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Old 06-20-2012, 10:59 AM   #16
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Re: Dizziness 3 yrs and counting.

I actually live in Vancouver, BC so Im not too sure about Nucca chiropractic in Fresno.
Apologies!
But try to find one. The manipulation is extremely gentle which is vital for us! It will alliviat that heavy head sort of brain fog feeling as well as the headaches.

 
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Old 06-20-2012, 07:38 PM   #17
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Re: Dizziness 3 yrs and counting.

what i did was printed out the information on the verticle heterophoria and took it into my ent and he sent me to an eye specialist that i spent over and hour doing different tests with him and i have 3 things wrong with my eyes. That Dr Deb from michigian called me after i took the online test she had and i talked to her for over an hour and she told me what kind of dr i needed and what tests to have done i am in the process now with the eye specialist and i have started to get a bit better i use the glasses for reading right now which is a big part of my job. I go bak in a couple weeks and hes going to do more.
good luck and contact me if you need.
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Old 07-13-2012, 02:06 PM   #18
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Re: Dizziness 3 yrs and counting.

I am not a doctor, but was recently diagnosed with Benign Paroxysmal Positional Vertigo(BPPV). This is the most common cause of dizziness, the problem is caused when small debris in the inner ear is dislodged and floats into the semicircular canal. My vertigo symptoms started after I had dental work performed and my initial thought was that I had a bad infection from that work. I suffered for 2 ½ months before being advised to see an ENT Specialist.
My symptoms were severe bed spins usually lasting 5-10 seconds when laying down for bed, rolling over, or rising from bed. I also feeling anxious, I had trouble focusing, headaches, tired eyes and complete fatigue. Some days were terrible and I never really felt stable.
I went to an ear & balance center located in central Florida. Was diagnosed, treated and cured in one visit. The treatment was performed using an Epley chair which basically is a chair that you get strapped into and slowly they spin you in many directions while they monitor your eye movement with special goggles. The goal is to reposition that debris into the correct area in your inner ear. I left the treatment that day dizzy so I would recommend a driver. The dizziness lasted another few hours and slowly cleared. I got a good night sleep (the first in months) and woke to a stable world. It has been three weeks since the treatment and I have had no reoccurring dizziness at all.
There are instructions on doing the Epley maneuver at home, but the ENT uses the Epley chair to confirm that you have BPPV before treatment and then a computer verifies that your condition is repaired by watching your eye movements. Many people who try to performe the Epley maneuver at home only make things worse.

 
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Old 08-09-2012, 09:27 AM   #19
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Re: Dizziness 3 yrs and counting.

lfanner, I've been reading your success with great interest. I too am from Canada and have experienced dizziness, headaches, etc for about 11 months. I ended up seeing Dr. Debby in Michigan who diagnosed me with vertical heterophoria. After putting on the prism lenses in the office I felt some improvement, but when I left and up to now (almost two weeks later) I feel disoriented/unsteady, sore eye muscles, ongoing facial pressure and just overall feeling yucky. I was told it would take about two weeks to get used to the glasses but I'm starting to wonder if my eyes are really the cause of the symptoms I'm experiencing. I was wondering if you could tell me how long it took you to get used to your glasses and what kind of "adjustment period" you went through? Your advice is greatly appreciated as I'm on the verge of giving up on these glasses

 
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Old 10-10-2012, 11:31 AM   #20
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Re: Dizziness 3 yrs and counting.

Hi peanutt121, it's been a few months since your last post - I was wondering if you ever got better after you started using the special glasses? Thank you!

 
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Old 11-04-2012, 01:34 PM   #21
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Re: Dizziness 3 yrs and counting.

Loneman,
Yes its been awhile since i have logged on and what has happen is that the glasses have helped with the headaches alot for awhile and now i am kinda back where i started again the dr i have is currently refusing to up the medication that is working for me and wants to change it to a different one and i have talked to the ear and the eye specialist about that drug and they both say its not going to help me. So i have been struggling each day to make it to work and do my daily tasks around the house and now i am being reffered over to a neurologist which i cant get into until january which is no help to me now. and they want to send me to vestibular therapy again. its not making me happy and i did however feel better for a time and that was great but now im back to being in the dumps again.
Peanutt121

 
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Old 05-09-2013, 09:37 PM   #22
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Re: Dizziness 3 yrs and counting.

I am giving an update just because. I went to see the neurologist that i was refered to and she did yet another MRI of my head this time the back lobe and again nothing was found to be wrong with my brain. The glasses dont seem to help like they did when i first started using them. The neurologist gave me a patch called scopamine which was helping however i was allergic first it was to be placed behind my ear, and it made my pupil on that side grow very large. So she told me to move it to the back of my neck and i ended up with 3 raised welts on my neck. Each time i put a patch on it got worse with the swelling on the neck. So i was taken off of that. Now i am stuck with no answers again. I still continue to have the dizziness and the feeling crappy all the time.... I have developed headaches that will linger all day long sometimes turning into Migrains where i see the aura around people when i look and it interfears with my vision. I continue to see the 3 specialists they have sent me to and they are all baffled as to where its coming from.
I have since lost my marriage he just didnt get why i couldnt go out drinking with him or other things and had a hard time functioning. so it became he did his thing and i struggle through my day trying to function and hold down my job. So i fineally just left. I currently still have my job that i am thankful for i cannot do any extra shifts or longer shifts than my 8 hours or i get really dizzy and end up being sick. I spend most of my time at my house because i feel safer there than being out. If i go to the store i have to have someone go with me to make sure i make it through the store. some mornings it is so hard to get out of the bed and walk as i walk into walls and trip over things. Long car trips are not very fun for me i usually end up having quite a bit of dizziness and the feeling of throwing up or passing out. My body is getting tired of fighting this and i cry alot. Depression medication is not working as well as it first did so i may have to have that switched to something better. I tend to get cold alot now i dont know what thats about.
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Old 05-11-2013, 05:19 PM   #23
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Re: Dizziness 3 yrs and counting.

I have been off balance and dizzy too, not exactly as yours but similar. I also have Cervical dystonia and severe bilateral TMJ with arthritis in jaw joints too, carpal tunnel as well.

I am 47, severe disequilibrium most all the time for 3 years. Prior to that it was similar, but not to the extreme of last 3 years.


Last brain MRI was 3 years when it got really bad, and when my TMJ dysfunction got severe also. I was diagnosed with cervical dystonia 2 years ago.

My disequilibrim causes me worse problems standing still, talking, and in shower, which is nightmare. Eyes closed or darkness and I have to walk like a 100 year old. I over and under reach everything, which is why doing tasks, is hard...I can get through doing things, but doing them with that much imbalance and dysfunction if you can relate at all.

I have had brief whirling episodes sitting or standing where I have to grab anything near to keep from falling, those pass quick, but the constant disequilibrium is always there. ANY fine detailed movement, or arms out reached or head and eye movement.

As said I could walk from point a to point B, better then standing still. I believe loneman here had very similar symtptoms as mine, but hes not been back.

Nothing against loneman, but kudos to you for coming back to update, even if its not good, but if someone else did find something, like loneman it could help others, and so thanks for coming back! If I ever find a fix for me I will do the same, after all these years its getting more and more depressing, trying to learn to live like this, which is not living is terrible. I no longer work due to all my diagnoses, I do not drive, I rarely go anywhere.....I used to work 2 jobs!

Escalaters heck no, malls, or anywhere alone, heck no.......I have tried to tell myself ( despite many diagnosis as described which can cause dizzyness ) that its anxiety, but the only problem with that is ..I had anxiety 24 years ago and it was nothing like this.

When I even think I can try and make myself believe that, I am constantly remonded THAT is not it, I wish it was....I could tackle THAT HEAD ON!

Last edited by moderator2; 06-09-2013 at 05:50 AM.

 
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Old 05-19-2013, 05:28 PM   #24
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Re: Dizziness 3 yrs and counting.

Hi Here4u2,
I been reading your last post and thinking about what you wrote. I dont know if you have read all of mine or not. I do have problems standing still at times...the shower i generally make sure that one arm is always touching the wall so that i can feel like i am grounded because closing my eyes makes me feel like i am falling. Mornings are the worst when my medication has worn off and i first get up i tend to have to hold on to things so i dont fall i have walked into walls and dressers and things...i have to make sure my floors are picked up as so i dont trip and fall. so yes i do relate to that. I take clonzapam and it seems to help with my dizziness i dont know if you have tried anything or not but i started out taking half a .5 mg pill once a day and increased as i went along till i got to a stable dose that allows me to function more normally. I am also now being tested on another pill that has to do with migraines to see if i can come off that pill and be on one thats not as addicting.
The whirling episodes you describe ...yes i get those... they are very brief and they totally catch you off guard suddenly you have to stop whatever your doing and wait till it stops. Strangest feeling ever that passes quickly usually. I have never had one last for more than approx 30 seconds. I am constantly off balance i call it the feeling of being half drunk.
One of the things that i noticed is i cannot walk down the center of a hallway i always am next to the wall. The eye dr is constantly having me walk down the middle and i always end up next to the wall and the end of the hall so i dont walk a straight line.
I also have the mall and store problems as you do and you are not alone. I have notice that when i am there i will tend to move slower the longer im there and im trying hard to take my kids where they want to go but all the people and the stimulation going on makes it hard for me and when people get behind me i end up stopping to let them pass i cant have them so close behind me.
Peanutt121

 
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Old 06-07-2013, 05:49 PM   #25
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Re: Dizziness 3 yrs and counting.

I am wondering if any of you have tried Verapamil! I was diagnosed with Basilar migraines well over a year ago. My symptoms were constant aura, flashing lights, afterimages, static and an ongoing migraine. The migraines would cause a steady feeling of being off balance when they hit. I worked on a computer for 8 hours a day 5 days a week. I suffered for well over a year before finding a great Migraine Dr. at a university. I was diagnosed and given Verapamil. Within a few weeks migraines got less and less. Then one day the burning I felt on the top of my head since I was a child was gone and so were the migraines. I am no longer on the med and still have the constant aura, which is rare, but I am fine. I was diagnosed with bilateral damage to my inner ear and have been doing vestibular rehab. I have good days and bad, but know that just sitting around waiting for an answer didn't help. I had and have to be proactive. Keep doing your VRT while you search for answers, please! It can takes months and months to feel better. I have really good weeks and have found that too much computer work really sets me off with feeling off balance. But Verapamil was a GOD SEND!

 
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Old 06-09-2013, 05:27 AM   #26
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Re: Dizziness 3 yrs and counting.

Here4u2, an update from me - I actually did go an see the doctor in Michigan in Decembers, but the prizm glasses didn't help me at all. Since then, I've just been trying to take better care of myself. I've been going by the "perfect health diet" book, which is basically not only a gluten-free, but a grain-free diet. It's been about 6 months and I can say that I feel better overall. My so-called dizziness is still there, but I have to say that my symptoms were never as severe as what Peanutt121 or Here4u2 have been describing. I haven't given up on anything and for the most part able to function normally - still not the same as I used to be (4 years ago before it all started) - but nonetheless. I'll give this diet some more time. I've lost some weight and just feel healthier. If nothing else, it can't hurt. The next thing I want to pursue is POTS. At least in my case, I feel like it's some kind of a blood flow issue - my symptoms surface only when I stand up/walk, so perhaps it's something worth looking into. I'll keep you posted. Thanks all and take care.

Last edited by moderator2; 06-09-2013 at 05:48 AM.

 
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Old 07-05-2013, 08:38 PM   #27
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Re: Dizziness 3 yrs and counting.

Here4u2,
Hi well i have a bit of good news i have been seeing a neurologist and she has started me on a pill called topiramate for headaches. which she told me when i described a bad day i sounded like i was discribing a migraine person. She also told me that there is migraine headaches that dont hurt. which kinda suprised me but i do get headaches too and some of them will stick around all day. So any way i started out on 25 mg of the topiramate and i was to work up to 100 mg and then see how i feel. Well i have not been having much dizziness at all atleast not enough to complain about which is a good thing i still take things slow and take care of myself and the neurologist wants to eventually try to wean me off the clonzepam and see how i do. Its so exciting to not be dizzy all the time and to have those episodes where i have to stop everything i am doing to get my berings straight. I will update further and check in another time .
Peanutt121

 
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Old 07-08-2013, 09:39 AM   #28
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Thumbs up Re: Dizziness 3 yrs and counting.

I have the same thing, but I have been in Balance Therapy for over a year! It really helps. It teaches the brain to right it self. It's a slow process, I don't think I'll ever not be dizzy, but the therapy sure does help. I hope this helps.

 
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Old 07-10-2013, 03:20 PM   #29
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Re: Dizziness 3 yrs and counting.

Peanutt, please keep us updated on how you are doing.
I just read your first and last post, and your off balance symptoms are exactly what I had and the source of this problem was overlooked by numerous doctors.
When all tests come out fine, this should really be looked into, as it is easily fixed and most often overlooked.
My problem was coming from the muscles in my upper back and neck.
These had tightened up and the knots were putting pressure on the blood vessels affecting the oxygen to my head, so I was off balance and fog headed almost 24/7.
I had no pain and many people don't, so this is easily missed, yet a common problem.
When it was finally found ( by ME ) when I went to rub my shoulder blade and found it to be hard as a rock, so when I squeezed it, I got very dizzy with pressure in my head.
I called and asked to be sent to PT, where they did counter strain on me, a very gentle therapy ( not exercises as these make it worse ).
I only know to do this because I had this same problem years ago after receiving whiplash in a car accident and was sent to PT at that time with the same symptoms.
I was told by the therapist at that time that any over use in the future of these muscles, can cause this problem to come on again, and I have been back to therapy a few times, but it works very quickly, and I atleast feel " normal " again and not fog headed and out of it and off balance.
I hope this helps and you find complete relief. Good luck to you

 
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