Endo appt. today :(
I am new to this part of the board.
I recently found out that I have elevated Calcium blood levels (currently 11.1), PTH is 80 and last time we checked my Vit D is 15 (currently taking 50,000 units once per week).
Today I see an Endo for the first time. From what I have read, these labs indicate Primary Hyperparathyroidism and the fix is to remove the parathyroid gland that is not working right or remove a tumor.
I work full time at a call center and really cannot afford to not work. I really hope and pray that I just need a parathyroid gland removed and it can be done quick and somewhat painlessly. As of now I feel very run down, have anxiety, depression, feel like I have the flu, nausea, headaches.. generally feel bad most of the time. I always ration my energy. I come home from work and go straight to my bed and rest.
I am married and have three kids. The two that live at home are 18 and 12. We are a busy family and there's always something going on. I have to say "no" to a lot of things, then my husband picks up the slack where he can with other things. I feel like I am missing out and feel guilty because I cannot be the mom or wife that I want to be.
I really hope and pray that I get good news today when going to the Endo. I am going to tell him how this is affecting my life and the I need a solution Now!! I am tired of Dr's not believing how bad I feel and writing off my symptoms. Now that I have proof that I am sick.. I need a cure!!!
Any additional advice on what to say or watch for at the Endo would be much appreciated!
Also, who has taken time off of work for surgery/recover for hyperparathyroidism? I wonder how much time is allowed through Sedgwick (my company's disability insurance claims provider). I talk on the phone for a living and want to make sure that I don't get fired if the claims co. says one week and I'm out of a voice or sick for 2-3 weeks.
Thanks in advance for any helpful info and moral support!
Back from Endo appt. Apparently I am not sick enough to have surgery although the Dr. agreed that I have at least one parathyroid gland that is not working right.
He had a Dexa scan done and my bones are not affected yet. This is why he wants to wait.
I just feel like he doesn't care that I am sick and miserable and barely able to work.
I'm not sure what to do now besides try to do my job while being very sick.
Last edited by Desertmama; 11-07-2012 at 04:45 PM.
Reason: Add info