Re: Where can I turn when no one has the answers?!?
I know a wonderful Dr who deals with problems like yours. He is an orofacial surgeon that specializes in cleft lip, palate, and other head/neck treatments and is quite an artist at making devices to close gaps and holes and fill in missing pieces. He is at the University of Nebraska in Omaha, Dr Jeff Markt. If you can travel to see him, I think you'd be very pleased. He works with a team of physicians, so if any surgical treatment is required, that could be done there as well. Good luck-I truly think you can be helped. It is unfortunate you have not found someone locally who knows what to do for you. Worth a trip to Nebraska!