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Old 08-06-2009, 06:20 AM   #1
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My Teenage Daughter Needs Help!

Good Morning One and All...

My lovely 14 year old daughter could sure use some help. Please indulge me while I explain.

"Candice" had been overweight the past five or so years. Indeed, she had hit 210 pounds on her 5'4" frame. About five months ago she became chronically nauseated and reported an overall sense of "queziness." She found it difficult to go to school, but she did, for fear of vomiting. The notion of eating was totally gone, as it only made her feel worse. I might add she really wanted to eat, but couldn't tolerate its result.

A large weight loss naturally ensued and she found herself down to 156 pounds. Her PCP failed her, focusing ONLY upon an eating disorder. Two trips to the E.R. for fluids later, she was finally referred to a pediatric gastro-enterologist. The guy immediately hospitalized her and an ultrasound was performed. Her gall bladder was trashed, so she had it removed. Her immediate recovery was hell, but she finally noted some relief. But not for long, as her previous symptom constellation has returned with the added pleasure of severe pain along her upper abdomen, especially during the night and in the morning.

We're all at a loss here. I'm willing to acknowledge she has an eating disorder in that she just can't eat much, I'm still wanting to rule-out physical stuff before we deal with emotional issues. Can anyone offer some meaningful insight? We'd really appreciate it.

Last edited by Administrator; 08-08-2009 at 07:39 PM. Reason: Read the posting rules as to why part of your post was removed. Ms_Mod

 
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Old 08-06-2009, 07:34 AM   #2
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Re: My Teenage Daughter Needs Help!

When did she have her gb removed? And what is her diet like since - what does she eat normally?

 
Old 08-07-2009, 05:21 AM   #3
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Re: My Teenage Daughter Needs Help!

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Originally Posted by Titchou View Post
When did she have her gb removed? And what is her diet like since - what does she eat normally?
Well, traditionally her diet was very poor, and she readily acknowledges that. I mean, she was a comfort food eater, a very impulsive emotional eater. When her symptoms hit earlier this year she cut way back. The surgery was approx 45 days ago. Since that time she'll only eat saltines, honey nut cheerios, and chicken soup. She will not risk eating anything that will exacerbate her symptoms, though she sincerely wants to eat "normally." I convinced her to use whey protein and a liquid vitamin/mineral product two weeks ago. She tolerates them. Incidentally, she's been tested for the gluten thing and it was negative. Her upper GI showed only a mild infection in the valve from esophagus into stomach. I really appreciate your reply. This poor kid's world has been turned upside down.

 
Old 08-07-2009, 05:32 AM   #4
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Re: My Teenage Daughter Needs Help!

OK, here's the physiological side of the issue. The reason she had problems bthat caused the removal was there was too much fat in her diet and it caused stones, damage or malfunctioning of the gb which caused the pain and other symptoms she was having. When your gb is removed, a small bile duct essentially takes over the work of the gb by putting bile into your digestive system to digest the fat in your food. It takes a while, with some people, for the duct to "come online" properly, so to speak. What I did when I had mine out - and what I always recommend to folks - is to eat as fat free as possible for 4 weeks after removal of the gb. That gives your body time to recover from the surgery and the bile duct to start functioning properly. You can eat bread, baked chiken, turkey, yogurt, veggies, etc. But no cheese, milk, eggs, fried foods, red meat, butter, etc.

After the 4 weeks, start slowly introducing fat into the diet. A small pat of butter on bread or cracker, a bite or two of cheese. She'll be able to tell how much she can tolerate as time goes by. There will be times when the system gets overloaded and she'll have ot make the mad dash for the bathroom, but it happens to most of us. So you just wait a week or so before you try that food again. It probably took 2-3 months before I could eat anything I wanted without a problem.

I hope understanding how all this works will help her.

 
Old 08-08-2009, 10:10 AM   #5
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Re: My Teenage Daughter Needs Help!

Thanks so much. She's out of town on vacation until the end of next week. I'd like to give her the opportunity to forget about the mess as much as she can while she's gone, so she can perhaps relax and refresh. I'll take your advice up with her when she returns. Again, thank you.

Last edited by Administrator; 08-08-2009 at 07:39 PM.

 
Old 08-09-2009, 08:10 AM   #6
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Re: My Teenage Daughter Needs Help!

did they say ANYTHING at all about just how her pancreas is doing or actually check her amylaise and lipase? these are just two really needed enzymes that the pancreas is responsible for creating and helps to digest any food we eat. when i first started reading this, i was pretty certain the GB was indeed playing at least soime psrt in all this,then you confirmed that later. but getting an up close and personal looksee into how that pancreas is actually functioning overall would be the next thing to really look at. just checking those two enzyme levels would help alot. if they are normnal, well at least for the most part anyways, that pancreas has been ruled out and you can move onto other possible areas of involvement.

while it just does take a while for that loss of the GB to kick into the next mode as the above poster mentioned, i am just wondering if they have ever actually done a much more in depth type of scan on her? and also checking ALL very basic functions of her overall chem would be needed too. this just includes the liver, kidney and of course those enymes fromn the pancreas to. but labs will only give you part of the overall picture. getting at least an ultrasound done on that abdominal would really be sooo helpful and could possibly find things that would not yet affect her labs, only becasue overall extent of real damage or impairment of them has not yet reachd that "magic" threshold level. thats when most labs actually change, when real affectation of or damage of organs get to a certain point, and not before.

i am just assuming here based upon her diet alone that she also has at least somewhat of a fatty liver issue there too? just really getting that much better look inside at the organs themselves and how the bloodflow is thru them when they simply use that doppler tool attached to the plain old US is really telling with any possible impariment there. i have both a liver and kidney disease and recently at my last US i was also found to have bile duct dilation with my common bile duct being twice the size it should be. this alone has caused me continued and ongoing nausea and pressure and loss of my normal appitite too. many different things can simply cause the symptioms your daughter is having right now that just really need some 'tracking back' to the generators.

by the way, the best possible thing you could have done considering just what was going on with your daughter was getting her to an actual ped GI doc. this is who also took care of my son when he went into "suprise" liver failure and also developed pancreatitis too. just by the by here, loss of appitiete IS a strong symptom of possible pancreatitis too just so you know that. like i mentioned above,simply gettint hose enzymes checked that are made by the pancreas would either lead that doc into the possible "itis" direction or onto somethiong else. but i really do think just given her history and what 'could' be a result, that pancreas just needs a much better looksee, along with that US done on all the abdominal organs and bloodflow thru them too. what tends to happen when one particular organ is removed from the overall picture at any point, the other organs WILL just have to work that much harder just to compensate for that loss of an important function. alot of our abdominal organs are built in with certain 'helper" functions that would simply kinck in and help when one organ is simply not there or has loss of overall function too. its just how god created our bodies. lots of 'defaults' and compensatory mechanisms are just there. this is why our sons liver failure simply was not really showing actual real symptoms til the later stages. crazy but true. some further more in depth testing just needs to be done on your daughters remaining organs to just see how they are accepting that GB loss or for other possible problems too.

i do wish you lots of luck in simply finding the real reason for all this soon. please keep us posted. FB
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Old 08-09-2009, 09:17 AM   #7
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Re: My Teenage Daughter Needs Help!

Quote:
Originally Posted by 5400 View Post
Good Morning One and All...

My lovely 14 year old daughter could sure use some help. Please indulge me while I explain.

"Candice" had been overweight the past five or so years. Indeed, she had hit 210 pounds on her 5'4" frame. About five months ago she became chronically nauseated and reported an overall sense of "queziness." She found it difficult to go to school, but she did, for fear of vomiting. The notion of eating was totally gone, as it only made her feel worse. I might add she really wanted to eat, but couldn't tolerate its result.

A large weight loss naturally ensued and she found herself down to 156 pounds. Her PCP failed her, focusing ONLY upon an eating disorder. Two trips to the E.R. for fluids later, she was finally referred to a pediatric gastro-enterologist. The guy immediately hospitalized her and an ultrasound was performed. Her gall bladder was trashed, so she had it removed. Her immediate recovery was hell, but she finally noted some relief. But not for long, as her previous symptom constellation has returned with the added pleasure of severe pain along her upper abdomen, especially during the night and in the morning.

We're all at a loss here. I'm willing to acknowledge she has an eating disorder in that she just can't eat much, I'm still wanting to rule-out physical stuff before we deal with emotional issues. Can anyone offer some meaningful insight? We'd really appreciate it.
the only thing i can say is " GOD BLESS YOU AND WE HOPE YOU GET TO FEELING BETTER!!!"

 
Old 08-09-2009, 11:56 PM   #8
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Re: My Teenage Daughter Needs Help!

I am so sorry your daughter has to endure all this at such a young age. I would not treat her as if she had an eating disorder she sounds just very sick and unable to eat. The gallbladder can cause all kinds of symptoms her not to feel like eating...just because they took it out didn't automatically fix her so please be understanding and don't believe for one second she has an eating disorder...she is sick to her stomach and perhaps the doctors messed her up inside it is hard to say but be your daughters advocate and insist the doctors do something medically to help her feel better....Take her to a different pediatrician...a female one if you can. It is unusual that a young person would have any problems but surely the doctors can't really be serious about her lack of appetite being psychological...your daughter is telling you she just isn't feeling good so why would you think otherwise?...If she can't eat or she feels sick to her stomach when she eats then experiment with different types of foods and fluids to see what she can eat. Maybe some type of soothing tea, or maybe Popsicle or perhaps something like bananas just anything that she might be able to keep down. OR see if you can get her into a nutritionist and let her work with your daughter on some things that might help or even your doctor can prescribe something that daughter can take for her nausea if that is what she is having. Your daughter must be really feeling rotten most of the time so stick by her and I wouldn't worry too much about weight loss until she reaches about a hundred pounds or so. That is about what a 14yr old at her height should weigh...I would be more worried at finding out why she doesn't feel good. And find her a good female pediatrician. Give your daughter a big hug and tell her you will be right there for her to see why she still isn't feeling good. She must be miserable to hear it is all in her head.

 
Old 08-10-2009, 04:19 AM   #9
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Re: My Teenage Daughter Needs Help!

I can't tell you how much it means to me that you would offer such a comprehensive post. It brings me much hope. It'll also bring her the same when I share the info with her. I will, indeed, keep you posted.

 
Old 08-10-2009, 04:27 AM   #10
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Re: My Teenage Daughter Needs Help!

All who have posted, and may continue to post, on this thread are so very much appreciated. You can't know how much hope your comments bring. Again, she's out of town on vacation just now, and what I think I'll do is send her an email just telling her that so many great ideas have come in. Don't want to give her too much detail now, as I want her to be able to "get away" from things for a while, if she can. Again, thanks to all!

 
Old 08-10-2009, 07:39 AM   #11
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Re: My Teenage Daughter Needs Help!

like ann stated above, YOU are her only advocate so if anyone gives you the run around, just keep hangin in and push til someone listens and is willing to work with the both of you in order to find the answers. something just is not 'right' in there and her docs owe her reasons and a dx of what that something just is. and do NOT allow yourself to ever be intimidated by any specialist with their egos that tend to come thru the door before they do kind of thing? i have seen the best docs make really stupid mistakes on our son during his nightmare and with mine as well. they ARE only mere humans like the rest of us are, ya know?

one huge thing that really has helped me the most in just staying on top of all my sons ongoing medical dramas and mine? obtain any and all medical records from any doc that has laid hands on your daughter with the most importance on any real test results? i keep everything in kind of an expandable folder thing that we just take with us to any and every appt. this really helps with just having ALL of the really important stuff with you at all times? some people who are supposed to be faxing things to other docs for you, well, they do not always do their job. there is nothing worse than waiting and waiting for a very important appt with some kind of specialist and find out that no one bothered to simply forward the needed medical records. just having your own files with everything in them(and always updated) allows you to let them make a copy of "yours". just never give up ANY of YOUR medical records. always get them back so you don;t lose them.

but this just helps TONS to have everything right there in hand. in the event that an ER visit may also be needed, this is sooo helpful to just grab that folder and go. you have all baseline studies that really are very very helpful to any doc who may have to treat on an emergent basis? its all right there and they would know where she 'was' the last time a particular thing was just tested. just something that has truely helped me sooo much in so many different ways. all you have to do is make some phone calls asking for records, they will let you know what needs to be done from there.

just be there for her and believe her. it does matter so much to her right now. and push when you just have to in order to get her very real needs met. please do keep us posted, FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 08-13-2009, 09:08 AM   #12
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Re: My Teenage Daughter Needs Help!

Just wanted to let everyone know my daughter asked for the posts in my thread, so I've emailed them to her. She continues to be highly symptomatic and is finding it hard to maintain a sense of hope. Stay tuned, and thanks again for your help.

 
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