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Dizziness / Vertigo Message Board
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Old 03-09-2013, 05:03 PM   #1
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Beachchaser HB User
BPPV - The Never Ending Story

Hi
Wanted to get a dialogue going about BPPV that isn't going way. Long story short, I was diagnosed with BPPV about 15 years ago. I had it on and off for months and eventually it just went way (no Epley maneuver was performed).

Fast forward to the present and I've had BPPV symptoms for the last 8 months solid and on and off for the last two years. I've had the Epley maneuver performed by two different ENT's to no resolve. I've had balance tests done that indicate damage to my left ear (my "bad" side).

I'm now seeing a vestibular rehabilitation therapist who has performed several Epley's. Most recently I had a week of reprieve from symptoms. But, when I bent down to pick something up, vertigo...again. So I have balance exercises to do at home, plus the Epley to do every day.

Anyone else out there suffering with this?? I would love to commiserate and exchange thoughts, ideas. Need to keep my hopes up that this can and will be resolved. It's absolutely miserable and effects every aspect of my life.

Thank you.

 
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Old 03-19-2013, 02:55 PM   #2
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Re: BPPV - The Never Ending Story

Hi Beachchaser, I only recently joined the forum but I am having similar problems, so as to identify with you I'll tell you what happpened to me. I was at a sales meeting 4 weeks ago. I had been suffering from an upper respiratory infection and my doctor had given me levoflaxocin (generic for levoquin) a quinolone anitibiotic, which I had never tried before. I took it for 3 days and was at a dinner with food and drink (beer) and I got very unbalanced. I thought it was the anitibiotic because it says on a big ref tape on the vial that it can cause dizziness and be be enhanced with alcohol. So i figured no big deal. I finished the antibiotics that saturday which was four weeks ago and I'm still loopy. It's a head or head and body turn mostly or suddenly looking or changing direction.

This is very scary to me as I had an uncle with Parkinson's. I though I might have Bppv but I don't have the nystagmus they say always accompany's it. I had a brain CT scan, Ekg, bloodwork and am scheduled for an EEG test. I'm over 55 now but a top ranked tennis player in my state. Right now I can't even walk on the court. The doctor gave me a script for meclazine yesterday but I've only just started taking it. Let me know what happens with your vestibular rehab therapy and how you progress.
All the best wishes.

 
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Old 03-19-2013, 03:20 PM   #3
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Cool Re: BPPV - The Never Ending Story

Hi -
Has your doctor mentioned Menieres to you? Or Labyrinthitis? Have they done and MRI?

My therapy is over for now with no resolve. There's only so much they can do. Next stop a neurologist who specializes in vestibular issues. Perhaps I have vestibular migraines (sans the migraine part, thankfully). VM can present with BPPV.

The specialist is booked out months in advance so it will be a while before I get any answers. In the mean time, I just get through it day by day. I have good days and bad days.

If it's any consolation, I can empathize with your misery! Living with vertigo and dizziness is awful. I just keep reminding myself that there are worse things to have to live with and that keeps me moving forward.

Anyway, let me know when you find out what the issue is.

Good luck and hope you're back on the courts soon!

Last edited by Administrator; 03-20-2013 at 01:33 AM.

 
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Old 03-20-2013, 04:11 PM   #4
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Beachchaser HB User
Re: BPPV - The Never Ending Story

Hi -
Has your doctor mentioned Menieres to you? Or Labyrinthitis?

My therapy is over for now with no resolve. There's only so much they can do. Next stop a neurologist who specializes in vestibular issues. Perhaps I have vestibular migraines (sans the migraine part, thankfully). VM can present with BPPV.

The specialist is booked out months in advance so it will be a while before I get any answers. In the mean time, I just get through it day by day. I have good days and bad days.

If it's any consolation, I can empathize with your misery! Living with vertigo and dizziness is awful. I just keep reminding myself that there are worse things to have to live with and that keeps me moving forward.

Good luck to you.

 
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Old 03-24-2013, 05:46 AM   #5
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Re: BPPV - The Never Ending Story

Hi,
I went to a neurologist. She thinks based on what I told her about it coming on after an upper respiratory infection, it could be bppv. I don't have nystagmus and there's no room spinning though. I've got to go back next week for an EEG sleep test. I went back to my personal doctor and I could only get in to see his PA as he stays so booked up. She gave me a script for Meclazine, a vertigo medicine and it seemed to help. I've also started taking generic xanax at night to sleep. I got a good nights sleep last night but woke up yawning and tired. Let's continue to update each other on progress.
All the best to you.

 
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Old 03-24-2013, 05:52 AM   #6
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ronmon13 HB User
Re: BPPV - The Never Ending Story

By the way, my problem seems to be on the left side as well. So far no one has mentioned anything about Menieres or Labyrinthitis. Next step could be an ENT.

 
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