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Old 10-13-2011, 03:28 AM   #1
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Still here, still dizzy, but happier!!

Hi.

I havent posted for quite a while as i was trying to start afresh with a new part time job (working with dogs ), new medication and a new attitude. I just wanted to update anyone who might have the same visual vertigo probs as me.

I was put on betahistine by a new doctor who although didnt have the answers, thought it would be worthwhile to try a new mild medication with no adverse effects (its for menieres disease). In short, it did ease my ear symptoms (fullness, ringing, pain, etc) but made no difference whatsoever to my visual vertigo. I am still taking it and have been working at a boarding kennels part time.

I am lucky that the drive to work is literally 6 minutes along a quite country road with no trees or anything roadside to send my peripheral vision crazy. At most i work for 3 hours at a time, the busiest days being tuesday and wednesday when i work 3 hours in the morning, 4 hours off, then another 2 hours in the afternoon. My work consists of walking dogs for 1.5-2 hours then cleaning. The dogs are walked along a countrylane with open farmland on one side and dense forestry on the other. Its fair to say that i am woozy and dizzy pretty much the whole time that i am walking and that to begin with i was really uptight about having the responsibility of someone elses beloved dog in my care whilst feeling this way. Now, i am a lot more relaxed in the knowledge that 5 months later nothing bad has happened and i feel a lot more confident in my bodys ability to get me around (even though i still feel dizzy, unbalanced, uncoordinated, fatigued, nauseous, etc). Unfortunately, being forced to walk for a few hours a day in an environment which badly provokes my symptoms has not served as the VRT as i had hoped. There has been NO improvement in my symptoms after 5 months however i am much fitter than before.

It has however done me so much good being out and about and mixing with other people (3 other doglovers to be exact). I definately feel more positive about carrying on living with the symptoms.

I am still studying toward working with dogs and am taking my time with it. I also have an appeal hearing in November to find out whether i am going to get the Employment and Support Allowance - jobcentre dont believe there is anything wrong with me, no change there I dont expect to be successful in this because of budget cuts, etc but i feel really proud of myself for fighting them every step of the way.

Good luck to everyone battling the dizzies xxx

 
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Old 10-15-2011, 07:23 PM   #2
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Re: Still here, still dizzy, but happier!!

Have you spoken with a neurologist?

 
Old 10-16-2011, 11:11 AM   #3
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Re: Still here, still dizzy, but happier!!

Yes, i was eventually referred to a neurologist after 3 visits to different ENTs and no diagnosis.

Unfortunately, the neurologist told me to "wait a few months and see what happens" citing stress as the problem. I had told her that trying to do my job with the worsening symptoms had stressed me out and subsequently made my symptoms worse. I should have known better than to mention stress. I have had this problem for 15 years so was really annoyed at her being so flippant. I then received a letter from her saying i should approach my GP and ask to be referred to a psychiatrist

Although i find the suggestion absolutely infuriating, i feel i have no choice but to do as i'm told so that at least they can rule out a psychiatric problem but it really just reminds me of how flippant and complacent these consultants become when faced with something with no obvious outward signs.

Bindar, you seem to be quite well informed on this area (more than me after all this time ). Do you have any ideas where i could go next with this? I have suggested a neuro-otologist but that specialism doesnt seem to exist in the country (according to 3 different GPs).

Thanks in advance xxx

 
Old 10-16-2011, 03:09 PM   #4
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Re: Still here, still dizzy, but happier!!

I asked about seeing a neurologist because visual vertigo is commonly caused by a form of migraine (MAV). Many patients have a prolonged visual vertigo for many years, and it is difficult to find a diagnosis because they dont currently suffer migraine headaches. If you have ANY personal or family history of migraine headache and/or aura, then this condition is possible. If you have no personal or family history, then I would say the chances of having this are low, if not impossible. Anxiety is also very common with this condition, some research has show that certain chemical deficiencies effect anxiety, depression, visual vertigo, motion intolerance, etc.... If you have ANY suspicion, I would see a different neurologist and ask about the possibility of this condition.

It would be wise to see a neuro-otologist. They could run some tests, and it is very likely they would talk to you about MAV. So you might want to do your homework on MAV first.

 
Old 10-20-2011, 01:52 AM   #5
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Re: Still here, still dizzy, but happier!!

Thanks Bindar. My father has suffered migraines throughout his life and i have had the full blown symptoms a couple of times in the past. For this reason my first diagnosis was actually possible MAV for which i was treated (and i also know a LOT about MAV having done a lot of research). Unfortunately, the treatment made no difference (i didnt believe it was MAV-related anyway) and so i was referred to ENT (with no success), then the neurologist (again with no success except further referral to a psychiatrist). As i mentioned in my previous post, neuro-otology seems to be a very rare specialism in this country.

 
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