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Endometriosis pain? or something else?

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Old 06-17-2005, 04:45 AM   #1
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Question Endometriosis pain? or something else?

I have been on a progesterone pill since about February. I am having break thru bleeding and I didn't miss any pills. What is going on? I called my gyn who is out on vacation so I spoke to the nurse and she says this happens all the time. My doctor told me that he thinks that I have endometriosis. I haven't been clinically diagnosed though. The pain is excruciating! I have been having severe abdominal pain esp. on my left side, frequent painful urination, painful bowel movements, bloating, fatigue, diarrhea, and leg pain. How do I get my doctor to really check for endometriosis? These symptoms also mimic ovarian cancer so that scares me too!! I read somewhere that endometriosis can be a precursor to ovarian cancer. My doctor said "hysterectomy" and that scared me. I don't want to be hurled into menapause unnecessarily. I have seen the doctor about five times this year for the same problem. PAIN! I told him I would keep trying the med. But even though I told him that, I have been having constant discomfort in my abdomen. The discomfort is always there. Is that how endometriosis is? Or could it be ovarian cancer? I'm at my witts end. Even though my doctor and probably the nurse too thinks I'm a hypochondriac I'm thinking that something isn't right. I think I should demand a laproscopy to prove or unprove once and for all if I have endo or not.

Last edited by pibiller; 06-17-2005 at 04:47 AM.

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Old 06-17-2005, 12:55 PM   #2
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Re: Endometriosis pain? or something else?

I am so sorry with what you are going through...I totaly understand...I have been there too. I was suffering for 10 months with what you were exactly dealing with including constant ovarain cysts. Massive size cysts that would rupture into cluster of small ones. I was always in pain !! I was very scarred too !!

My OB was no help...I saw a GI specialist abnd he ran a bunch of tests on me including a CA-125.. that checks your protein levels for ovarian cancer. I was realy scarred when he tested me for that, but I was happy to see someone checked me for it. Especialy since my own OB for 20 years didn;t.

It was normal. I eventualy saw another OB. He has been AWSOME. He did a Laparoscopy on me and I do have Endo, Adenomyosis. I did eventualy had a Hyst done, actualy it was done 5 weeks ago and I feel great !!

What have they done for you?? Any tests or anything??

Old 06-20-2005, 12:33 PM   #3
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Re: Endometriosis pain? or something else?

The only tests that I have had have been ultrasounds which did show that I have cysts. I know that can't detect endo though. I think I'm going to call my doctor at the end of this week and asked to be seen again. I shouldn't have this dull aching pain all the time.

Old 06-21-2005, 08:58 AM   #4
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Re: Endometriosis pain? or something else?

I would deffinately call your doc and sit down with him and realy discuss what should be done. You can't keep going on like this. Believe me I was also going through a depression. It takes a toll on you physicaly and mentaly.. Youi start feeling like you are crazy after a while !! BUT YOU ARE NOT !!!!!

I would discuss getting bloodwork done, and a Laparoscopy. Then you can decide on what to do next. They found alot with the Lap with me. They did want to put me on Lupron, but I opt for the Hyst. I am 39 and was not having anymore kids. That was the best option for me.

Keep me informed !!! GOOD LUCK I am here if you have any questions !!!!

Old 06-21-2005, 02:39 PM   #5
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Re: Endometriosis pain? or something else?

I suffered over 3 years with severe pain. I now know I have Endo. I searched over a year to get a decent DR to help me. I was also told I may need a hyst a couple times, but I'm to young and have never had childern, so I didn't want to have that done unless it was the last resort. I just had an abdominal myomectomy surgery. The DR removed a huge fibroid tumor, ovarian cysts and he cleaned up my Endo. He said it wont likely return for a long time. Or if at all. Please discuss this option with your DR. There are options but many DRs have no skill at the operation I had done or they don't want to do it. A hyst is easier for them. A myomectomy is a big operation, it has been only a week today sense I had my surgery. But I feel it will be worth it. I am off pain meds right now and have been taking ibuprofen and Tylenol which is a miracle for me. I was on pain meds while I was in the hospital of course. But before the surgery even strong pain meds didn't always help. I still fee week and have limited things I can to until healed, but I don't hurt like I did before the surgery. Hopefully when I get my next period I will be normal. I'm sort scared about it. I'm keeping my fingers crossed. A Lap is the standard way the DR can usually be able to tell you if you have Endo. unless like in my case my the fibroid I had was so large he had to do the myomectomy to discover my Endo which was really bad. I had a Lap last May and he couldn't do anything because of the Fibroid. Fibroids can cause bad pain for many woman like in my case. No one ever told me that expect the DR I have now. Other DRS wanted to blame the ovarian cysts only. They also cause pain, but so can other things. There is a risk my DR told me before I had my surgery. He said that if something were to go wrong he would have to take my uterus, but its a very small risk and any surgery has risks. It would only to be to save my life it I wouldn't stop bleeding. I just thought I would mention that. I'm sorry for your pain I know how you feel. There are options out there, just wanted to share what I decided. Also lupron has many negative side affects in my opinion. I learned about it on this board. I would never take it. But it is a option too. Hope you get help soon. Please keep us posted.
Fairy Magick

Last edited by FairyMagick; 06-21-2005 at 02:44 PM.

Old 06-21-2005, 03:04 PM   #6
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Re: Endometriosis pain? or something else?

You have to have a laparoscopy done in order to properly diagnose this illness. Believe me it is not fun. But it is worth it to know.
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