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Old 08-22-2006, 08:30 PM   #1
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Join Date: Aug 2006
Location: Gainesville, FL
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walterray HB User
Unintended weight loss in DS adult.......

Please help (if you can)!

My fun loving, healthy, energetic, happy, 60 year old down syndrome brother is anything but these days, and I'm desperately seeking advice -- and or help concerning the unexplained and unintended weight loss that he's experiencing. He weighed 121 lbs. yesterday morning, down from 145 in May of this year, and he eats everything in sight (as always). He is tired and will sleep -- or lie in bed all day if not encouraged to get up, and will go back to bed early afternoon and stay there for 12 or more hours if left alone. This is the same fellow that just a few months back, was up and about 18 hours a day, since he was a child.

His doctors at Shands (Univ. of Florida in Gainesville) have done every test you can imagine, all the obvious (and some not so), and everything is coming back normal. Of course, at this rate (8 lbs a month) -- there won't be much left of his 5' frame for them to check, as we can already count his ribs from across the room, and with his skin being so white, except for his stomach and chest (which has turned very brown) he looks like the walking dead.

I would also like to add that my brother is also experiencing another first in his life, and that is low blood pressure, since this all started in May of this year (runs from 85/45 to 95/55).

As for changes in his life, the only thing that has changed this year is our move into a new house (which he loves) -- and the loss of his job, due to his illness, that he really enjoyed -- and loved.

Do these symptoms ring a bell with anyone?

Thanks a million for any advice that may help!

 
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