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Old 06-12-2008, 11:01 PM   #1
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dsp63 HB User
3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

This is my first post and I am hoping to hear from some one with similar issues. My daughter is 3 years old and has down syndrome. She has had a total of 9 surgeries, some major, some not so major. Right now I cannot think of a month that we have not had at least one doctors appointment. What I am wondering is, if there is anyone who has a D.S. child who has had nissen fundoplication surgery for acid reflux disease not just once, but twice? There are some other medical issues that i would like to discuss also, like sinus infections, eyesight, eating issues as well as hyperactivity and/or behavior issues. Some replies would be greatly appreciated.

 
Old 06-13-2008, 12:28 PM   #2
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Re: 3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

Hello, I have a 12 year old daughter with Down Syndrome and would love to help if I can. I have no experience with the surgery you mentioned. My daughter had to have open heart surgery at 5 mths. We have had other surgeries with numerous infections over the years. Please post any questions you have. I can't say I have many answers as we still are battling behaviors but my daughter also has many sensory problems along with autistic like behaviors. These things weren't diagnosed until the last few years which was very upsetting since I had been pushing that something more was going on for quite awhile.

 
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Old 08-10-2008, 12:48 PM   #3
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Re: 3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

My 11 yearold needs to have the fundo redone she also has other GI issues.Don't really know what to think about redoing it but her reflux is causing apnea-again.

 
Old 09-09-2008, 06:19 PM   #4
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Re: 3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

Hi, my son is 6 and has DS. He has reflux and the surgery has been discussed but has not been done. He has behavior issues as well. Contact me if you want to discuss specific issues further...

 
Old 09-10-2008, 02:19 AM   #5
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Re: 3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

Love to chat! We have done a total dietary change that I wish I knew more about when she was younger.

 
Old 09-10-2008, 06:34 PM   #6
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Re: 3 yr old downs baby 2nd nissen fundoplication surgery...anyone?

Wow, what kind of changes. We have definitely found that he can't drink cow milk. He drank goat milk for a long time but we have him on soy now. That seems good. We don't have him completely off dairy though because his diet is so limited because he is soooo picky.

 
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