My name is above. I have digeorge syndrome. I"m 35 yrs old. My illness was diagnosed after the birth of my dahghter in July 1999.They thought she had down syndrome. The genetics department had tested my son and I. My kids and I get ear infections. My daugter who is 7 years old has had heart surgery and asthma. My son has ADH and he is 11 years old. I am wondering if anyone else out there has this diesease and how they are coping with it. I have tried looking this up on the internet but don't find to much information. If anyone can help me with some information on this matter please do so with a reply. The only feature I have from this is small ears, and I am wondering if anyone else out there with this has any other effects?
