I am 35 years old, and for the past 16 years I have had a very life altering disorder with no actual diagnosis by any medical professional.
All the symtoms started before I had minor head truma 16 years ago, but got worst after right after the truma.
They include:
24/7 brain fog, lack of balance and coordination, slurring speach, constant fullness in head, constant visual problems in tracking objects, and looking from something close to me to something far, popping in the ears, very tense musles in my face, neck and back, pressure behind my eyes, throbing pain behind my eys, which all cause anxiety, and add like mental symptoms. Also ringing in the ears at time, decreased hearing in one ear or both with increased dizzyness, and then it goes back to the normal (well its never really normal)
I had everything, and I mean everything, examined 16 years ago. At the time no one could find anything other then one eye specialist who said I had tracking problems but that all of my eye functions were fine.
Mris, cts, all found no issues.
At the time I was so "out of it" I couldn't drive a car, watch tv or read a book as keeping focused on anything was immpossible and I had no sense of where i was or what was moving *** everything seemed to move in different directions. i also had and still do, trouble doing any of these, i can't turn my head while driving as i lose my point of reference so i use my peripheal vison to see things, I can't read for more then a minute beefore the words are buned into my vison as an afterimage, I get green sparkles in my vision and word seem to move, float.
I only got better after self prescribing myself klonopin (a valium like medacine) after i took some duting an MRI and my symptoms improved, the doctors at the time thought I was crazy but klonopin 3 times a day has made it possible to function somewhat normally, along with spending the two first years forcing myself to look at the corners of a room and keep the room from appearing to move, as when my eyes move objects seem to move faster then my eyes are.
if I look from one corner of the room to the other, the second corner leaps into place sooner then my mind thinks it should arrive, making everything move quickly in the opposite direction that my eyes move.
Its been getting worse during the past year and each hour/day is different. If I DO NOT take my klonopin for a day everything gets a thousand times worse, and I am actually disabled at that point....
I am hoping that seeing new doctors and advances in medicine will help and am going to an inner ear specialist in Boston next week.
I was thinking and at the time everything started I was in a local band with very loud music for long periods of times, and of course no protection, until it was probably to late, so I have slightly decreased hearing, normally its foggy as it goes in and out slowly but very subtle.
I also have tingiling hands and feet and have had them for a very long time. But the most important thing for me is to stop all the moving, vision, head full, eye pain issues that cloud my thoughts so I can live a more normal life.
I have searched everywhere and seen similar problems from a lot of people, most point towards an inner ear issue, but I can't be sure... as they said they did not find anything, but everything seems very similar to an inner ear problem.
I am scared for two reasons, first, that they may find an inner ear issue, only because it doesn't seem like a lot of those on the internet have had great results in treating the problem. And secondly, that they may again find nothing.
If you can provide me with any help, my family and I would greatly appreciate, and I feel the pain of the hundreds of other who seem to be in similar situation, and would like to stay in touch till both you and I can get rid of these things once and for all, if not at least to greatly reduce them, and at the very least to diagnose them
I thank you in advance for your time in reading this....
Also, to make things even more strange, I had a psyche like test 2 years ago where the doctor was amazed at results *** I scored very high at many things that were very complex, but scored horribly in tests were i would look at a row of random letters and then count the number of a's in them or t's in them, i was incredibly slow because of the difficulty with this disorder.
Also I could not do simple math were he would ask me to add 5 to 7 then 8 subtract 4 and so forth and go on and on thru 20 numbers and would ask me the answer at the end, my mind could not keep up at all at any speed, even at the slowest setting I had great difficulty. right after the first number my brain went into its fog and well...
The Following 2 Users Say Thank You to krahon For This Useful Post: help please1 (10-29-2012), spogle (08-02-2012)
I hope you are feeling better! What a horrible thing to go through. I am going through a few of those symptoms myself. I think mine is due to allergies and a bad ear infection. I am so miserable today. I went to the doctor and they really made things worse poking around in there. I just cried and cried.
Your thread title pretty much describes the way I feel. I have a lot of your symptoms since April of 1995. Ive had numerous ct scans and MRIs with everything coming back normal.
I did get happy when one of the ct scans came back with chronic mastoids sinus disease, and my ENT said I had a deviated septum. I got so happy when I finally found out my problem. I immediately went for surgery, only to have the same symptoms hours after surgery.
5 years after surgery my symptoms are progressively getting worse.
Dizzy everyday, head pain (it's getting worse), and now my ears are clogged everyonce in a while. I take a deep breath with my mouth closed, and my ears unpop for a while, but the dizziness and head pain remains..
Good luck, ( removed )
Last edited by moderator2; 10-03-2008 at 11:46 AM.
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Believe it or not, many of your symptoms could be due to TMJ. When your jaw joint is out of place, it compresses nerves and also can affect your eustachian tubes. My primary symptom aside from my jaw clicking is ear pain, but when I was first diagnosed I had the brain fog and dizziness, ear fullness, etc. Please get checked by an oral surgeon. It makes sense that this could be your problem, especially since it got worse after an injury.
Hello fellow sufferer's.
I too have very similar symptoms and have had all the tests under the sun but nothing conclusive. eustacian tube disfunction and minor allergies seem to be the only answers i have had. I began experiencing problems with my vision approx 4 years ago where i found it difficult to judge distance especially in busy environments , ie shops, things just seemed to jump out in front of me. it was difficult with the dizzyness to get out of the way. What i found to be an almost immediate cure for the eye problems was when i told my optician about my symptoms. There is an easy test that they can do. The result in my case was that i needed a prism in my glasses. I can only say that when i got my new glasses the difference was amazing.
It has not helped with the overall problem of dizziness but it is much improved. It is due to what they used to call lazy eye which i am told can be a result of ear problems. I have the problem of getting dizzy when its dark as i cannot use my eyes to compensate.
There are excercises that can be done to retrain the brain. The main thing is to try not to avoid doing things , it's easy to say but i know it's hard.
Does anyone notice a feeling of total relief from all symptoms if they bend over for a few minutes then stand up slowly. I get complete relief but only for a minute or so, i can sing shout move around normally without feeling dizzy, then pop, my ears seem to suck the entire universe into my head and i feel closed off again. I do find that when i am at work that if i wear headphones it distracts me from the feeling of fullness in my ears.
i feel like i am babbling on and not making much sense.
please try going to the opticians , it may help.
Good luck................
Last edited by moderator2; 10-08-2008 at 05:32 AM.
Hello fellow sufferer's.
I too have very similar symptoms and have had all the tests under the sun but nothing conclusive. eustacian tube disfunction and minor allergies seem to be the only answers i have had. I began experiencing problems with my vision approx 4 years ago where i found it difficult to judge distance especially in busy environments , ie shops, things just seemed to jump out in front of me. it was difficult with the dizzyness to get out of the way. What i found to be an almost immediate cure for the eye problems was when i told my optician about my symptoms. There is an easy test that they can do. The result in my case was that i needed a prism in my glasses. I can only say that when i got my new glasses the difference was amazing.
It has not helped with the overall problem of dizziness but it is much improved. It is due to what they used to call lazy eye which i am told can be a result of ear problems. I have the problem of getting dizzy when its dark as i cannot use my eyes to compensate.
There are excercises that can be done to retrain the brain. The main thing is to try not to avoid doing things , it's easy to say but i know it's hard.
Does anyone notice a feeling of total relief from all symptoms if they bend over for a few minutes then stand up slowly. I get complete relief but only for a minute or so, i can sing shout move around normally without feeling dizzy, then pop, my ears seem to suck the entire universe into my head and i feel closed off again. I do find that when i am at work that if i wear headphones it distracts me from the feeling of fullness in my ears.
i feel like i am babbling on and not making much sense.
please try going to the opticians , it may help.
Good luck................
I am seeing a TMJ specialist, muscular specialist, inner ear still, etc. and a ton more specialists asap... I have been REALLY hurting because I caught a sinus infection on top of evrything else from my daughter, so i've been outta commission for a while
Last edited by moderator2; 10-03-2008 at 11:43 AM.
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Has any of the doctors that you have seen mention the possibility of Meniere's Disease? Have you tried a low salt diet and diurectics?
Not here, ENT says most likely MAV and not as issue with the inner ear....
I do have TMD (some call it TMJ) and was also diagnosed with myoclonus, very odd, I have weird spasms/tics (and have had for 15 plus years) in and around my eyes, face, mouth, tongue...Anyone else get these, they look like dystonia type spasms....if you look up blepharospasm images, thats what they look for, my neurologist says he doesn't think its dystonia though, he said its just myoclonus.
quote "if I look from one corner of the room to the other, the second corner leaps into place sooner then my mind thinks it should arrive, making everything move quickly in the opposite direction that my eyes move"
Many years ago, I suffered from a very severe vertigo attack, I had the same symptom you posted, it was very weird and scary, I could not explain it to anyone. I was afraid to look from one end of the room to the other. It lasted only a few days, though.
Laura
