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Dysphagia Message Board
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Old 12-10-2006, 05:28 PM   #1
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Need help. child might have Dysphagia?

Does anyone have a child with dysphagia? and is there any kind of treatment?
How did your child get diagnosed?
this issue has been going on with my nephew probably since he was born, the nurse at the hospital said he was a bad eater.
He will do anything he can not to eat food, he is 5 now and skin and bones. Now that he is school his parents are not there to help him eat all day long, he is losing weight, and it is just not a great situation. They have asked for my help in finding information and I know that someone on this board must know something. This is not about being a picky eater, or a power struggle, I believe there is something medically wrong, the child will not eat a cookie, or even ice cream! Does anyone have any information or can you point me in a direction? Thanks so much.

 
Old 12-25-2006, 05:05 PM   #2
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Re: Need help. child might have Dysphagia?

Your post is so sad, that poor family it is heartbraking to have a child not eat, my son is a very picky eater i'm convinced he has a texture problem. I just read a few book on children and eating disorders. Not sure if your nephew was seen by an eating specialists yet but of course thats what he needs. The hospital by me has therapists who deal especially with this problem. There are children who go there 3x a week for help. I will say a prayer for your nephew. G-d bless you and your family.

I just remembered something that i read in one of my books (i have to remember the name of it and i will get back to you) but the specialists in the book said before he evaluates any child he makes sure they have a complete physical exam to make sure nothing is medically wrong with his throat or if when he eats something might be causing him pain.

Last edited by mar0975; 12-25-2006 at 05:09 PM.

 
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Old 01-01-2007, 08:03 AM   #3
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Re: Need help. child might have Dysphagia?

This is heartbreaking for me to hear. It is essential that your nephew has a full work up and is seen by pediatric specialists first to see if their is a physical reason for his not wanting to eat.There are also studies that are done to evaluate feeding issues such as a video feeding study that is done in conjuction with a pediatric speech language pathologist and radiology. WHen the test is performed, the pediatric speech pathologist evaluates whether the patient has problems with certain textures. It is essential however he is first assessed to see what physical reasons my be contributing to his failure to thrive and it may turn out this test is not warranted. Even if his parents have to drive a good distance for him to get to a good Children's Hospital it is well worth it. It is essential that he is being evalutated by pediatric specialists. I would suggest a GI specialist to start with. Does he have any breathing problems? If so, he should also be evalutated by a pediatric pulmonologist. Has any testing been done on this little boy yet? PLEASE have his family get the appropriate care ASAP.

 
Old 01-02-2007, 07:36 PM   #4
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Re: Need help. child might have Dysphagia?

I'm not sure what dysphagia is, but my cousin's little boy was sort of like this, he wouldn't eat for a while and then she accidentally burned something and he ate it because it was crunchy, and they found out something abotu the texture of hte foods was really upsetting to him. He is 11 now and still very particlar about it, he sees a pyscholgist because they think he has OCD about food, and about his hands being clean. Maybe that could be part of the problem?

 
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