Anyone know where one can get help eating?
I am hoping there is someone out there who understands this. I have had problems swallowing for about a year now due to what seems to be an inflammed esophagus with spasms (of the upper esophageal sphincter). The symptoms of this have had me eating (and drinking) in total uncertainty, having to guess and calculate based on what I am feeling in my throat if the food or drink is going to make it down my throat, and what it is going to happen if it dosen't (having to ask, can I cough it out? Is it too much to cough out? Can the consistency be coughed out? Is it gonna hurt or do damage going down? And so many other questions). It makes eating a nightmare I dread every day. Does anyone know of medical help that understands the mental and emotional torment a swallowing problem puts you through? It would be so wonderful to be able to talk to someone knowledgeable about these concerns in a safe environment where I may be able to eat in peace for once. I have tried this through a speech pathologist, and some questions were answered, however it was frustrating for a number of reasons, largely because I was told they would only work with me if I managed my anxiety with medication or therapy (this was puzzling because no medical tests have indicated anxiety, if anything have ruled it out, and I was always very composed, at least I thought. This is one of many infuriating incidents of what I think is a massive conspiracy of doctors to get everyone on antidepressants for some reason...I really don't know what else to think) and I would only be given help if I took the medication they prescribed. I do not believe in taking medication for this situation, as the body will heal itself if the root problem is attacked and the body is given the proper healing environment. I am in the healing process already, so I want it to take its course. I think this is criminal to be denied help for this reason. Anyway, I was also largely told that I could eat anything I wanted because a barium swallow test showed that I was capable of swallowing food. This was not comforting, as I feel a great deal of abnormality (and that is putting it lightly!) when swallowing, food sticks in my throat, and I am not imagining it as I have had to cough it out from time to time. Because I did not choke during the five swallows of the barium test, I was told I would "not choke more than anyone else". Not convincing. Therefore, it was very frustrating to ask a question about a food's safety in swallowing (for instance, what happens when this doesn't go down my throat?) and have the answer be "the barium swallow test shows your swallowing function is normal, so that won't happen". Even though, as I would try to explain, it HAS happened, but maybe just with a small amount of pureed food or liquid. Why should I not be concerned about it happening with something bigger and more solid? Anyway, with all that said, I was wondering if anyone out there knows of any compassionate medical help that understands the mental and emotional torment associated with a swallowing problem and would be able to help me be able to eat again in peace by entertaining my questions, and working with me in an environment where I could feel safe eating? By the way, I am in Florida, but at this point, willing to listen to any suggestions about anything anywhere. I am trying another speech pathologist, praying that it is a different story than before, but please share anything you out there might know. Thank you so much!
Last edited by rockotaco; 04-09-2013 at 03:18 PM.