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Old 09-08-2006, 10:14 AM   #1
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angelique5 HB User
Anyone with DUAL diagnoses?

My son Jared is 13 now... he has MOSAIC down syndrome... meaning, some of his cells are NORMAL 46 chromosome cells. When he was a baby, the doctors all said because he was mosaic, he'd be higher functioning...

this has not been the case.


Around 5th grade, he had a GREAT teacher...she had a daughter with Down's, and has taught probably a hundred children with down's in all her years of special education. She finally came to me, and said there has to be SOMETHING ELSE wrong with Jared. Her students with full down's were reading, and doing basic math, basic spelling... Jared was doing NONE of that.
I tried going to my HMO..waited MONTHS for specialist, at that time, everyone was thinking ADD..... i finally get to the specialist, who does NOT examine him...just asks me if I want to try meds...??? She actually said to me, "what good would another diagnosis do him??" sigh...

So now, at 13, and in 8th grade... he's still very behind academically...no reading, can copy entiire paragraphs, but he has no idea what he's writing... he was taught a 'trick' (touch math) to do basic addition...and he's finally learning a few simple 3 letter type words...

One parent I talked with once... said her down's child also had a Asperger's syndrome...but it was all figured out so late in the game, they didn't pursue it, her son was already in his last semester of high school...

Anyone have a down's child with some other diagnosis??? How do you get someone to look BEYOND the down's to try to figure out if something else is going on.... I really don't want to adopt the "what good would another diagnosis do him " attitude....

 
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