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Old 08-18-2010, 05:42 AM   #1
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Thick excessive mucus causes me to gag/choke until I pass out.

Diagnosis? This is an effort to be as concise as possible so nothing gets left out as any of these symptoms may indicate what this might be. First of all I have been trying to seek a diagnosis for this chronic condition for many years. I feel that I have been misdiagnosed in the past because nothing has yielded any results. I feel it is time to search the less common possibilities of what it might be (autoimmune) etc. I eventually stopped seeking treatment for this because I would reach road blocks everywhere I went. Doctors would be stumped and pass me on to the next doctor or specialist and each one came up with nothing. Following through just kept coming around full circle with nothing to show for it. All of this has killed my hope for ever having a normal life. I need someone to follow up and work with me to help me figure out what this is.

Ever since I can remember I have had very thick and slippery saliva with an elastic consistency. I have never been able to eat breakfast because it is so bad in the morning that if I eat anything I will vomit. As a child I wouldn’t even be able to eat until I got home from school. I would often have to go to the nurse’s office because I felt like I was going to throw up. They thought this was stomach related because that is the reason most people have the urge to throw up. But my problem has always been the gagging sensation caused by the consistency of my saliva that coats the back of my throat, esophagus, and uvula making me have a constant gagging sensation that I am unable to stop. Because of this involuntary reflex during these episodes it becomes very difficult to breathe and I find myself gasping for breathes any chance I get between gags (this feels very similar to choking on food). I have had to call 4 ambulances and been to the emergency room numerous times and have also passed out from not being able to breathe. Around December of 2005 (age 21 at the time) it has become a lot worse and as a result to all of the trauma associated with this I now have constant anxiety/panic attacks throughout the day that exacerbate this condition and I am unable to work or leave the house. I was forced to quit my job in Minneapolis and moved back to home so my family could take care of me. I had lost around 50 pounds in 1 months time (went from 200lbs to 150lbs) because I was unable to swallow food without causing an episode so I was unable to eat more than a few crackers a day (if that). On top of that I can only breathe out of one nostril barely and only a small amount of air can pass through like a tiny straw due to a deviated septum. It takes me 10 to 15 seconds to get one full breathe from it so when my air passages become obstructed from this I have no back up. I have had a Septoplasty surgery to try to relieve this and it didn’t help.

Medications: Ativan, Singulair, Rhinocort, Zertec, Astelin, Albuterol, Numerous different courses of Antibiotics, Sinus irrigation with Neti Pot.
Symptoms: Excessive thick saliva/mucus (clear in color) throughout sinus/throat/mouth, Choking/Gagging sensation, Thick post nasal drip (constantly clearing my throat), Panic/Anxiety attacks, Painful cysts/pimples all over body (seems to be worse on scalp, chest, back, and upper arms).
Tests done: Barium Swallow Test (2006), Allergy Skin Test (2006), Breathing Test (2006), X-ray of chest (2006), CT Scan of chest and throat (2006), Septoplasty Surgery (in 2003),
Test Results: (Barium Swallow Test) came back fine. It showed that I have a lot of trouble swallowing but no obstructions or irregularities. (Allergy Skin Test) came back with strong allergies to tree and grass pollen. (Breathing Test) came back Normal. (X-ray and CT scan) both came back normal.

 
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Old 03-15-2011, 08:59 PM   #2
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I have exactly the same problem as you.

I went to an Ent today who didn't want to even give me anything cause he's afraid of what the problem might be. I am going to a neurologist soon because I can barely eat and have lost 36 pounds. I feel my throat muscles aren't working right cause of the mucus cause I have to keep swallowing every second. Every kind of doctor has said I need a pychiatrist cause I'm having panic attacks but the panic attacks are from the swallowing problem and the mucus which haunts me every second of my life!!! Oh know it sounds weird, but it won't stop, I know you understand fully what I am saying. I only wait for sleep everyday and I don't get much cause I have to get my throat to cooperate. And I dread the next day and worry whether I'll be able to get anything down. I take alot of the same medicines as you and this all started when I went to a new Ent who decided to change all my medicines. And started me on allergy shots. Well, I woke up 9-1-11 sick and have been since then and 7 months is a long time to keep choking without having a nervous breakdown. But no one understands. I even developed agoraphobia(fear of leaving the house) because of it. I can only eat maybe 20 different foods and this is getting quite old. Please let me know if you have got any answers yet.
I will do the same.

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Old 03-16-2011, 09:22 PM   #3
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hello Stacy. I am very sorry to hear that you are experiencing the same health problems as I am. I know exactly how you are feeling and I know how frustrating it is having something uproot your entire life and making you feel like a prisoner to your illness. I also am met with doctors constantly wanting to focus on the psychological aspect of this whole thing. It is hard to get them to listen or understand that all of these things came as a result of the mental trauma associated with whatever is making our mucus unmanageable. Sometimes I want to ask the doctors “If I were to jam my thumb down your throat and you started choking on it… Would you focus on removing my thumb? Or would you focus on how to live with my thumb in your throat for the rest of your life?” I feel like if the physical element of this were to stop, the anxiety, panic attacks, post traumatic stress, and agoraphobia would stop as well. I have been living like this since July of 2006. Some days I feel absolutely hopeless and will stop going to doctors for months at a time. I find it hard to keep hopeful when I am constantly met with the same results that don’t work. I have learned a lot about the medical system over the last few years and it often feels like (at least in my area) they are sheering sheep in an assembly line. They just want to get you out the door and the next one in without really listening to your story, how this is affecting your life, or feeling any sympathy at all. I wish I could tell you that after all of this I found a miracle drug or treatment. My advice to you is to find a doctor that you feel comfortable with and get lots of face time. If they send you to another doctor or specialist (which they will) always go back to that same doctor (consider this home base). Get them to know your story and be familiar with it. Get them to see you as a person and not a number. Give them no choice but to take interest in your situation. In December I went to the Mayo Clinic in Rochester, MN for the third time and I really stressed to the ENT there just how my symptoms were affecting my life. After every question I answered I would tell him exactly how it was debilitating my life and in what scenario I was unable to do everything. Throughout the entire conversation I am sure that I said “I haven’t been able to leave the house in 4 years” and “I am unable to work” at least 5 times until I was sure that I saw the expression in his eyes that he got it. I even recorded the entire appointment with a visible tape recorder for my own reference (this is how serious I gotten about finding a diagnosis). Eventually the ENT didn’t find anything abnormal in the ways of cysts or polyps but he did set up some appointments with other specialists in the clinic (Gastroenterology, Allergy, and Psychology). It is my understanding that they are trying to figure out if it is one or many different things all working together. Then all of the doctors network together to come to a conclusion. I am unsure if they are on the right track, but at this point I am willing to do everything just to eliminate what it isn’t so I can focus in on what it may be. I am going to follow up with these doctors once the snow clears up in my area. I am unable to drive at the moment and the Mayo Clinic is about an hours drive away so I am at the mercy of depending on friends to take time out of their lives to take me. I want to tell you Stacy that I am no stranger to the feeling of “not wanting to live anymore because of it”. Of having people ask what it is and not being able to have an answer for them. Or watching everyone you know keep moving forward in their lives while you are suspended in a mid-traumatized state. I want you to know that you are not alone and there are others going through the same things as us. Please try to remain hopeful and I will keep you up to date with anything I find as well.

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Old 03-17-2011, 05:39 PM   #4
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. Went to my family doctor today and emphasized how my throat is ruining my life and she told me to see a pychiatrist cause it's all in my head. I went to an ENT the day before, he said the same thing. No one will even try medicines. I was in the hospital 2 weeks ago and my gatroenterologist scoped me and told me that I am not crazy that this is a sinus/mucus problem and he has seen it before. He did give me Claritin (which I took before the ENT screwd everything UP) but it made me have anxiety cause it made the mucus thicker.
I woke up this way Sept. 1st and that was after a new ENt decided to change all my medicines. But I've tried to put them back and it won't work. Now I can't eat ao drink hardly and it's really really scary. Next week I see apulmonary, psychaitrist, pychologist, and I am getting an EMG for a neurologist and a total body bone scan for a Rheumatologist. I'm really trying.

I hope we can both beat this thing and then go beat up the doctors who are ignoring us!!! Please promise to keep in touch as you are my only hope of figuring this out. Are you taking any antidepressants for this?The pychiatrist told me the ENT had really caused a lot of inflammation in my body and the inflammation went to my brain. I tried Celexa(baby dose) and it made me pass out from panic attacks.I developed fears especially of medicines because they react so bad now. I quit the benzodiazepines(Ativan. xanax, valium) cause they made me depressed afterwards but my throat seems to have gotten a lot worse since I did(2-4-11).I look at my calendar everyday trying to figure out what I could have done to cause this. Oh well, keep in touch. You have a new friend who unfortunately is gagging every second you are. Also, how did your problem start?
Stacy

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Old 03-18-2011, 08:15 AM   #5
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

My experience with the doctors I have seen is that some believe it is ALL in your head, and others have said that even though they are having trouble pinpointing the physical ailment that started this.. Once you start having psychological symptoms associated with it as well, both areas need to be addressed because they start to develop a symbiotic relationship where they set each other off. The fear, panic, and anxiety will trigger an choking episode and our difficulties with mucus and choking sensations will trigger the fear, panic, and anxiety. At this point where there is this giant circle of hysteria and both elements are feeding each other, it is necessary to address and treat both areas. Although I really wish I could just focus on the main problem as well. Up until recently I have always interpreted them focusing on the anxiety as them being on the wrong track and misdiagnosing. But I have decided I am going to go down that route as well if for nothing else than to confirm to them that there is real underlying threat. After dealing with the trauma associated with this for this long, sometimes it is hard for me to think straight and focus. I have got into the habit of distancing myself from my emotions/feelings and sometimes nothing seems real. It kind of feels like my mind started doing this as a self defense mechanism to deal with the trauma. It is very inconvenient though trying to take a proactive approach to finding a diagnosis when at times I feel barely awake and incoherent. I am very happy to hear that you have so many appointments lined up. My thoughts are with you and please try to stay as positive as you can. Do anything you can to take your mind off of the stress of this. I have found that listening to music, watching movies, reading, video games (anything that can partially take you out of your head) can help while you are awake. Sip hot water to thin the mucus in your throat. Keep a phone near you and know that if you have to call an ambulance there is absolutely no shame in that. I am not on any antidepressants at the moment but I have not seen a psychiatrist yet so that may change soon. I am still on Ativan but I only use it when I am having a terrible episode and it feels absolutely necessary. I too dwell on the start of this and try to dredge my brain for anything I could have been exposed to or may have had a part in such a drastic decline. I have always had a post nasal drip. As a kid it would make me nauseas and I would often vomit because of it. I eventually got somewhat used to it and in my teens it got a little better. In the middle of May of 2006 I woke up one morning with a lump of mucus in my throat. I tried washing it down with a glass of water and it still wouldn’t move. It had an elastic consistency to it that I had never previously experienced. I went into the bathroom to try and cough it up with all of the force I could and it would still not move. It was gagging me and I had the dry heaves all morning. I tried removing some with a finger down my throat and the mucus on my finger was strangely elastic. I could put two fingers together and pull them apart around a foot before the strand would break. I eventually went into work and felt the same discomfort all day. I woke up the next morning still feeling like the mucus in my mouth and throat were abnormally thick but I didn’t have the overwhelming nausea I had felt the previous morning. Things stayed the same for about two weeks with sporadic bouts of nausea and gagging episodes. In early June I went on an annual camping trip with a group of my close friends. I spent the day just trying to relax and talk with some friends I had not seen in a while. When the time came to sleep I crawled in my tent and did so. I woke up at around 4am having the strongest gagging episode I had ever experienced. I got out of my tent and tried throwing up. I had a little success but the more I threw up the more it became harder to breathe and the more my throat felt obstructed. Out of my mouth were these hanging thick strands of mucus. In a desperate attempt to clear my airways I tried pulling them out and I could feel them pulling up more mucus from deep inside my throat like an elastic rope. At this point I was gasping for breaths and trying to convince my friends to take me to the E.R. They had been drinking all night and didn’t understand the gravity of the situation so I got in my friend’s car and was going to attempt to drive myself. I grabbed the steering wheel and before I could even look for the keys.. All of the blood vessels in my body felt like they were being stabbed with needles and I was positive I was choking to death. The last thing I remember from that night was gripping the steering wheel really tight and everything going black. After that night the phlegm and mucus started causing terrible anxiety/panic attacks and I had to quit my job and move back to my home town to be with my family. A couple things that come to mind that may relate to your situation and might be worth checking out.. After working with a doctor here for a while he came to the conclusion that I should being on allergy shots. He told me he had seen them work wonders for people. After seeing the allergist at the Mayo Clinic he told me although I have strong allergies to a lot of things, he didn’t think I would benefit from them and it might also be dangerous if he were to administer them (something about a small percentage of people have even died from them). If you noticed your condition getting worse after you had them I would look into that. Also when I first started seeing doctors in Minneapolis one doctor mentioned the possibility of something called “Globus Hystericus” or “Globus”. Which is a symptom of some physical throat disorders like Reflux etc. It is when someone has the sensation that there is a lump in their throat and the body responds the same way it would if there was by choking and gagging. I do believe that we have something going physically wrong going on inside of our throats but maybe something like this is making a bad problem worse. It might be worth bringing up to your doctors. I will definitely keep in touch. Although it is unfortunate that we are both going through this I feel like the odds are becoming more in our favor.

 
Old 03-19-2011, 07:57 PM   #6
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I posted a reply yesterday but it didn't get posted so here I go again. I made an appointment yesterday with my allergy doctor so I have 5 appointments next week and my anxiety level will be through the roof. I was taken out of the house today to a store and it was tough but I did it. I trying to get over my agoraphobia but I keep telling everyone it's from my stupid throat gagging me 24/7 that I can't calm down but they just don't understand.
At the beginning of this problem I was going to a new ENT who started this whole trauma. She put me on allergy shots for the second time in my life. I feel she of stayed with her ENT profession instead of dabbling in allergies and whatever else. She shanged all my medicines including my hormones and everyone looks at me when I tell them she did that.I should I quit when she started changing things around. My pychiatrist said she changed everything around and caused inflammation in my body which lead to inflammation in my brain and he said you can not tell someone when things are going to come back to normal!!!!Thank you very much for that statement!!! She started changing things last June and I'm not better yet!!! In fact, I feel like I went back to day one when I went into the hospital and got put on predisone two weeks ago. I had to get off of that myself cause I was having anxiety attacks all day long!!!! It's been eight days and I still feel it!!!! If you have anxiety attacks try never to go on predisone or watch what over the counter medicines you take. For instance, cold medicines just like the predisone.
I'm hoping for a miracle next week from either the pulmonary doctor, allergist or pychatrist or maybe a combination. I hope to God someone has an answer cause this is getting real old!!!
Stacy

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Old 03-21-2011, 10:04 AM   #7
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I was wondering when you went to the Mayo Clinic? I hope it was recently and you're waiting for an answer. I really hope it wasn't five years ago cause you won't get an answer. I had one of my worst nights last night. I laid down and instead of falling asleep and getting freedom from my throat for a couple of hours, it woke me up two hours after I laid down with a full blown panic attack and the thickest mucus yet. I have been taking tussin DM right before I lay down, and I swear it is making things worse. It's supposed to thin the mucus but I don't think so. I am going to the pulmonary doctor today and I'm afraid he's going to blow me off. I hope not cause I'm losing hope again. If he can't help me or the allergy doctor tommorrow can't, I have no one else. And this has gotten so bad, I can't handle it anymore. UNless, an antidepressant can calm me down instead of making me worse.
Stacy

 
Old 03-21-2011, 07:12 PM   #8
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Quote:
Originally Posted by chrisgrahams View Post
Diagnosis? This is an effort to be as concise as possible so nothing gets left out as any of these symptoms may indicate what this might be. First of all I have been trying to seek a diagnosis for this chronic condition for many years. I feel that I have been misdiagnosed in the past because nothing has yielded any results. I feel it is time to search the less common possibilities of what it might be (autoimmune) etc. I eventually stopped seeking treatment for this because I would reach road blocks everywhere I went. Doctors would be stumped and pass me on to the next doctor or specialist and each one came up with nothing. Following through just kept coming around full circle with nothing to show for it. All of this has killed my hope for ever having a normal life. I need someone to follow up and work with me to help me figure out what this is.

Ever since I can remember I have had very thick and slippery saliva with an elastic consistency. I have never been able to eat breakfast because it is so bad in the morning that if I eat anything I will vomit. As a child I wouldn’t even be able to eat until I got home from school. I would often have to go to the nurse’s office because I felt like I was going to throw up. They thought this was stomach related because that is the reason most people have the urge to throw up. But my problem has always been the gagging sensation caused by the consistency of my saliva that coats the back of my throat, esophagus, and uvula making me have a constant gagging sensation that I am unable to stop. Because of this involuntary reflex during these episodes it becomes very difficult to breathe and I find myself gasping for breathes any chance I get between gags (this feels very similar to choking on food). I have had to call 4 ambulances and been to the emergency room numerous times and have also passed out from not being able to breathe. Around December of 2005 (age 21 at the time) it has become a lot worse and as a result to all of the trauma associated with this I now have constant anxiety/panic attacks throughout the day that exacerbate this condition and I am unable to work or leave the house. I was forced to quit my job in Minneapolis and moved back to home so my family could take care of me. I had lost around 50 pounds in 1 months time (went from 200lbs to 150lbs) because I was unable to swallow food without causing an episode so I was unable to eat more than a few crackers a day (if that). On top of that I can only breathe out of one nostril barely and only a small amount of air can pass through like a tiny straw due to a deviated septum. It takes me 10 to 15 seconds to get one full breathe from it so when my air passages become obstructed from this I have no back up. I have had a Septoplasty surgery to try to relieve this and it didn’t help.

Medications: Ativan, Singulair, Rhinocort, Zertec, Astelin, Albuterol, Numerous different courses of Antibiotics, Sinus irrigation with Neti Pot.
Symptoms: Excessive thick saliva/mucus (clear in color) throughout sinus/throat/mouth, Choking/Gagging sensation, Thick post nasal drip (constantly clearing my throat), Panic/Anxiety attacks, Painful cysts/pimples all over body (seems to be worse on scalp, chest, back, and upper arms).
Tests done: Barium Swallow Test (2006), Allergy Skin Test (2006), Breathing Test (2006), X-ray of chest (2006), CT Scan of chest and throat (2006), Septoplasty Surgery (in 2003),
Test Results: (Barium Swallow Test) came back fine. It showed that I have a lot of trouble swallowing but no obstructions or irregularities. (Allergy Skin Test) came back with strong allergies to tree and grass pollen. (Breathing Test) came back Normal. (X-ray and CT scan) both came back normal.

 
Old 03-21-2011, 07:23 PM   #9
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Sorry to bother you Chris. I went to the pulmonary doctor today and explained about my throat. He said he didn't know if he could help that but when I told him that when I am trying to dislodge something out of my throat which is never sucessful, and I mean never, I sometimes get a "mucus plug" that comes out. He told me that that is what is called a curshmann spiral and it is from the lungs and he asked me if I ever pulled one apart if it was elastic and stringy and I said yes. He said the cure for that is musamyst breathing treatment and it would get rid of it. However if your unlucky and are allergic to sulfa you are screwed!!!Guess what, I'm allergic to sulfa. I felt like crying. He then told me that 2400 mg of guiafenesin would probably work and maybe even help my throat and I told him I can't take pills or eat or swallow water!!!
He said they are horse pills and I felt like crying again. Then he said to talk to the pharmacist cause I could take generic which is not time released and mash it up in apple sauce. I don't know if I want to try this yet but will talk to the allergist tommorrow. I'm just so afraid of side effects cause they are happening all the time now. This info will probably help you a little.
Stacy

 
Old 04-17-2011, 06:49 AM   #10
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hello Stacy. Sorry for the long pause since my last post. I received notification emails for the first few posts you made and for some reason the last couple didn’t come to email. I figured you just stopped posting and then out of curiosity I checked the actual website and you made two new ones that are now almost 3 weeks old. I need to get that figured out and I am sorry for not being able to answer your questions sooner. To answer your first question, the last time I was seen at the Mayo Clinic was in December of 2010. I have not been able to find reliable transportation since then but I am quite anxious to get back. During the winters here in Minnesota just going to the gas station can be a journey so traveling an hour and a half away is impossible for someone with my anxieties and lack of transportation. Because of this I am even flirting with the idea of actually moving to Rochester and just living there until they can figure out what this is. I hope you have made some progress in your search for a diagnosis since your last post. Or at least have found some things that are helping with the anxiety/panic until it all gets worked out. I have been having some pretty rough episodes myself lately and I am planning on going to the local doctors again here this week. I think I am going to ask to be seen by a different doctor than usual just in case he/she is able to pick up on something the previous ones weren’t. Don’t worry about bothering me. I don’t see it like that. I know exactly how you are feeling and I just wish I had more answers for you than I do. I hope you have made some ground with the doctors that you have recently seen and if not visibly try not to feel discouraged. They will remember your face and story next time and they will have to try something else because they will see what didn’t work. A lot of diagnosing is the process of elimination and sadly you often only get to try one thing each visit. ~Best, Chris

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Old 04-17-2011, 02:51 PM   #11
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Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I thought you just blew me off!!!Glad to hear from you again. I have gone to a lot of doctors since I last talked to you. On Thursday I went to the Fifth ENT and I chose one from the Pittsburgh area to get away from my home town. Ialso have anxiety in the car now and it wasn't a pretty ride, but I took magazines and a book and it helped. The doctor had me go into a room with a speech pathologist and she put a scope to the back of my throat infront of the voice box(larnyx) and there was the problem. It's swelled twice the size and he explained it's probably from my gagging all the time and acid reflex. They are going to teach me how to overcome this but not for awhile cause my insurance will not pay!!!They may send me to a swallowing institute if this can't be resolved and I told them I'll just have to make payments cause I can't live like this any more. He explained that the voice box is really made wrong and what is happening is it is swelled and it has thousands of nerve endings that send impulses to the brain that are telling it that I have mucus that needs to be removed and whatever else it feels and 24/7 my brain thinks it has to get this stuff out. I never mentioned the anxiety problem to test him cause my pychologist told me not to tell him cause it appears everyone hears anxiety and bolts!!!So the next thing he tells me is that there is something wrong with me if I don't have anxiety cause this should be driving me nuts!!!!Then I told him the truth!!! He also explained that I have to start drinking 64 ounces of anything cause I'm dehydrated and my throat needs the liquid to get rid of the inflammation. This is going to be very hard as I have always drank 1-2 glasses a day and that is pushing it...especially now with my problem. So I have to try to overcome what my brain is telling me about not being able to eat and drink!!! Easier said then done since is 8 months of this. I hope he is right but after getting answers from everyone I find it hard to believe!!!Also he told me what everyone else said, I must take 2 Nexium a day and that I have been doing. I din't get to talk long to him but I have a couple questions. Like how long do I have to suffer and now I'm getting a tickle in my mouth and throat and it's driving me more crazy.
I also got a phone call from the rheumatologist and he told me my ANA came back positive so I had to go to the hospital today for more blood work to find out if I'm developing an autoimmune disease and if I am which one. My mouth has turned so dry and it's a symptom of a lot of diseases. Tomorrow I go to the neurologist to find out about other diseases and if I had a stroke or maybe a tumor?!? He did an EMG on my extremities and I think it was ok. It ought to be interesting. Well, I'll let you know if anything happens. I'm having a hard time hanging in there cause of my throat but maybe someone will fix me. Glad to hear you didn't stand me up????!!!! Stacy

 
Old 04-20-2011, 07:41 AM   #12
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chris486 HB User
Re: Thick excessive mucus causes me to gag/choke until I pass out.

I am very glad to hear that you are making progress! It definitely boosts my hope some and I am excited to hear the results. I am also apprehensive about feeling hopeful too early on because of past experiences, but it awesome that they are being this thorough with you. I find that this rarely happens. And leaving the anxiety out of your symptoms probably really did have a large factor in that. I know what you mean about “I'll just have to make payments cause I can't live like this any more”. When I was living in Minneapolis and this all started happening I didn’t have health insurance at the time and I put every visit and test on my credit cards. Not the best idea.. But I figured I would rather be able to work and pay them off slowly than not be able to do anything at all about it. It is really hard for me to drink over two glasses of water a day as well. I have gotten into the habit of carrying around a 32oz Nalgene bottle where ever I go and I force myself to take a drink every time I can. In a weird way I feel uncomfortable going anywhere without it now. It helps with the anxiety a bit knowing that if I need to I have a large amount of water with me to help clear out any obstructing mucus. I have also been really curious about checking into autoimmune but no doctor has recommended it (even after asking) so I am unsure of what steps I would need to take. My family has a history of Lupus and Rheumatoid Arthritis so I wouldn’t be surprised. I hope your tests this week come back with more answers and I hope you can find some comfort in the meantime. Take Care ~Chris

 
Old 04-20-2011, 01:05 PM   #13
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PA_Stacy HB User
Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I'm having a very bad day. I'm choking on my imaginary mucus and real mucus. The ENT told me that since my voice box is inflamed it thinks there is mucus there but I still think there is. I still don't trust anyone when they give me a diagnosis since this has been going on for eight months!!! It's like I'm being tortured everyday all day long. I can't stand it when people tell me to take my mind off of it!!! They have no idea what I am going through. It's a 24/7 reminder that there is something wrong with my throat and it doesn't even let up in the middle of the night cause when I get up to go to the bathroom, it goes with me!!!!

I'd like to see them with this problem and see how they feel!!!!Anyway, tomorrow I go start speech therapy but truthfully I can't see how this is going to help. I need to learn how to eat. But I'll give it a try, but I'll be very anxious the whole way there and back cause trips in the car cause me anxiety like you wouldn't believe...oh yes you would. We have a lot of the same problems!!! Now I have more anxiety cause my nose has started getting congested and that was what kept me a little calm before. My saline rinses aren't even helping and I'm afraid to try my Rhinocort since it turned me to cement last fall when this all started and the doctors don't want any medicine introduced since I'm rwcting to every thing and I have dry mouth and throat.

I know how you feel about having the bottle with you for support. I flip out if I don't have gum or candy with me. It's like a security blanket and if I don't have it there, I flip out!!! Anyway, I'll let you know what happens with this speech therapy. I also think you really should be checked for auto immune diseases since genetics is a big factor.I still have to get a total body bone scan that I've put off cause I can't drink alot to get the nuclear out of me so it doesn't ruin my kidneys and other organs!!!
Talk to you later. Stacy

Last edited by Administrator; 07-24-2011 at 01:27 AM.

 
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chris486 (04-21-2011)
Old 04-21-2011, 10:23 AM   #14
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Location: minnesota
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chris486 HB User
Re: Thick excessive mucus causes me to gag/choke until I pass out.

Good morning Stacy. I often find myself feeling similar. I just want an escape from the trauma. It
I want to be around to witness it even if at this period in my life I can’t partake in it the ways I want to.

I think it would be wise to allow your therapist to take any course of action necessary to get the help that you may need. I completely understand where you are and depression combined with trauma often ends up with seriously irrational thoughts and actions. So please try to take a serious and honest look at your intentions and emotions behind these thoughts.

You and I do seem to have some strange sensitivity and reactions to medications and I wonder if that may be a part of whatever this is. When I got my first Cystic Fibrosis test done the woman administering it applied a liquid on my arm that was supposed to induce sweating (sweat test). After about a minute my arm broke out in a large rash where she had applied it and she told me that she had been doing these tests for many years and she had only had one other person ever have an allergic reaction to it.

I am also very curious about the effect speech therapy might have on this. It might help by making you aware and able to control what exactly is physically going on in your throat and that information might provide some relief on some level. Anyways, I hope that everything goes well for you today and your security blankets do the best they can. ~Best, Chris.

Last edited by Administrator; 07-24-2011 at 01:29 AM.

 
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PA_Stacy (04-21-2011)
Old 04-21-2011, 07:43 PM   #15
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Join Date: Mar 2011
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PA_Stacy HB User
Re: Thick excessive mucus causes me to gag/choke until I pass out.

Hi Chris. I want to escape the suffering or trauma as you put it. I also love life but after eight months feel I am never going to get better.

I started crying today at the beginning of my session and told the therapist I didn't believe that they knew what was wrong with me cause everyone keeps guessing. She got ****** and got up and showed me my voice box again and said the doctor has diagnosed you with LPR and this is what it looks like. She explained it could have taken ten years to get to the point where I was at and I was instructed on things to do to stop irritating it and get healed. Acid reflux has splashed up on my larnyx and it is quite inflamed. It is getting sensations that I need to keep clearing and gagging and sending those false impulses to my brain. I gag and it starts all over again. It's a vicious cycle and I have to learn to break it and then I can get better. So I was given the usual reflux instructions which I follow to a tee except for the food part. My bed is elevated six inches, Proton pump inhibitors; etc. Then we went over all the foods toavoid and boy are they strict. And they want at least 64 oz. of water cause that helps get rid of the inflammation. Then the hard part...everytime I go to clear my throat or gag I either sip something or swallow the mucus. I make this really weird noise when I try to clear my throat and it appeared in October and I do it hundreds of times a day so I have a lot of work to heal myself. There is this thing she wants me to do during the day that involves the tongue where you make like a purring noise and then elevate your voice up and down and it's supposed to help heal your larnyx. Next week I think she may torture me with food I have been avoiding cause she told me I could eat anything and I only believe I can eat like twenty soft items. I'm scared. So there you be...just think if this is what you have. I've just gave you instructions on how to heal yourself. I'll let you know how next week turns out with the MRI, blood work and of course...the food torture. Have a nice night and hopefully the future will be brighter. Also have a nice Easter and eat some goodies for me cause I don't have the nerve...yet!!!!! Thanks for all the encouragement Chris. You're a rock!!!!!
Stacy

Last edited by Administrator; 07-24-2011 at 01:34 AM.

 
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