Good afternoon everyone. Will try to make this short as dizzyness may take over at a moment's notice.
2 episodes of debilating vertigo 16 years apart. First one at 25. This past one being this summer at age 41. I have a few health issues but am in generally good health. I take medication for depression/anxiety (same meds for 10 years), oral medication for acne (same meds for 7 years) and synthroid for nearly a year now.
The last episode in June/July landed me in the hospital and 3 visits to a wonderful group of specialists in Michigan. The Epley was done 3 times in a row during one visit with no success. According to the Dr. the crystals were simply "stuck". I did a short term dose of prednisone and I was good to go. In his opinion since it was so severe he felt that I should be symtom free for another 10-15 years. Of course this was just an opinion but man did I hold onto it.
Now it's 4 weeks later and the dizzys came back again. Only this time they aren't the vertigo spins. It's a dizzy/unsteady/jumpy eyes type of feeling when I walk. I can drive, work, read and everything else fairly well. It's walking where I'm having a hard time. I feel like I'm on a trampoline. It's the oddest thing.
I have been taking sudafed thinking maybe it's a sinus issue. I'm taking motrin because I have a chronic headache (I think that's from my 2 teenage kids...)
Has anyone ever heard of vertigo recovery and then sometime later getting a different form of dizzy again?
Do you get migraine headaches? Has your doctor considered testing your for allergies? I do believe you can recover from vertigo! I had my first attack 10 years ago, driving home from work one night and turned my head to change lanes and instantly, the room started spinning! Many doctor visits, ENT, Neurologists, a few months of PT later, they treated me for BPPV, but truthfully I didn't feel a lot different after the Epley maneuver. Then my Neorologist thought I had MAV, I am wondering if this may be the case with you>? I have not(knock on wood) had another room spinning attack in 5 years. I occasionally get that stuffy clouded head thing at times, but I have seasonal allergies and the appropriate antihistamine/decongestant helps. Good luck and let us know how you are doing.
Thank you for responding.
I don't believe that I get migranes, although I do get headaches. Perhaps I am not recognizing them as migranes.
Lately it hasn't been the room spinning type of dizzyness as the stuffy, clouded head, walking funny type of dizzyness. I'm trying to remain as active as possible whereas when the vertigo hit earlier this summer I retired to my bed and didn't leave. I am hoping that staying active and trying to fight through this will help me recover quicker.
Did your Neurologist give you any medication or help with a way to prevent and/or recover when you feel that dizzy feeling?
Any help and suggestions are most appreciated.
I too have started to have problems with vertigo. I was blaming it on the beta blockers that I take but after reading more about it I am not sure anymore. I sitting at a desk one day last week and a few minutes after getting up I felt like I was walking on a trampoline. It felt so bad that I sat down right away and afraid that I was going to pass out. I felt fine after I sat down but the moment I got up I started to feel it again. I had not thought about it but now that Aspie mom brought it up, I don’t feel dizzy when I drive and it seems worse when I walk outside in the sun. I have taken Gatorade and plenty of water because I’ve read that dehydration can be the cause of it but it has not worked. I’ve felt ear pressure in my right ear but have also suffered from neck pains which cause headaches and electrical “shocks” all over my head. Again, it probably is the beta blocker medicine but not for the vertigo. It has been almost a week now where I feel this way every time I walk. My co-workers have commented that I look tired and “out-of-it” this past week. I am now even afraid to get out of my chair at work and after work, I come home straight to bed since being in bed brings some relief. I find comfort in knowing that I am not alone in feeling like this although I feel bad for those whose suffer like me because I know what they are going through.
Believe it or not, I didn't realize I had migraines either, but I do get headaches that if I don't take antihistamine and go to sleep, I will get nauseous and throw up. My neurologist gave me Meclazine and this antidepressant called Paxil. Neither was helpful, the Paxil gave me anxiety attacks that seriously took me a year to get rid of that awful feeling of panic. The neurologist also wanted me to try accupuncture, which I was too afraid to try. Maybe I should have, I don't know. She also said that it could be crystals that get loose in your inner ear and need to be resolved. I did 3 months of PT, then I started yoga and a walking program, and stopped lifting weights. Pretty soon, my neck and back felt better and no more room spinning dizzy spells(knock on wood!)
When you say you feel like you are walking funny, do you feel like you have a hard time standing up straight? Because if so, that's the weird feeling I had after I got over the room spinning dizzy spells. This along with cloudy, fuzzy headedness. Which is when I went for allergy testing and the antihistamine seems to be helping.
I think you're smart to keep active, in case there is something to that crystal theory. Have you had the inner ear testing done?
I had gone to a group of specialists in my area. They are neurotologists. They specialize in balance and vestibular issues. Thank goodness I found them by chance.
I have had the Epley manuever performed on me several times. I'm never sure if it even works. I never have that instaneous feeling of relief that people often describe.
I think what helped me most in both cases of the 'big ones' as I refer to those episodes as were the steroids. There must have been some inflamation or swelling in my ear that was trapping the particles and causing me the continual dizzyness.
I am grateful that the room is no longer spinning as that may possibly be the worst feeling ever. I wonder if headaches and sinus issues are at the root of my fuzzy head, off balance type of feeling. I usually have some sort of headache and nasal drainage, even if slight. Maybe an antihistine would help me.
Yeah, Thank goodness you found that group of neuro-otologists alright! When this happened to me it was 10 years ago and I don't even think they had such a thing LOL. I was also sent to the ENT and that's who figured out the allergy and inner ear problems. Like you said, I am also grateful that I haven't had the kind of attacks like those at the beginning, whether it was the treatment for BPPV, sinus problems or whatever, the PT did say I have a bad back and neck and to always keep moving and exercizing and so far it seems to work. I hope the best for you, I hope you find some answers and relief soon.