my fiance was diagnosed this past week too. he is 34. He doesn't want to read about the disease yet until he knows for sure. He goes back to ENT in another week to check progress made on steroid meds. It's helped a little, but the symptoms are still there. The hardest thing is not knowing what level of severity to expect. We are in shock a bit. He hopes that the doctor will diagnose him with something else that is acute and not chronic. We'll wait and see.