have also done VRT with no success but i continue to include it in my daily routine anyway. What i am trying to say is that, yes MAV may be a problem for some dizzies but isnt necesarily the answer for everyone with visual vertigo symptoms. If a diagnosis of MAV is made, follow the treatment advised and if you have no success with it, move on and keep looking at other possibilities. Good luck x

 
Old 11-03-2011, 06:26 PM   #11
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Re: First time user

Your symptoms sound identical to mine. I was diagnosed in 2003 and am still struggling with them. I haven't driven on a busy highway for years because I feel I have no control over the car. I rode on a bus today and was bothered by the trees and traffic. I came across an article on PubMed website by A M Bronstein on Vision and Vertigo and it lists exactly the same symptoms. I never did get a diagnosis, even with all the tests and specialists I saw. However that was some years ago and I have moved to another State so am thinking about trying another doctor up here.
By the way, your name says it all doesn't it. I sometimes think my own family thinks I'm imagining things or am a hypochondriac. Everything looks normal.
It helps to hear that others are having similar problems.
Thanks for your comments.
Doreen

 
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