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Old 05-02-2008, 01:41 PM   #1
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Unhappy Adult Tonsillectomy - My Story..(one of a kind..)

Hi, I`m quite new here and just stumbeled across this messageboard when I was searching for answers to my current situation, and off course, to see If I am one of a kind, or if people actually have experienced anything similar.

I am from Norway by the way, so excuse my poor grammar as I try to tell you my story. WARNING; long reading!

Well.. Where to begin.. It started at 7th april, as I remember it was a sunny day in my hometown and I wasn`t nervous at all. I had never been put to sleep or been to surgery before and was actually looking forward to it, like a fun new experience!

I got to the hospital and waited for my turn. I was scheduled for the "day-surgury", it is where you go in and out the same day(since there is only about 3-4% chance of bleeding most people can go home the same day..) The nurse rolled me into the surgery-room and I fell to sleep. After I woke up I wasn`t feeling all to bad, my girlfriend was there and we got picked up by my dad not long after.

I stayed in town for 3days at my brothers`, watched old cartoons, ate ice-cream, pudding and drank ALOT of water. The second or third day I ate some squished meatballs with mashed potatoes and it went fine. The thrid day we went home by buss(about 2hours) and I felt fine barely any pain. I didn`t lift anything heavy and played some online games before I went to bed. The next day I ate some ice-cream and some tomato soup. Then, right before midnight, as lightning from the sky I felt a warm liquid filling up my throat. I was bleeding. This was thursday night.

I had read beforehand that this CAN occur, and that it often is the "scabs" coming off. My pulse immidiatly went from 70 to 120 in a flash. I was really bleeding! My gf got panic and neither of us knew what to do, so we had to call the emergency-central and after 20more minutes of bleeding in the sink the ambulance arrived. We rushed to the ER and I threw up before we got there, it seemed like gallons of blood and tomatosoup, it was scary dark and I remember my gf got so shook up she started crying. This fortunatly closed up the wound(in some weird way..)

The doctor took a look down my throat and concluded that there was a big lump of blood that were "clogging" the blood. It had to be removed to prevent further bleeding later. I went in for my second surgery with full "narkosis" and the works.. The next day I was feeling rather groggy but my wound had been closed and both my gf and I were happy. She had stayed the night with me and was by my side the whole time, this was a GREAT help as I felt as weak as a puppy.. She is really the sun in my life

I wish this was the end of my story.. unfortunatly, it`s just begun..

The same day(friday) I went home by taxi and I threw up twice on the way(probably because of the narkosis..) but I didn`t see any blood so I thought it was ok, we called the doctor and he ensured that as long as it didn`t see any blood, it was fine. I rested that day and only ate some ice cream and more warm(not hot) soup.

Saturday went fine, a little pain but nothing major. Then as sudden as the last I woke up 5AM with the same liquid feeling in my throat.. I woke my girlfriend and since the bleeding didn`t seem as big, and I thought it was the same wound that had opened, we decided to wait it out and see of it stopped. Since the hospital is 1hour away.. I just sat upright and spat in a cup(didn`t really know what to do..) and tried drinking some ice water. After about 2hours of on//off bloodspitting the bleeding increased a bit so we called the emergency-central again.

Off I went to the hospital a second time in two days. The bleeding closed up just before we got there and my meeting with a big german fraŁlein was a fact. She started with a huge tranqulizor syringe down my throat and I threw up blood several times during the cauterizetion. At the end I was so shocked I didn`t even feel the pain, this was by far the worst experience of my life. She was brutally efficient and after 15-20minutes of burning my arteries she was done.

I ended up at the ER-reseption and just sat there for about half an hour caughing up bloodballs. Fortunatly it stopped after some time and I was moved to the patientrooms. There I met this nice fellow who told me a story about a girl never waking up after bleeding from tonsillectomy, apparently her doctor just gave her some painkillers and sent her home, could just be a story though. Anyways.. it scared the living daylight out of me back then

After some easy food I went to sleep and the next day(monday) I was in o.k. shape. I got Chicked Chop Suey for dinner that day, with real chicken chunks and rice! I was surprised to say the least, but the nurse bringing the food obviously didn`t care what I ate, so I didn`t say anything. I chewed the chicked veeeery carefully and ate the whole thing, rice, vegetables and all! After that I felt great! Even though I underwent cauterizetion day day before. This was awsome I thought! But then it hit me, should I be eating this stuff so soon?

Well.. We got picked up by my parents the same day and drove carefully home(3hour drive for them) They both felt extremely bad for me although my dad saw some humour in the situation I didn`t feel that bad emotionally and had only minor pains in my wounds. This time I got the best painkiller ever, a supository(??) called "Voltaren". And it was night/day when it came to pain. I could swallow and eat anything as long as I had one of those, and it lasted about 4hours. We finally got home and my shape wasn`t all that bad.

..I wish this also was the end of my story.. unfortunatly, it`s not over yet..

The days went, sloooowly, I tried to watch as much TV as possible and my diet consisted of baby-food(with chunks) with a slice of bread(without crusts) and Ice-cream for dessert. This was working out really good and I felt I got all the nutricients I needed. Day by day I got better and come day 9 I was back to "normal", even went to for a walk in the nice weather. Because of all this surgery and bleedings I unfortunatly couldn`t go with my girlfriend to celebrate her brothers birthday, because we had to fly there and I was very scared to have my wounds pop again.

This was a wedensday, 10 days after my last cauterizetion and I was feeling great. I was gonna relax the whole weekend, had the appartment all to myself and I had went to the store earlier that day and bought lots of good soft food. This was my "celebration" for making it this far.. and I had no pain what-so-ever.

At about 5PM I followed my girlfriend to the taxi and sent her off. Then I went to the washer-room and picked up our laundry(prolly shouln`t have done that..) It weighed approx 10-15pounds or so and since we life in the 4story I took many brakes on the way up.. I sat on my computer abit and surfed around the www and then it got to dinnertime.

I made some sausage and meaballs with tomatosause and had some breadslices(again without crust..) and thought that this would be safe, and give me lotsa energy.

well..

Halfway through my meal(while watching "overhauling" on discovery..) I got the same liquid sensation in my throat, this was about 7PM.. I almost started crying to be honest.. I rushed to the sink to confirm this and there it was, blood, lots of blood. This time it was more agressive than before. I didn`t do anything for a couple of minutes, just hanging over the sink, hoping it would stop, but it didn`t... and this time I was all alone..

I got on the phone and called the emergency, AGAIN(they should almost recognize my voice by now..) and called for an ambulance, I knew it wasn`t going to stop this time either, so I thought the sooner, the better..

The ambulance came and funny story short - It was the same guys as the other two times. They looked a bit despaired to be honest.. and I don`t blame them.. The whole trip I sat there bleeding into a cup, I wasn`t gonna swallow any this time, cause then I would throw up like the first time. This time the bleeding kept on dripping from the moment we left, and for atleast 45minutes(they used sirenes this time because of the quantity..)

I got to the E.R. and who meets me? The same doc. as the first time, and he just looks at me, a bit surprised. Well, it was the same as last time, a blood-vain exposed and some blockage of old blood minimizing the bleeding. I was then rushed off to surgery(again..) and I saw alot of familiar faces from the first time..

They WERE gonna sew me up, but decided not to, as the wound was relatively small..

I don`t thin I have ever been so far down emotionally in my entire life. When I woke up I was just lying there and didn`t really think this was for real.. After 3weeks from the original surgery I had been in and out of the E.R. 3 times, and this time, I was all alone.. I wanted to cry, I really did, but I had some sort of mental blockage that prevented it at the time..

They rolled me into the hospital-patientroom and there I stayed for one day. I got messages on my cellphone from friends and family, and they couldn`t believe it either.. This was day 10.. The day most people are fully recovered and starts living a little after 9days of hell on earth.. For me it had been 3weeks of constant worrying, on and off pain, eating boring foods and constant alertness. It was NOT an easy journey.. and here I was, back at the starting line.. all alone.

The next day(thursday) I was moved to a "patient-hotel". There I had TV and the possibility to move around more freely, go online and so on. They planned on having me for a while this time, because my bleeding. This time the doctors orders where "no solids for two weeks!" after talking to other doctors I got this reduced to one week.

My parents again came to visit me(as my mother was worried sick..) that day. But before they arrived, my whole class from school visited me, with flowers and everything. This made my day so much easier, trust me. I talked and laughed some and they wished me all the best. Then afterwards my parents came and it all came down on me at once.. I started crying and sobbing like never before and I think I cried for atleast half an hour.. The pain of having to go through all of this again was too much to bear..

After talking with my parents for a while I felt a little bit better, they couldn`t say much to confort me, but got me focusing on the future.

The next days on the hospital was hell, not because of pain, the pain after this surgery was almost none-excistent, but as I had lost ALOT of blood the past weeks, and the only food I got was liquids, my energylevel reached an all time low.. I walked around, feeling dizzy and sick. Everything they had was some meat-soup and some vegetabelsoups, this tasted foul and gave me nothing.

The last day at the hospital(sunday) and I had been there for four days and I felt like crap, not because of painkillers or pain, but because of lack of energy. I couldn`t wait to get home and get some real nutrition, everything but low-energy hospitalfood..

My mom decided to stay with me till my girlfriend got home this time and that actually helped ALOT, just to have her there the first couple of days.. She cared for me and bought me lots of energydrinks and milkshakes(with high content of vitamins and minerals) After a few days I felt a little bit better, but I was still a bit dizzy and didn`t feel good.

My girlfriend finally got home monday and I was thrilled to have her back. She got me feeling alot better by just being here. My mom and my gf stayed with me for the next couple of days and took care of me. I went to the doctor on wedensday and he thought it looked fine and said I could eat whatever I wanted to and that it had healed nicely. This helped alot for my selfesteem..

I am now on day 9 after my 3. surgery. And yes I am nervous as hell.. My mom left yesterday, and I felt the liquids pumping the same night. No sleep for either me, nor my girlfriend.. Luckily it turned out to be a false alarm, and I got some needed hours on the pillow.(my gf however only got about 3..)

Current status;
Feeling much better
Lots of bacteria in my mouth due to no brushing..(afraid of bleeding..)
Throat tingeling on both sides
Eating babyfood and drinking milkshake from dietmilk.
Drinking ATLEAST 100oz of water
Staying as calm as possible, not moving much at all
Nervous and excited since it`s day 9..
Tired of 4weeks of horror.. bleeding and emotional stress..

I hope with this to get some closure on the matter, and hopefully some good feedback on what I should do the next few days. My plan is this; only "drinking" my food untill day 14, just to be 100% safe nothing happends.. I have my exams coming up, and I can`t afford another surgery..

This was my story.. long and rough, just like the experience.. I hope no-one has to go through this, ever! For me it has been a test, a test of how much I can take before I crack.. I can only tell you this; read messageboards(like this one!), gather all the information you can beforehand, and take it easy!

The worst that can happend is unstoppable bleeding, then it`s back to the starting line.. and nobody wants to go through this twice.. or as me 3times..

I hope I heal this time..

Any tips will be greatly appriciated.

-Cheers.

 
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Old 05-02-2008, 05:17 PM   #2
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Mer27 HB User
Re: Adult Tonsillectomy - My Story..(one of a kind..)

Man oh Man, Soupguy84. What an ordeal you have been through. I am so sorry. Today is day 7 for me. I bled and went back into surgery last Friday, the same day as my tonsillectomy, and it was a horrible and scary experience. I sure hope nothing more happens. I cannot imagine having 2 more episodes like that.

I hope you continue to improve, with no more scares!

Sending you support!

Mer~

 
Old 05-03-2008, 12:25 AM   #3
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Thanks Mer, that means alot

I am sorry for your bleeding too, it is really not a pleasent experience at all! It`s scary and seems violent. Blood has that effect on most people I think..

You are at day 7 now, so we are in this togheter!

Day 10;
Just woke up from sleeping, slept a good 8hours tonight, no bleeding so far. I`m gonna drink my breakfast now and just take it cool the rest of the day

Any tips of what to do if I start bleeding again? I have read to gargle icewater, is there any other solutions?

I`ve already decided NOT to drink any foods if I go in again.. I have read over 70pages with experiences and feedback and it seems pretty clear to me that the people who start early by eating normal solid food(avoiding the obvious..) and chewing alot, are the people that heal quickest.. Seems like toughning up the skin is the way to go.

Last edited by SoupGuy84; 05-03-2008 at 08:26 AM.

 
Old 05-04-2008, 06:07 AM   #4
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Day 11.
Barely got any sleep last night.. 2-3hours or so.. I know in the back of my head that day 7-11 is the most risky when it comes to bleeding, and I think that is the reason..

Nervous as hell, thought I just felt some bleeding in my throat and got panic. I am barely shaking as I am typing this.. I`m so scared right now..

Went to the sink twice and tried to see if I could spot some blood in my spit - I didn`t..

I think maybe I have got some sort of infection in my jaws. This whole time I have talked and moved it as little as possible and I haven`t brushed my teeth for a couple of weeks(just a little bit yesterday..)

After 5hours of waiting for bleeding to happend I had to have something to eat. So I got some babyfood from the blender.. more like a soup to be honest..

Driking ALOT of icewater.. trying to avoid bleeding..

If anyone is reading this, I`ll keep u posted.. not feeling good at the moment..

Last edited by SoupGuy84; 05-04-2008 at 06:09 AM.

 
Old 05-04-2008, 07:40 AM   #5
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Mer27 HB User
Re: Adult Tonsillectomy - My Story..(one of a kind..)

I know the feeling of being paranoid about bleeding...I go check sometimes and my heart always races. It is scary, but you are doing everything you can to avoid bleeding again (e.g. icewater, soft foods), and you are almost out of the woods!

Feel better and do keep us posted!

 
Old 05-04-2008, 11:01 AM   #6
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

I sure hope so!

I didn`t bleed earlier(thank the gods..) and later I just decided to do as you have done, to check up on my wounds.

Or.. rather, my gf did

from what she saw, both of them had NO white spots(scabs?) and looked like two small craters. The skin also had the same color as the rest of the throat, that`s a good sign right?

I expected to have some white spots and that the skin was more red where the tonsils used 2 be.. but nothing, just 2 craters..

Still feel the wound though, thumping on&off. But really, my jaw thumps more..

Gonna try to see the doc. tomorrow, hear what he has to say and if I should get some antibiotics/penicillin for my "possible" infection..

Tnx for responding Mer, tomorrow is another important day for the both of us, let`s get through it together!

 
Old 05-05-2008, 03:10 AM   #7
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Day 12 - post op.
Today was a strange day in many ways..

Woke up at 8AM(as usual) and felt dry in my throat, but some water fixed that.

I then called the ear/nose/throat-specialist in my town and YES! I got an appointment!

So I went down there, and it looked great! He even gave me some anti-bleeding pills cytopro-something (a bit scared of swallowing pills though)

I`m so happy now, for the first time.. in a long time I see light in the end of the my 1 month long tunnel..

About time I get well really.. I have my exams in Corporation Echonomics next wednesday.. oh man..

Last edited by SoupGuy84; 05-05-2008 at 04:11 AM.

 
Old 05-05-2008, 02:00 PM   #8
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Mer27 HB User
Re: Adult Tonsillectomy - My Story..(one of a kind..)

Soupguy, I am so glad that you are doing well! You're right, it is about time...it has been a long recovery for you! I wish you a smooth continued recovery!

Mer~

 
Old 05-06-2008, 02:17 AM   #9
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Than you so much Mer the doc. said I was "one-of-a-kind" when it came to bleeding, he hadn`t seen anything like it in his many years as a specialist.

How have you been, healing well?

Day 13 post-op.
Just woke up this morning, and got some food. Feeling quite back to normal actually, walking and talking more, and doing a few chores around the appartment.

My biggest problem//fear now is swallowing those pills. They arent big or anything, I`m just scared that they`ll rip open a wound as I swallow.. any tips on what I can do?

I have to take these 3times a day, but I dread each time..

It would be ironic if the pills that are supposed to help me heal, was the same that caused another bleeding..

I don`t have a mortar and pestle, but maybe I should get my gf to buy one..

Last edited by moderator2; 05-06-2008 at 04:34 AM. Reason: please do not post pictures for any reason - as per the posting policy

 
Old 05-06-2008, 12:26 PM   #10
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

I take several pills every day, and I was worried about taking them at first also. I thought about crushing them up, but ended up just taking them whole. I think I restarted taking them again last Monday, which was post op day #3. So, in my opinion, you should be fine swallowing pills. Of course, crushing them up would be even safer...

I am healing pretty well. My throat is still sore, but I guess it will be for a while. I went back to work yesterday, and ended up coming home an hour early, but each day continues to get better!

Mer~

 
Old 05-07-2008, 04:23 AM   #11
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Thought about crushing, but as you I have just decided to swallow them whole. They go down pretty easy if I just have enough water in my mouth.

You went back to work already?? wow - that`s courage for you! I was nervous just to go for a walk earlier this day, and I`m on day 14 :P Most worried about the stairs though.. took my pulse halfway and it was 100-110.. and I walked sloooowly..

Well, nice to hear that you are improving in a fast pace and that you are up and about!

Day 14 - post.op
Yesterday I got abit of a shock from reading a couple of articles about drinking too much water and it was indeed scary.

I have probably been drinking approx. 6-10litres pr.day.(maybe as much as 12-13..) in total, and that`s alot! I never thought that it could damage my brain or my body in any way.. So now I have cut my water-intake drasticly, just hope it wasn`t too late. Also I have bought some Powerade and Gatorade to help me get some more natrium in my system..

My throat has felt abit sore lately, dunno why. I drank some milk and it dozed down.. Don`t think it hurts to drink dairyproducts now, since the wounds are closed..

But all in all I feel in good shape, and only sipping a little water at a time now to keep my throat wet.

Tomorrow I`ve decided to try some solid food - for the very first time in 14 days(!!) I will chew food - halleluja! It will be well cooked pasta di parma.. Both scared and excited about that really

Gonna stay "safe" until next wednesday and not eat any rough foods, just hope I get a full recovery this time!

Last edited by moderator2; 05-07-2008 at 12:50 PM. Reason: posted commercial website

 
Old 05-07-2008, 04:32 PM   #12
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

soupguy,

sorry about your recovery man,

i'm on day 12 post op

I ate a double cheese burger today and fries haha. I might even go for a jog if my girlfriend lets me. All the scabs are gone, just sore when I swallow and when I sleep. I had about 5 slices of pizza last night, just used a fork and a knife, just cheese NO PEPPERONI haha that stung.

Good luck on your healing, i'm off all narcotics, only on tylanol now.

Rob

 
Old 05-08-2008, 06:11 AM   #13
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Thanks man

Double cheeseburger! A maaan! I wish I could eat that

..and I probably would if it weren`t for my past experiences. Just sucks to go around and be scared to eat real food, it really does!

Before the surgery I would jog for hours, but this month I haven`t worked out at all.. Well, I just have to work extra hard when I feel safe enough.

Good to hear your recovery has gone well navy, hope it continues that way

Day 15 - post.op
Same old same old. Woke up - babybreakfast. Watched two movies - got some more babyfood. Just hauled down some raw eggs to get some protein(which I need), and going to have a yoghurt soon.

my gf just got home and went straight to bed.. lucky

Gonna have some pasta today or tomorrow.. not completely decided yet... Tomorrow it`s 1month since the last surgery on the right side - at least I know my body in fact IS capable of healing now (was starting to worry..hehe..)

Drinking a lot of grapejuice atm. been told that helps with the healing.

I feel much safer today, and I think for each day that pass I will get stronger mentally, and come next wednesday, maybe I too can eat a burger with fries

Last edited by SoupGuy84; 05-08-2008 at 06:20 AM.

 
Old 05-08-2008, 07:28 AM   #14
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

Tortellini is good too, just cook it really soft. The meat inside is ground up so you get both protein and carbs in a pretty easy-to-swallow meal (no sauce just some butter and parmesan). I have some Italian wedding soup with little meatballs in it too. Gotta get that protein down somehow. I bet when you can eat better you'll feel more yourself in no time.

 
Old 05-08-2008, 08:59 AM   #15
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Re: Adult Tonsillectomy - My Story..(one of a kind..)

That`s a great suggestion thanks

I`ll buy some tomorrow so I have dinner through the weekend. Also thought about sausages they are soft, and maybe with some macaroni.. mm mm!

Yeah.. last time.. or that would be after my second surgery, I ate babyfood(not through the blender..), some french toast(without crusts) and more "energygiving" food. I felt like my old self by day 9

This time it`s taking longer, probably because of my starting diet of asparges-soup only for 4days..

 
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