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Old 10-06-2008, 07:05 PM   #1
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question about sleep apnea

i have a son with ds that is 6. he has mild sleep apnea. i have been told my two options are tonsilectomy or cpap. from reading already posted things it sounds like even with the tonsilectomy cpap was required later. i am not a surgery fan. would anyone recommend just going staight to cpap and forget the surgery?

 
Old 10-07-2008, 12:33 PM   #2
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Re: question about sleep apnea

My daughter is 12 and had a tonsillectomy for sleep apnea when she was 5. I don't like surgeries either but I had heard the opposite of what you stated. Our doctor said most instances are taken care of with the removal of tonsils and adenoids. It did work for my daughter and I know to get her to wear the mask for cpap would have never happened. I would seriously talk to my doctor about the surgery and if they think it would work. Recovery was a little tough but not too bad. The big thing was to give the tylenol on schedule and keep ahead of the pain.

 
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Old 10-07-2008, 01:48 PM   #3
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Re: question about sleep apnea

thanks for taking the time to answer. it is encouraging to know that it does help long term in some people. others i read after only 3 to 5 years something else had to be done. 7 years so far sounds great! was your daughters trouble her tonsils or a large tongue? he said d's tonsils are okay it is his that is large.

Last edited by homebody4; 10-07-2008 at 01:51 PM. Reason: ask a question

 
Old 10-08-2008, 12:22 PM   #4
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Re: question about sleep apnea

Actually my daughter's adenoids were more the trouble than anything. I guess they can grow back because her ENT checks them whenever he has to put new sets of tubes in her ears. Her tonsils weren't bad but were enlarged. So far everything has went along fine after the surgery.

 
Old 10-13-2008, 01:56 PM   #5
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Re: question about sleep apnea

Homebody,

I usually post on the sleep disorders board but your post caught my eye.

I believe I have had sleep apnea since a child, but only recently (40 some years later) was I diagnosed with apnea and treated. I am a strong proponent of cpap and have often encouraged and supported others when they were advised to use one.

I'm telling you this because although if your son has mild apnea, I would question any treatment at all!! I would certainly get a second or a third opinion. And unless three or more specialists advised surgery, I would not put my child through it...especially, a downs syndrome child.

If you have questions, do ask. I don't want to overload you with unnecessary info.

Bethsheba

 
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