I'm new to the boards sort-of and go from blood disorders, liver issues, neuro-muscular, etc etc.
I just wanted to say that I am one of those odd ones that had a laparoscopy for suspected Endo and none was found. Post lap I got a really bad kidney infection and have never been the same, that was in 1998.
During the lap adhesions where removed and my tubes were cleared and I was pregnant within a month and a half after 2 plus years of secondary infertility.
I did a course of Lupron six months postpartum and my OB/Gyn also my PCP stopped the Lupron after three months because of the estrogen being that of a 90 years olds and having continuous bleeding.
My OB/Gyn threw his hands up in the air basically, after three months off the Lupron and three months of 3 BCP's a day continously I suffered a stroke. That wasn't found until four years later (just a cuple months ago)
Getting back to the Endo, my Dr gave up on me, I had ultrasounds and CT scans that he said a lesion (was just a lymph node) six months after that I brought the films to a general surgeoen who did a laparotomy to check for lymphom or leukemia and discovered incidently a baseball sized Endometrioma imbeded in my abdominal muscle. It was consistant with Endometriosis but mixed with a muscle tumor. Also repaired after the excision foo the tumor was a periumbilical hernia.
My kidneys have never been the same, my liver, spleen and bowel all have adhesions and four years after my laparotomy and tumor resection I have another on the left side.
I can't really offer you information as my case has been on going and terribly mishandled. I was told it was IBS, all in my head asked if "I was feeling like I was going to hurt myself" my reply to the last one was well "I might hurt you" meaning the doctor for being an ***.
I had moved out of state and started all over, I was told I had a dual system right kidney then two years later told I don't. Because of my organ enlargements (spleen and now liver) it's hard to determine if I"m haveing renal colic or pain from all the organ crowding.
Adhesions could certainly be affecting the kidneys through the omentum (the lining that seperates the peritoneum from the retroperitoneam)
It's all amazing really. I've read so much about all the abdominal possibilities of Endo and still have to wonder about travel through blood and/or lymph system...could Endo have been the lesion in my brain? Or because of the congestion in the abdomen caused the stroke? Too many questions I know, legitimate but all we can do is take one day at a time.
Please know I'll be thinking of your upcoming biopsy, I hope it isn't anything too serious. I had protien in my urine alot of times especially with the toxemia of pregnancy. Do you have high blood pressure? Get dizzy or see spots? I know your not pregnant, but those symptoms sure go along with protienuria (sp?) along with itching withou a rash.
Best wishes to you, sorry to ramble so much, everytime a post hit's home with me I can't help myself
Take Care and God Bless
Jess (aks RareEndo)