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Old 09-06-2012, 06:19 AM   #1
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Persistent unsteadiness

I've been suffering with unsteadiness on my feet for over 3 years now. The best way I can describe it is something similar to what you feel like right after you get off a treadmill and for a few minutes it just feels weird as your legs try to recover from moving, except in my case it's more apparent. I also noticed that it's a lot worse for at the end of a day of sitting all day at work in front of a computer. I try to take frequent breaks, stretch, etc, and as it helps a little bit, it's still pretty bad towards the end of a day and then I feel more or less fine again in the morning. It also gets worse in certain situations, like when I slowly (rocking) in crowded places or even when I chat to someone standing face to face. I also have a few other symptoms, like occasional pressure in my temples, weird pressure in my throat and/or jaw and just overall malaise/discomfort, some minor visual issues. While all other symptoms come and go this unsteadiness is there pretty much every day.
I've seen many doctors, had normal MRI of the brain, thyroid sonogram, heart tests, blood work, nerve conduction tests, heavy metal exposure tests, vitamin levels, all normal. I don't take any medications, don't smoke, don't do drugs and drink several glasses of wine a week. The last neuorologist sent me to PT for balance training. I ace all the exercises - can stand on one foot with my eyes closed, stand on a balance balloon and play catch with a ball, etc.
It almost feels like some kind of a circulation problem to me but I'm not sure what to think anymore. I also want to have MRIs of my back and neck done to make sure nothing's wrong there, although I do not have any pain or numbness anywhere. Otherwise I'm out of ideas. Anyone have any thoughts? Thanks in advance.

 
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Old 09-06-2012, 06:09 PM   #2
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Re: Persistent unsteadiness

Have you had the vestibular testing done? Do you have allergies?

 
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Old 09-07-2012, 02:49 AM   #3
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Re: Persistent unsteadiness

Hi rufous57 - yes, I've seen 2 different ENTs and had a hearing test, VAT and ENG. There were some minor abnormalilities in VAT and ENG but the doctor didn't seem concerned - specifically in ENG there were some saccade and gaze values out of range, but again very minor. I was also tested for food allergies - all negative.

 
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Old 09-10-2012, 03:34 PM   #4
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Re: Persistent unsteadiness

Do you feel you eyes are quite over worked during the day?
Any issues with the grovery store or large spaces?

You might want to look into something called 'verticle heterophoria"

 
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Old 09-17-2012, 06:56 AM   #5
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Re: Persistent unsteadiness

Hi lfanner, yes, I actually do feel a lot worse in grocery stores - it's like I have to make an effort to keep steady when I walk down an aisle. Just recently after a day of shopping my joints in the knees were hurting badly and I know it's because of the additional effort I had to make to keep my balance. The person I was shopping with even asked me why I was limping. I feel much better when I'm looking far ahead or in an open space actually. Vertical heterophoria does sound promising, however I can't seem to find a lot information about it. A couple of years ago during my regular eye exam the doctor did say I may have some kind of a disparity between my eyes. One other thing I have is kind of a shimmering vision when I look at certain patterns - like window shades or just busy patterns. That would make sense to me. Please let me know if you have a good source of information about this. Thank you!

 
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Old 09-17-2012, 07:06 AM   #6
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Re: Persistent unsteadiness

There are two eye specialists that test for this disorder. The first is in Birmingham, Michigan which should come up in a google search. There is substantial information on the website. The second is a doctor is in Fresno, California.
Where do you live?

The basic idea is that your eyes are not level and therfore see things at different levels.
This in turn makes you feel off balance all the time.

Let me know if you have anymore questions.

Laurelle

 
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Old 09-22-2012, 08:41 PM   #7
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Re: Persistent unsteadiness

Have you had any dental work? Any accidents? I would see a dentist. I had a long dental procedure, 2 days later woke up spinning/vertigo. Saw all the Dr's you did, vestibular therapy, the whole bit. One year later, turns out, I have TMJD. I am still dizzy & off balance, no true vertigo/spinning, still have tinnitus, visual disturbances, etc. At least I do not have TMJ pain. My neck muscles, Sternocleidomastoids, (SCM) were strained in the dental surgery. Those muscles have nerves in them, which will cause the visual issues. Strained SCM's will cause balance problems, & TMJD will cause the SCM's to be strained. A vicious cycle! Just curious, how did they test you for mercury poisoning? Is it a blood test? Check out the TMJ board, see if anything seems familar.

Geneva

 
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Old 09-24-2012, 06:53 AM   #8
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Re: Persistent unsteadiness

Hi Geneva1, thanks for your response - I considered TMJD as well since I do have dull pain/discomfort occasionally in my jaw and I also sometimes have this clicking when moving it, however I didn't have any dental work done prior to all this. My neuorologist doesn't think it would cause any balance issues anyway, although I have read some posts here saying otherwise, but I guess I should look into it more..

 
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Old 09-24-2012, 07:31 AM   #9
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Re: Persistent unsteadiness

My Neurologist & PCP said the same thing. They do not believe my disequilibrium has anything to do with TMJD. Yet I am still off balance. Do you clench your teeth at night? If you have clicking in your jaw, I would definitely check it out. The jaw affects your neck (Sternocleidomastoids), & your neck affects your balance. That is my problem. It has taken me a year of running from Dr to Dr. My physical therapist & I eventually figured it out. I'm 3 months into a tmj splint, having CranialSacral & trigger point Therapy. It is slow going, but I'm hoping for positive results. I am starting to have better days. This has all been a nightmare! I hope you find some relief & answers soon! Dizziness disrupts your whole life, & Dr's try to blame it all on anxiety. My anxiety came AFTER the dizziness, not before. Go figure.

Geneva

 
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Old 09-24-2012, 07:40 AM   #10
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Re: Persistent unsteadiness

Yep - I know exactly what you mean - I was as happy as can be before the dizziness started. Hard not to be anxious when you're expecting to fall all the time. At least my current neuro doesn't think it's all in my head. I'll definitely bring this up with my dentist though.

 
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Old 02-25-2013, 09:02 PM   #11
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Re: Persistent unsteadiness

Loneman, I have had dysequilibrium for 3 years now, I also have cervical dystonia, sustained fixed tilt to my neck, SCM muscles hypertonic ( hard as a rock all the way down ) Tinitus that goes from low hiss to high pitched ringing lasting hours and even at times roaring and sunction feeling in ears, severe TMJ disease my mouth barely opens in morning, and even licking my lips causes loud clicking, its called a closed lock.

I also had a VNG years ago that said there there right sided weakness in my ear on the caloric test ( I wasn't as bad then as I am now.

Here are my major issues with my dizzy situation.

I can walk from point A to point B if I walk fast ( hard to do at times due a sacroiliac dysfunction ) Yes, got issues all over, bilateral carpal tunnel syndrome as well diagnosed by ENG.

Walking in dark, is horrific, I need my eyes to maintain my balance, as said if walking with eyes open from point A to point B, I do pretty well as long as I keep my HEAD still. I am not sure how much I have accommodated myself since the start of this.

Standing STILL anywhere, with or withour head movement is a NIGHTMARE I feel as if I am rocking and swaying and like you I GRIP my feet and legs to the ground to keep my balance.

Taking a shower is horrible, when I wash my face, the movement or pushing on my spine from the pressure of washing my face makes me FALL over, I have to hold the wall, stand with my feet apart the whole time like an invalid and I am 47 years old.

Putting on my makeup, all eye and head movement, is way off, I over shoot and under shoot, also while standing while cooking, making a plate, I am 100% miserable with all of this, I dry every night not knowing how much longer I can live this way. I have some other issues too, PVC's fast heart rate, 95- 107 standing still, sitting it can also be 95- 100. I was said to have had a heart attack in 2008, have not had my heart checked since, but I am not FAINT weak type dizzy, today I was with tachycardia, but I know the difference and as said mostly it is a constant dysequilibrium, but if I sit and don't move head or eyes its not too bad, its when I try to do things, like STAND, talk to anyone, and as described above, but I do have those times while sitting and move my head a certain way, and I am grabbing the air to hang on like i am falling .


I had an MRI 3 years ago, it was normal. I also had an episode right after dental work, matter of fact that is when my jaw locked up and went crazy, but I had some issues before that, that dental work just finsihed that part off, but 3 weeks after the dental work my right said of face went dead numb, temple to right at mouth line, NOT the chin area, and it finally came back to life slowly but took a good month and a half, that is why they did the MRI of brain and said it was normal, but my dysequilibrium symptoms don;t mesh with everything out there, so I am worried on top of all going on and trying to deal with this.

I am not able to work, and I used to work 2 jobs at once for 10 years, prior to that just one full time job, I now have SS disability and will not get medicare rights till next month, but when I do I will be able to go to all the Doctors and hear the same things I am reading online..........

I just want another MRI and a CT SCAN, bone shows best on CT and tissue and vasculature best on MRI ( I am highly literate and was in medical field myself, so its hard to wait for tests I know i need and say try this med or that med, been there and done it............can anyone relate to any of these symtpoms where the dysequilibrium is, while I am not spinning, my feeling of dysequilibrium is constant at times as described above and over shooting and under shooting all, matter of fact forgot to mention when I reach arms in front of me to do something also much worse ! WHY WHY WHY

 
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Old 07-27-2013, 12:59 PM   #12
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Re: Persistent unsteadiness

Quote:
Originally Posted by loneman View Post
I've been suffering with unsteadiness on my feet for over 3 years now. The best way I can describe it is something similar to what you feel like right after you get off a treadmill and for a few minutes it just feels weird as your legs try to recover from moving, except in my case it's more apparent. I also noticed that it's a lot worse for at the end of a day of sitting all day at work in front of a computer. I try to take frequent breaks, stretch, etc, and as it helps a little bit, it's still pretty bad towards the end of a day and then I feel more or less fine again in the morning. It also gets worse in certain situations, like when I slowly (rocking) in crowded places or even when I chat to someone standing face to face. I also have a few other symptoms, like occasional pressure in my temples, weird pressure in my throat and/or jaw and just overall malaise/discomfort, some minor visual issues. While all other symptoms come and go this unsteadiness is there pretty much every day.
I've seen many doctors, had normal MRI of the brain, thyroid sonogram, heart tests, blood work, nerve conduction tests, heavy metal exposure tests, vitamin levels, all normal. I don't take any medications, don't smoke, don't do drugs and drink several glasses of wine a week. The last neuorologist sent me to PT for balance training. I ace all the exercises - can stand on one foot with my eyes closed, stand on a balance balloon and play catch with a ball, etc.
It almost feels like some kind of a circulation problem to me but I'm not sure what to think anymore. I also want to have MRIs of my back and neck done to make sure nothing's wrong there, although I do not have any pain or numbness anywhere. Otherwise I'm out of ideas. Anyone have any thoughts? Thanks in advance.
I suffer from nearly the exact same thing, I have been to 29 specialist, and had more test than I care to write about, Can you tell me if you ever found what the cause is or was? Thanks in advance for your time.

Sincerely
E.Taylor

 
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Old 11-01-2013, 11:59 AM   #13
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Re: Persistent unsteadiness

Quote:
Originally Posted by loneman View Post
I've been suffering with unsteadiness on my feet for over 3 years now. The best way I can describe it is something similar to what you feel like right after you get off a treadmill and for a few minutes it just feels weird as your legs try to recover from moving, except in my case it's more apparent. I also noticed that it's a lot worse for at the end of a day of sitting all day at work in front of a computer. I try to take frequent breaks, stretch, etc, and as it helps a little bit, it's still pretty bad towards the end of a day and then I feel more or less fine again in the morning. It also gets worse in certain situations, like when I slowly (rocking) in crowded places or even when I chat to someone standing face to face. I also have a few other symptoms, like occasional pressure in my temples, weird pressure in my throat and/or jaw and just overall malaise/discomfort, some minor visual issues. While all other symptoms come and go this unsteadiness is there pretty much every day.
I've seen many doctors, had normal MRI of the brain, thyroid sonogram, heart tests, blood work, nerve conduction tests, heavy metal exposure tests, vitamin levels, all normal. I don't take any medications, don't smoke, don't do drugs and drink several glasses of wine a week. The last neuorologist sent me to PT for balance training. I ace all the exercises - can stand on one foot with my eyes closed, stand on a balance balloon and play catch with a ball, etc.
It almost feels like some kind of a circulation problem to me but I'm not sure what to think anymore. I also want to have MRIs of my back and neck done to make sure nothing's wrong there, although I do not have any pain or numbness anywhere. Otherwise I'm out of ideas. Anyone have any thoughts? Thanks in advance.
bro im on a very similar boat... has anything helped?

Last doctor i went to siad it was anxiety... a pychatrist siad it was depression?

 
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Old 11-01-2013, 12:04 PM   #14
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Re: Persistent unsteadiness

I do have this sensation on my left face that feels strange, its not numb... it comes and goes.. when it does come it causes a very low ringing in my left ear and very little discomfort in my left ear... i wonder if it has to do with my uppper left wisdom tooth that has grown out.... i push down on the wisdom tooth but have no pain so i doubt there is a connection there... i been told in the past that my jaw is not straight... idk what to say of my problems but i feel that they came out of nowhere.

 
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Old 11-01-2013, 01:39 PM   #15
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Re: Persistent unsteadiness

another thing want to add is getting a mri of neck and spine... if it still looks ok u should get a Cervical spine adjustments by a chiropractor and see if that helps.. could be something there they are missing.

let me know if that helped u.

Last edited by Boots1967; 11-01-2013 at 01:40 PM.

 
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