Originally Posted by Happyheart20
Have had fluctuating high calcium levels for several years. pth levels are are in the normal range. Dexa scores have declined every year. now in the osteoporosis stage. Finally found a endocrinologist who thinks it is hyper parathyroid. He will be setting an appointment with Dr. Shelby Holt at UT Southwestern in Dallas Texas. Anyone have any experience with her or with parathyroid issues.
My scans came out negative, my surgeon and endocrin say this happens quite a bit. I have surgery on Tuesday, Feb 26th (one week from now...YAY).
I have had high fluctuation high calcium levels for 6 years. My new endocrin did a couple urine collection tests that show the same. My Dexa scores have declined and I have osteoporisis and osteopenia depending on where they look. My spine is worst.
I have bone pain. I have trouble sleeping. I have muscle fatigue. I have hair loss.
My PTH was never high. 12% of parathyroid patients present as we do Happy Heart. I can't wait for this surgery.
My doctor says that doctors tend to keep doing tests to watch the calcium level, over and over, waiting til it hits a magic high, like 11. They then keep checking the PTH as well. If it comes back elevated they have an easy, YEP. But if it is normal and you have high calcium you still have parathyroid disease. High calcium and ANY PTH LEVEL that is not very low means you have hyperparathyroidism.
is a quote from another doctor, but it is what my endocrin and endocrin surgeon believe.
I'll try and come on after surgery and tell you what they found