What in the world... is this?!?!?
Brand new to this forum and was hoping that someone...anyone could help point me in the right direction. I have been dealing with a multitude of symptoms (listed below) since I had my last son.
Extreme lethargy (some days can't function), acanthios nigricans, intermittant blood pressure issues (some days it's 116/70 and others 190/130), complete loss of cycles, masculine hair growth (chin, chest, stomach), intense weight gain, stretch marks (that I did NOT get from the pregnancies), abdominal/midsection focused weight gain, somewhat of a buffalo hump, skin changes, hair (on head) loss, wounds won't heal, HORRIBLE memory, pain in certain lymph nodes (around head, neck, inguinial, and on my hoo hoo of all places), awful feet/hips/joint pain, and muscle weakness. Occasional skin tags, ovarian pain, sugar disturbances (hypo like). Don't even mention the COMPLETE lack of libido and I am apparently infertile/anovulatory. Add to this I have a chiari malformation that makes me quite clumsy and jimmies with my coordination.
I went to my primary care and we ran a number of tests - as we were both thinking Cushings. My cortisol (blood draw) was LOW whereas 8 months ago it was off the high end HIGH. CT Scan of the abdomen showed adrenals, liver, kidneys NORMAL. Although my ALT's are high (AST's were normal). My vitamin D was 22 on a scale of 30-100 (calcium was normal). My TSH was normal, T4 low, T3 normal (it was high 8 months ago). LH/FSH was 3.2:1 and an ultrasound shows PCOS for sure on one ovary and the other has a complex mass w/ a solid structure within. We are going to "watch" that. We also ultrasound scanned my thyroid and found a 2.2 mm cyst lesion in the upper lobe of my thyroid. Dr believes this is nothing. The report also said that the thyroid was slightly heterogenous but otherwise unremarkable. I would like to mention that my mother, grandmother, aunt, and cousin all have hypothyroidism. My WBC count was elevated but I believe everything else was normal.
We are pending the results from the 24 hour cortisol collection test and have scheduled to run a Thyroid antibody test, prolactin, TSH/T4/T3 again. I am also going to request the PTH blood test.
I love my doctor but yesterday he really hurt my feelings. I told him that I agree with the PCOS diagnosis but that something started it and I wanted to be sure not to miss that too and I FIRMLY believe something else endocrine is going on here. He said "I hear you, but I don't care what caused it - I just want to make you feel better." Now, here is the deal - I can understand that he just wants to work in the primary fashion - but....I don't want to treat one ailment that is the side effect of the other. The good news is he will pretty much run whatever I want. I am going to have him refer me to an endo next week as well. He put me on trivora, metformin, and spironolactone for the PCOS.
Anyone have any thoughts/suggestions, etc? I am SO open. I just want to know what I am working with.
Last edited by Monkey120; 04-11-2012 at 08:53 AM.