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Old 02-15-2008, 01:27 AM   #1
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princess82 HB User
Question Do I Have Endometriosis???

Years and years ago before i started the pill i used to have very painful, extremely heavy periods. The pain would be so bad at times that i couldnt go to school and i would sometimes just have to lay down wherever i was huddled in a ball and wait for the pain to pass as i was unable to move. I would experience the pain in my abdomen and my back. A while later i went to the doctors as id heard you dont get this pain when on the pill so the doc put me on one and i seemed to be cured. After a few years i got told its best to have a "break" from the pill so came off it. Again my periods became heavy and extremely painful so i went back on the pill after the doctor advised me to and gave me a leaflet on endometriosis which he suggested i may have. I didnt even give it a second thought because after going on the pill all symptoms went away. At the start of 06 I was having a lot of pain (but not at the time of my period - i was still on the pill) so went for ultrasounds which showed up nothing. The doctor suggested I changed pills but have a break for 3 months first. My first period after coming off the pill was very heavy and painful again and then i fell pregnant the next month. 9 weeks into my pregnancy i ended up in emergency with excruciating pain in my abdomin side and back area. Ultrasounds showed nothing. Pain continued for a few weeks and then went away. When my periods resumed after giving birth I had the same problem so went back on the pill. A couple of months ago i came off the pill again as we wanted to start trying for another baby. My period i just had lasted for 8 days and was very heavy containing a lot of blood clots and i was in a lot of pain (and was in pain around my ovulation time as well) The doctor suggested endometriosis and has referred me for ultrasounds and a gyno appointment but i cant get in for a few months so am wondering if anyone can let me know what they think on here?? When im on the pill everything is fine, when im not i get very heavy periods with blood clots and they usually last 7 or 8 days. I am too scared to use tampons as I just know i would soak right through as I often change a pad every hour or two in the first couple of days. I get severe pain around my ovaries, my back and sometimes in my legs at the time of ovulation, a couple of days before my period usually lasting (but getting better) until a couple of days after period is finished. I am very tired all day and cant sleep at night. Sexual intercourse is painful as is any internal examinations ive had. I have tender pelvic region at all times and sometimes get a bloated stomach usually around the time of my period. I often have unexplained nausea and often go through days where i need to frequently urinate, other times i dont. I have also since coming off the pill noticed I am suffering from depression for no apparant reason. I have read a lot about endometriosis and my symptoms seem to fit but i keep reading it causes infertility but i have had a baby. I am 25 years old. Does this sound like endometriosis to anyone and what can i do about it??

 
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Old 03-21-2008, 11:29 AM   #2
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Re: Do I Have Endometriosis???

Hi,

I have the exact same situation, except i have not have a kid or tried yet. I am 20 years old and i have been a mystery case to the doctors for 2 years. Every symptom you have, i have. I am currently on Yaz, which was suggested by my gyno to help regulate and minimize the pain. It has helped a lot. Before Yaz, i would end up in the hospital whenever i got my period. I would pass out from the pain, throw up, become very pale, unable to move because of the cramps, very heavy flow and clotted blood. I also randomly get stomach pains and back pains that are unexplained. My doctor was concentrating on my stomach pains so i had every test done, they all came back negative so i remained a mystery. I was sent to a specialist because my hormone level was really high. He said that it was normal to be high because i'm an anxious person and the day i got the blood work done i was probably just stressed. He was so nice that he helped me out with trying to figure out what was wrong with me. I told him my symptoms and my story and he said that it is very likely that i have endometriosis. I am convinced that i have this although no tests show that i do yet. I am scheduled for an ultrasound next week, but i hear that you can only be diagnoses through surgery. I am not ready for that, so i guess i have to wait and see what the ultrasound shows and hear from the doctor. But i trust the specialists diagnosis. It sounds like you have endometriosis like i do.

 
Old 03-23-2008, 03:32 PM   #3
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kwendy HB User
Re: Do I Have Endometriosis???

Ive got the same problems and im going for another laparoscopy as the first one in 2004 showed nothing.

 
Old 03-24-2008, 03:35 PM   #4
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Re: Do I Have Endometriosis???

does anyone know if an ultrasound would show if you have endometriosis? or if you need surgery to be diagnosed

 
Old 03-24-2008, 03:57 PM   #5
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cmpgirl HB User
Re: Do I Have Endometriosis???

Usually it is through laproscopy as kwendy mentioned. it is an out patient procedure that uses a scope to look inside the uterus to see if endo is present. I would ask your GYN about it. I'm sure they can give you all the info you need. If they can't or don't, I would change OB/GYN's.

 
Old 03-24-2008, 09:39 PM   #6
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aek629 HB User
Re: Do I Have Endometriosis???

i've had pains and problems ongoing for 2 years, my periods have always been a mess since the beginning. they did all stomach tests which came back normal, and basically i ended up as a mystery case with my primary doctor. my gyno just thought i had irregular periods with bad cramps so she put me on birth control as a solution, which does help but doesn't solve it completely. i got blood work done and my hormone level was high so my primary sent me to see a specialist. he said that it was high because i was stressed at the time of the test but helped me out anyways. he was the one who came to the conclusion that i have endometriosis, but he couldnt make a diagnosis because i didnt have any tests showing that i have it, he just went by my story and symptoms and said i most likely have it. so tomorrow i have a pelvic ultrasound. would that show anything at all leading to endometriosis? or would i have to make a request for the laproscopy procedure to get any real answers? i'm certain i have it, i just don't want to go through unnecessary procedures.

 
Old 04-14-2008, 10:34 PM   #7
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aek629 HB User
Re: Do I Have Endometriosis???

it sounds like you have it. ultrasounds won't show it. i just got an ultrasound and mine came back fine, but i know i'm not fine because i go through the same thing you do and that is not normal. the only way to diagnose it is surgery, treatment is the pill or a hysterectomy.

 
Old 04-30-2008, 08:44 PM   #8
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rica1234 HB User
Re: Do I Have Endometriosis???

I have a lot of the same symptoms as many of you hear. In fact I just got over a horrible spell. My period started and that very day I became so sick, literally (throwing up for hours). Even with nothing in my body (food or drinks) I was still throwing up some type of clear liquid, probably my stomach.


The pains are so intense. I get cold, I get hot, I get cold again. Then I get sick. This goes on all night, then I decided to take a midol. A few moments later I get sick again, then I try to go to sleep and the pain lightens.

Does anyone know of anything else maybe natural that I can take besides midol?

 
Old 04-30-2008, 10:52 PM   #9
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cmpgirl HB User
Re: Do I Have Endometriosis???

Sometimes, if endo is very severe, an ultra-sound might show slight enlargement of the uterus, due to inflamation, but usually the lap is the only way to really tell if endo is present because it is inside the uterus. Many OB/GYN specialists have been doing this so long, they can just tell from the patient's history and symptoms.

Hysterectomy is now considered by most docs to be a last resort and reserved for really severe cases, where nothing else has worked and blood loss is life endangering or causing severe anemia. The procedure most commonly done is an ablation or scraping of the uterine wall. It is usually out patient and home rest for a week or so.

As for natural remedies, I would suggest checking out a good natural health store that has an herbalist on staff. There are theories that soy products are beneficial for reproductive organ and hormone health. But someone trained in homeopathic medicines and supplements is best to discuss this with. Most remedies with an anti-inflamatory component are beneficial, both pharmaceutical and natural.

Best of luck to all and take care.

 
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