Hi all this is my first time posting here and i have been reading some of the posts. Its very interesting to hear what everyone has to say and how they are doing with the dizziness.
I am a 42 yr old female who has had dizziness 24\7 for the last 3 yrs and counting. They still havent figured out what is wrong with me i have and all sorts of tests like Mri of my brain and neck, ultrasound of all the arteries and veins in my neck and head looking for something clogged. I have had the god awful ear test done where they put water in your ears and you watch a stupid light bounce around on some dumb bar. My hearing test comes out perfect every time i hear just fine. The ear test with the water witch is looking for bppv comes out the same everytime...with bppv when your head is tilted back you will have rapid eye movement that will begin to jiggle back and forth and then stop...mine just keeps on going and they dont know why.
I dont have the type of dizziness associated with the bppv that would have more to do with positioning of the head which i have had in the past.
At this point i have a constant feeling of being off balance all the time and i feel as though i could fall at any moment. Sometimes when i walk around i have what feels like my head is going to drop to the floor at any moment behind me and i will be on the ground. My vision gets what i call a fog look to it where i can see things clearly but theres a fog infront of it which is very odd feeling.
I can no longer go into the stores especially for long amounts of time the stimulation in the store is incredible i barely make it down 3 isle and im ready to be out. The bigger the store the less distance i can go. I get the neasous feeling and i feel like im really sick and my head starts to hurt from everything going on around me.
The Mall is a definite no no for me there are way too many pple walking by and they are traveling at different rates of speed and all different directions and the floors in the mall are very shiny and i will start walking and next thing i know im practically hugging the wall to stay upright, so i no longer walk the mall which i used to love to do.
So vertigo also doesnt mix with high places i went to a baseball game one time and had these seats really high up and i thought i was going to die up there and i kept thinking that others were going to fall down. Yeah i no longer go to baseball games.
I went for about a year with out driving and had to take taxi to work because the bus was just too unbearable with the bouncing and all the stops and stuff. I have been put on clonazepam for the dizziness which has helped to a certain degree it has never taken it all away. But i can now drive my car to work and back and a few places around town. Just riding in the car long distance makes me feel sick and i have a hard time so i try to sleep or close my eyes and hope for the best if i have to travel long distance with someone else driving.
I manage to hold down my job at this point because i know exactly what i am to do each night and the nurses that work around me know when i am having a bad day and will make sure to watch me and make me stay sitting as much as possible on those days so they are a great bunch to be around. They all know what i have and they have seen me go into an episode while just standing there talking to them and it scares the crap outta them because they dont know what to do with me either. I tell them it will pass and i sit down and wait. most times it passes if it doesnt i am sent home.
So i am at a loss of what to do anymore i have done too many tests and im exhausted all the time i am told that my brain works twice as hard to compensate for the off balance which causese fatigue, eye pain and my newest developement is the headaches on a daily basis. I wake up in the morning and say good morning headache how nice to see you again. Lets see how you will treat me today will we manage to have a good day or a bad one and are the pills going to work today or am i screwed for the day.