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Old 10-23-2009, 01:52 PM   #1
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Post Please describe ms tingling patterns


Hello everyone! I'm new to this, so am hoping I do this all right. I am currently waiting for a brain and cervical spine MRI in several months, and have been researching ms - as my GP is tentatively going in that direction with my symptoms. I am very interested in hearing from others about how they would describe what 'tingling' means, and the patterns it exhibits. I have been having this for about two months, and my GP seems quite interested in how I experience it. I would love to hear from people who suffer from this. I understand that people with ms have many different ways of experiencing the disease. Thank you in advance, and I look forward to the support of this message board.

 
Old 10-23-2009, 04:04 PM   #2
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Re: Please describe ms tingling patterns

HI Waiting...welcome to our board. Im sorry you are going thru this! When I woke up 4 years ago this month, I had a tingling hand and fingers....it felt like it was asleep. Like when your foot goes to sleep and you have to jump around and get the blood circulating?? Hours later, it still wasnt getting better and the annoying tingling became almost painful! It lasted into the next day, when I called my GP.

He thought Carpal tunnel and orderd a EMG, which showed it wasnt Carpal...then, he decided pinched nerve, which then resulted in a CT Scan- again, nothing! HOWEVER, the radiologist who looked at the CT Scan thought it was best to call in a Neuro (at the hopsital where I had it done) who took one look at the film and decided a MRI was needed....

That, and 50+ lesions on my brain later, started my extremely quick diagnosis. I did have all the blood tests, the VEP tests and even a LP- but MS was pretty obvious. Since nothing else came up positive, I was dx.

The tingling never went away. It actually got worse. It was the result of an attack on my brain which sends signals to my hands/ fingers. When it rains, its worse. When its humid, its worse. When Im exhausted or stressd, its worse! Practically not a day in 4 years has gone by that I havent been bothered by excruitating pain and what feels like pins and needles jabbing my fingers. Its soo bad that I can hardly stand to wear my wedding bands (and often remove them at home) and cant stand to have my husband hold my hand...I use voice recognition to type anything longer then a paragraph- and hate when I have to write, as it affects my ability to hold a pen!

I hope that helps you somewhat....and I hope you continue to be positive about the outcomes of whatever might happen. The one thing I can promise you is it doesnt have to change your life. Im still a manager at work, Im still making a very good income and I managed to do my MBA while being dx....life doesnt change entirely, you just learn to manage it better!
Hugs,
Nikki
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Old 10-23-2009, 04:42 PM   #3
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Re: Please describe ms tingling patterns

Hi MSNik, thanks so much for the quick reply. I am asking for the experiences of others because I am really wondering if any of the tingling that I get could actually be perimenopausal - which my GP and rheumatologist haven't so much as mentioned in connection with my symptoms - me being in the early forties. I have had a pain in the right side of my thoracic spine since March 2009, (my CT scan shows bone spurs ie. arthritis) and in the course of the following months, I developed weakness in my left leg, and in both of my arms at different times, my pinky finger and my ring fingers go numb in bed (but not carpal tunnel type), my feet and legs, my hands and arms will all tingle off and on, sometimes more, sometimes less. I have developed both migraine and regular-type headaches to the point that I have to take migraine relief medicine... and through this all, the GP has gone in the tentative direction of MS (listed it this way on my MRI form). I just want to mention one very strange time the tingling really surprised me. Lying in bed on my back for about 10 minutes, I noticed my toe start, then the foot, then up my entire left leg all the way to my thigh, then just as if someone had thrown a little switch, my left fingers started, then the hand, then all the way up the arm to the shoulder and a little above...then the right foot and right hand too in the same pattern, but didn't end up completely to the top of the right leg and arm. It was so strange I couldn't believe what was happening - all in about 3 to 5 minutes. Really, it was like a little switch got turned on for every limb. The tingling doesn't go away right away either when I get it - but I can't say that for sure I will have a 24 hour period of straight tingling in one limb. It will come and go. Sorry about the long story, but I have been pretty perplexed by this strange occurrence beside all the other days when tingling just starts and stops without any real pattern. Sometimes while I am sitting, other times while I am lying in bed. It can affect my leg to the point of limping somewhat as my foot and leg seem rather detached from my body. Just really wondering if this is a normal type of 'tingling' that a person with ms would recognize. I also suffer from extreme bouts of fatigue which the heart specialist acknowledges but doesn't know what it is from. I have a blurred vision in my right eye off and on - like someone rubbed something greasy across my lens, and I have trouble with dysphagia. I cannot handle the heat nor the cold. I know that some of these symptoms match so many different ailments. In looking for answers, I thought I would try this site. Thanks so much for your reply, and I wish you all the best with your ongoing symptoms. Best Wishes !

Last edited by waiting4answers; 10-23-2009 at 04:47 PM.

 
Old 10-23-2009, 04:43 PM   #4
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Re: Please describe ms tingling patterns

Welcome to the boards. I hope you enjoy your time here and I truly hope you do not have MS. But if you do, you are among friends and you never need to feel you are fighting your battle alone!

I suppose "tingling" can vary in perception. I have had the numb limbs (like limbs falling asleep). I have also had tingling which feels like creepy-crawlies under my skin. I also get weird tingling running through my body when I touch certain materials (sometimes plastic or paper "zap" me).

It is good that you read up on MS. Ask as much as you can before you see your doctor. The better informed you are, the better your search for a diagnosis should go!
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Old 10-23-2009, 04:54 PM   #5
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Re: Please describe ms tingling patterns

Jennifer, you might try some stretching before bedtime. My right eye blurs and closes, but I have found that my trigger is light sensitivity.

As to not handling heat or cold, I can empathize. You will find your optimal temperature zone. During summer months, cooling vests can help. Here I hibernate during the heat of the day.
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Old 10-23-2009, 04:54 PM   #6
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Re: Please describe ms tingling patterns

Thanks for your reply MSJayhawk. I am so appreciative of any help or support! Thank you for describing your symptoms. I am somewhat forced to wait until the MRI I suppose to really know if there is evidence for ms or not. The waiting can be hard, but I know that the One Who made me knows all the answers from the beginning! That's the good news. Smiles!

 
Old 10-23-2009, 08:04 PM   #7
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Re: Please describe ms tingling patterns

You are welcome. I will keep you in my daily prayers.
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Old 10-23-2009, 10:03 PM   #8
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Re: Please describe ms tingling patterns

Quote:
Originally Posted by MSJayhawk View Post
Welcome to the boards. I hope you enjoy your time here and I truly hope you do not have MS. But if you do, you are among friends and you never need to feel you are fighting your battle alone!

I suppose "tingling" can vary in perception. I have had the numb limbs (like limbs falling asleep). I have also had tingling which feels like creepy-crawlies under my skin. I also get weird tingling running through my body when I touch certain materials (sometimes plastic or paper "zap" me).

It is good that you read up on MS. Ask as much as you can before you see your doctor. The better informed you are, the better your search for a diagnosis should go!
I know what you mean about getting weird sensations when you touch certain materials. When I was at the beach this summer my skin did not like having sand on it. I started to get the worst stinging, I started to look for some stinging fly or flea but did not seen any. It was just the sand that caused these painful sensations. Thank you for sharing what has occurred for you, this helps know that it is just a part of MS and we will be ok. Take care.

 
Old 10-24-2009, 06:52 AM   #9
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Re: Please describe ms tingling patterns

Hi Waiting. You mentioned PeriMenopausal...it appears you and I are in the same age bracket. Im also in my early 40s...and this subject did come up once or twice last year. I had my GYN order all sorts of Hormone tests to see where I was on the Menopausal scale...turns out, this ISNT peri-menopause. One could only be that lucky!! The heat flashes I have, are definately MS related- although from what my friends tell me, they are much like hot flashes of menopause...the tingling seems allot more extreme then what menopausal tingling is described as.
I guess my point, is that its not that far fetched to consider this, but you can definately look into having those same tests run (blood work) to see if it might be a cause.
Good luck!!!
Nikki
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Old 10-24-2009, 10:25 AM   #10
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Re: Please describe ms tingling patterns

MSNik, thanks for the info on blood work for pmeno. I had read up on some on this, but found that some people mentioned the blood results could be quite vague (?) - depending on a lot of factors, so I kind of left that alone at that point. Your comment about 'pmeno tingling being less extreme' are interesting - I suppose that is why I am looking for people's experiences with ms tingling so I can get a feel for what those differences might be. I am wondering on which scale my tingling would fit??? I also get the hot flashes - where my friends just can't believe how I can jump from being comfortable to taking off layer after layer to try to cool down. I feel like I am so weird at my age to have that, like after one cup of coffee? Thanks for the reply, I will try to stay in touch as I learn more. Your support is great, thanks ! Smiles!

 
Old 10-24-2009, 01:56 PM   #11
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Re: Please describe ms tingling patterns

Hi Waiting------------

I experience the "foot asleep" type tingling on my left (weaker) side almost continually and in the right if I get stressed or heated.I also get those creepy crawly sensations at night and before a bought of hug.If I am having headache I also get that "asleep" feeling in my face (lips mostly) and that shocky feeling (which is painful) down my neck and upper back when I bend it forward.

much love to you-----------knuckle

 
Old 10-26-2009, 09:43 AM   #12
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Re: Please describe ms tingling patterns

My "tingling" is like Nikki's-- feel like my foot, leg, hand, whatever has "gone to sleep" as when you've had it bent too long or something heavy on it, etc. AND, like Nikki, the feeling doesn't come back after shaking, stomping, whatever. To me, it feels like the skin is what's numb. I still know my leg/foot/hand is THERE, but the sensation feels disconnected/distant? Like I'm feeling something through a piece of heavy cloth? Hard to explain. I know I'm walking but the ground doesn't feel solid? Walking on Jell-o??

 
Old 10-27-2009, 07:53 AM   #13
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Re: Please describe ms tingling patterns

Thanks to both writers (mrknuckle and Lisa P) for your input on my question. All these answers from people really help me to get a feel for what I might be looking for. During the night and into the morning, I have been bothered with extreme type tingling in my feet and esp. in both of my hands - to the point of being painfully *****ly. Walking around and using my limbs hasn't stopped or changed it really. It surely makes me wonder! So thanks again for your replies. Wishing you all a super pain-free day today!

 
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