Re: Severe Primary IGFD- anyone???
I just wanted you to know that a girlfriend of mine has a daughter who has the same condition. She has been taking the injections for over 3 years now and is doing very well. She utilizes the childrens hospital in Philadelphia for this.
I believe that will be your best bet- continue to dialogue with Children's Hospital, and let them work their magic...they really do incredible things for kids.
Im sorry you are going through this with your own health issues...Ill say a prayer that your daughter will be okay...and that you have the strength to deal with all this! Dont let it start affecting your own health, ok?
We are here for you.
RRMS- dx 05
Last edited by Administrator; 01-30-2013 at 08:14 PM.