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Old 07-29-2004, 02:17 PM   #1
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Talking Who has/had hyperparathyroidism?

I was diagnosed with osteoporosis in my hip (-3.1) and osteopenia in my spine a few months ago. I am 45 and am PREMENAPAUSAL no steroids or meds in my past to cause this. My gyno just said I had the worst number of anyone my age he's ever seen and put me on Fosomax. My spine dr. (I have scoliosis... not bad enough where I need surgery though) said I should see an endocrinologist. My regular dr. just gave me some basic blood tests and said I was fine and to continue with the Fosomax. Well, I got to thinking about what the spine dr said and I decided to see an endocrinologist. She thinks it could be hyperparathyroidism... or malabsorption of vitamin D. I just had the blood taken today (7 vials!) and my urine will be collected tomorrow. After reading all about hyperparathyroidism, it seems like it may be the reason I have osteoporosis!! In a way, I hope it is because then I can have the bad glands taken out and hopefully rebuild some bone before I hit menapause (soon, I'm sure).

Anyway, who out there has osteoporosis due to hyperparathyroidsm? What's been your experience with this?

Thanks!

Lisa

 
Old 08-12-2004, 05:41 AM   #2
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Re: Who has/had hyperparathyroidism?

Lisa,

In 1993 I was diagnosed with hperparathyroidism. Actually my GP was the one who found it during a yearly physical. After running a blood test for serum calcium, he sent me to an endocrinologist. There I did a 48 hour urnine collection test and was officially diagnosed with have hyperparathyoidism. I was placed on phosphorous treatment until they could operate, about two weeks. The low phophorous causes muscle weakness and extreme tiredness. I was told my phophorous was to the point that I probably would have collapsed in a week and not been able to get up. I had a wonderful woman surgeon who performed the para********ctomy. They found that my right lower parathryoid gland have a benign growth in it and the gland was removed. Before I had the surgery I was not allowed to have any dairy products at all. Believe they said there was a risk for kidney stones and gall bladder stones to form. After the surgery I was able to and encouraged to have all the dairy I wanted. I went through what they call Starved Bone Syndrome for a week or so, but that was normal. My bones were taking all the calcium that was leaching out of them into my blood and bringing it back into the bone. My major complaint during this time was that my fingers would go straight and my thumb would curl toward my palm. That was typical of the Syndrome. The only lasting side effects that I have from the surgery are that I do not have complete feeling in the area from my chin to the V in my collarbone. Again this is not unusual. There are a lot of nerves in that area and it is hard not get a few of them. I also, about 5 years later, developed hyperthyroidism. Again this is not uncommon. I was told by my endocrinologist that it was because of the surgery. The parathyroids are so small and tucked in behind the thyroid and there is bound to be some damage done. Usually does not show up right away. I am now on Synthroid 75 and feeling fine.

Hope this information was of help to you. Good luck.

 
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Old 08-13-2004, 01:48 PM   #3
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Join Date: Mar 2004
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Re: Who has/had hyperparathyroidism?

Well, it's official, I have no hyperparathyroidism or malabsorption of vitamin D... all of my blood work came back normal (I suppose that's a good thing). In any event, my endocrinologist wants me to see a specialist at Columbia Presbaterian in NYC... guess I'll be getting on the train (I live in NJ) and heading out to the city!

 
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