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Dizziness / Vertigo Message Board
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Old 02-15-2012, 11:40 AM   #1
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Undiagnosed Dizziness

Hi. I am a 44 year old woman. I started having dizzy spells in August of 2010. I call them dizzy spells cause I don't know what else to call them. I don't have nausea, vomiting, don't feel like the room is spinning or anything like that. My head feels like waves of dizziness. I can't concentrate. It comes out of nowhere. I am at work, driving, at home doesn't matter where. I can be eating, watching TV anything it just happens. I feel like I have overdosed on cold medicine and my head is fuzzy and I can't concentrate. It comes and goes but every day I have some form of it. I can be driving home and it feels like I am in a fog and going to fall asleep sometimes. I never do. I don't feel off balance. I have been to many doctors and had several tests with no diagnosis. I have had CT Scan, MRI, MRA, blood tests, tilt table test, EKG, EEG you name it I have had it.

Anyone out there feel like this?? HELP

 
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Old 02-15-2012, 10:38 PM   #2
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Re: Undiagnosed Dizziness

Hi you responded to one of my threads earlier. I just read yours, have you ever had a root canal done? Because all of my dizzy spells, fading in and out stuff started a week after I had a root canal done. I too have had many tests and nothing can helps. It comes and goes just like you said I can be sitting down, standing up, not thinking about it at all. It feels just like a wave coming over me. At times it's very quick and other times it lingers either way it's very unnerving and scary. I have tried to investigate more about the root canal but the doctors just disregard it but before I had it done, I never had a dizzy spell or the feeling of waves of lightheartedness. Please let me know if this helps.
Take care
Marrie12

 
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Old 02-18-2012, 09:48 AM   #3
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Re: Undiagnosed Dizziness

Hi. Your symptoms sound similar to mine, although i do sometimes feel imbalance, but i think it's a cause and effect thing. I know how difficult it is to explain how your feeling - almost like you're not quite 100% there. Some people describe it as "stiff eyes".

When i found out about visual vertigo it was very much an "aha" moment, cos no-one else had ever understood what i was trying to describe. The problem with visual vertigo is that it's very much a symptom of something else ie migrainous vertigo, inner ear/vestibular disorder, sensory perception disorder (not as scary as it sounds). Do you struggle trying to find particular items at the supermarkets, or have difficulty judging distances?

Last edited by Administrator; 02-18-2012 at 10:55 AM.

 
Old 02-18-2012, 02:19 PM   #4
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Re: Undiagnosed Dizziness

Yes I can't seem to focus and I do have difficulty judging distances, I have learned to just look down in front of me if not it all starts to move. Is it the same for you?

 
Old 02-19-2012, 01:59 PM   #5
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Re: Undiagnosed Dizziness

For me it doesnt really start to move, it's just that i feel as if my eyes are not really managing to take in surrounding information, and i then subsequently feel like they are zoning out, almost like they lose the ability to focus, and that's when i get really mentally fatigued, although if i'm walking or negotiating my way around i get really physically fatigued also. Generally it makes me feel really lightheaded, floaty, foggy, and makes maintaining balance difficult.It's been described as simply lacking the ability to maintain balance and absorb/filter visual information on a subconscious or autonomic level.

 
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Old 02-21-2012, 07:28 PM   #6
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Re: Undiagnosed Dizziness

I, too, have unDX dizziness. I notice it more when I carry something, put arms above my head (like reaching into cabinets), laying down or driving (mainly moving arms) or become very stressed out. I went to ER 2 weeks ago because if I continue to walk when it is happening, my left leg seems to behave uncoordinated and they tested blood, urine, EKGs, chest xray, ct scan all cam back normal so I was sent home with antibiotic ""just in case"" . just had brain MRI and C spine MRI yesterday - I am awaiting a lumbar MRI for tomorrow. brain is ok but C spine MRI showed herniated discs with compression on thecal sac and a annular tear. Neurologist claims it would not cause this and cannot give any ideas. However, the day before it began I raked my entire yard in record time and sawed off some tree branches above my head. The next day I woke up with a stiff neck and lower back on fire and began having severe night sweats. I have tried pain meds, antibiotics, cold meds, decongestants....everything...

 
Old 02-23-2012, 05:01 AM   #7
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Re: Undiagnosed Dizziness

For me it is just the feeling of waves of dizziness in my brain. No other part of my body is affected. I cannot concentrate and have to leave work because I can't focus and become very upset. I can't stand this any longer. Not one thing triggers it. It comes out of the blue. I have seen many doctor's with no answers yet. I have no issues with distance and don't feel off balance. As for a root canal years ago but again no issues. This just came on one day and I was not sick prior. I was not doing anything out of the ordinary. Just sitting at my desk working and poof there it was. Had my eyes checked and they are the same as always. I was feeling better for a few months as it was only just a slight annoyance but a few weeks ago it came back worse then ever. I am seeing a cardiologist and having some testing done to see if it may be my blood pressure. It seems to fluctuate quite a bit and to be blessed with an answer that simple would be wonderful. I don't care what it is just fix it!!!

 
Old 02-23-2012, 11:35 AM   #8
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Re: Undiagnosed Dizziness

have you ever considered anxiety? attacks occur differently for everyone. i even tried klonopin.

the vertigo would be ruled out with trying to take antivert or some form of motion sickness meds and inner ear congestion with simple decongestant.

My BP is normally on the low side and orthostatic pressure was fine. i do have perfect cholesterol, mild regurgitation and rare PVCs, but those also are not the cause. It would be interesting to see if cardiologist finds anything.

 
Old 02-23-2012, 11:39 AM   #9
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Re: Undiagnosed Dizziness

have you had your hormone levels checked? I'm only 8 years younger than you and they checked mine, but since i was on birth control said it could be wrong. I would have to stop that and have recheck in 6 months.

 
Old 06-15-2012, 09:50 AM   #10
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Re: Undiagnosed Dizziness

Okay here is my story and 2 cents. I am a 33 year old male and I live in Canada. I have the exact same feeling. I feel like I have waves of pressure in my head, it makes me feel not dizzy but makes me feel off. It is so hard to explain to a Dr or anyone. It is constantly there but comes in stronger in waves some times. I have this for like 3 months at a time then it goes away for a month or two and then back for a month then gone again. The feeling is so weird and hard to describe. I agree with the eye thing that it fell like I can see 20/20 but I just can't focus or grasp what I am looking at. Not that it is not blurry or that I cannot see it but its like it's not as sharp in my head processing it. When I go to a place like Walmart I don't know if it's the size of the place and the openness but that brings on the feeling big time. The fog thing I always explain as a quite noise in my head, like my head just making a empty noise. I have had over 7 MRIs and 3 CAT scans in the last 3 years because I had a minor stroke that effected my cerebellum (According to neurologists defecates are permanent they don't come and go like this does so it did not cause this) But I have been to ER after ER because this gets intense some days it scares the crap out of me which I believe causes panic or anxiety attacks for sure.

Last time I was in I was told this might be peripheral vertigo and gave me Serc drug to combat the effects, 2 days later I felt my brain was going to go crazy, I felt an almost out of mind experience like my brain was trying to shut off. I stopped that drug instantly. So I am still let going "*** is wrong with me and why can't Drs figure it out" I go for a ear throat nose specialist soon and I am having my eyes checked next week just to start ruling some stuff out but I cannot believe how many people have this on the internet and no one has a clue what it is.

This only started after for me from taking an anti depression medication which was about the same i had the minor stroke. I have always blamed the stroke for how I felt till I was told this has nothing to do with the stroke. So now I feel like the real fun happy me is gone and has been replaced with this person that has to just concentrate to make it through the day. I feel like there is no real me, I try to go out with friends have a drink but it is so hard because I can't drink with this feeling it just makes it 10 times worse. Support is hard to find because no one understands how you feel.

Would love to fix this and become me again!

 
Old 06-15-2012, 10:41 AM   #11
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Re: Undiagnosed Dizziness

I had someone from these boards suggest "cervical vertigo." I believe it to be a good fit for my symptoms. I followed the treatments from a website and reduced symptoms. I no longer suffer with this on a daily basis-maybe once a month now and that could be attributed to reinjuring, swelling, stress... There are so many ways this can be brought on - not just accidents and falls. I believe mine was raking or sawing.

A doctor would never give me a dx since they continued to find more and more wrong with me and became obsessed with other findings. Each new specialist brought a nex dx but never addressed the original presenting symptoms, the ones that concerned me and effected my quality of life. The seem more interested in testing, imaging, and the quantity of it.

I know this is scary and stressful experience. I posted on several boards based on all symptoms and systems effected. (You might want to post in strokes just to see what others experience.) I was not dismissive with any ideas. I would rather know what is wrong with me and be unhappy about what that is than continue to sit and wonder. I researched any and all suggestions and in the end found the help I was looking for. Good luck to you in your search!

 
Old 06-15-2012, 11:02 AM   #12
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MrEvets HB User
Re: Undiagnosed Dizziness

Quote:
Originally Posted by bethcar View Post
A doctor would never give me a dx since they continued to find more and more wrong with me and became obsessed with other findings. Each new specialist brought a nex dx but never addressed the original presenting symptoms
That is so hilarious because every specialist has done the same for me, they want to know why the stroke happened, I'm like that is not why my Dr sent me to you! On Dr sent me for massage therapy because he seen that I slouched so lets fix that!!! I was like come on just look at the original problem. I know that somethings can be related and could cause but you just felt like no one was listening to you.

 
Old 06-16-2012, 02:11 AM   #13
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Re: Undiagnosed Dizziness

Hi i was reading your post too and i have similar problems. Read through the post on Peanutt121. I was given a name of some disease and i looked it up and i fit alot of the symptoms... you might find it interesting and maybe have your eyes checked by a specialist.. I have just begun that process i hope to be back to normal one day.
Peanutt121

 
Old 06-19-2012, 08:42 AM   #14
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Re: Undiagnosed Dizziness

All of these stories sound very similar to mine. Fo anyone interested, please look into verticle heterophoria. You will find answers. Malls, grocery stores, diving.....i couldnt do any of it. Until i got my glasses!!

 
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