It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Endometriosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-25-2010, 06:00 PM   #1
Junior Member
(female)
 
Join Date: Jun 2009
Location: Atlanta
Posts: 33
radcoco HB User
Can endometriosis spread to cause nerve damage?

I have Peripheral Neuropathy in my legs. Cause unknown. I was told my endometriosis had spread to my abdomen years ago and could attach itself to organs, etc. Can it attach to the nerves that go down the legs? Thanks

 
Old 07-29-2010, 01:17 PM   #2
Veteran
(female)
 
Join Date: Jul 2010
Posts: 326
dhurlbert3 HB Userdhurlbert3 HB Userdhurlbert3 HB User
Re: Can endometriosis spread to cause nerve damage?

I guess it's possible, mine had wrapped itself around my sciatic nerve in my back to the point that i could hardly move or walk until i had a hystorectomy and now i'm fine.

 
Sponsors Lightbulb
   
Old 07-29-2010, 01:59 PM   #3
Inactive
(female)
 
Join Date: Aug 2008
Posts: 5,110
writeleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB User
Re: Can endometriosis spread to cause nerve damage?

Interesting question...I also have endometriosis and my only option is pain control, as I am inoperable due to other illnesses. My pain management doctor prescribed me Lyrica, which I understand to be commonly used to treat fibromailgia...as a nerve pain reliever.

 
Old 07-29-2010, 05:26 PM   #4
Junior Member
(female)
 
Join Date: Jun 2009
Location: Atlanta
Posts: 33
radcoco HB User
Re: Can endometriosis spread to cause nerve damage?

I'm currently taking Savella and Neurontin. These drugs are really helping but I'd prefer not to take them forever. I still have pain the comes through and it's almost dibilitating.

 
Old 08-04-2010, 11:15 PM   #5
Newbie
(female)
 
Join Date: Aug 2010
Posts: 1
nikkie30 HB User
Re: Can endometriosis spread to cause nerve damage?

Unfortunately endometriosis can spread anywhere it wants to. My doctor told me that in rare cases it can actually kill you. There have been cases where it has even spread to people's brains. With the technology we have today we shouldn't have to worry about the extreme cases happening too often. However, endometriosis is linked to many other disorders, whether it be a secondary cause due to the many hormone therapies, suregeries, prescriptions, etc. we go through to keep it under control, it is still a rough battle. I had a hysterectomy when I was 21 years old and am one of the small percentages of people who still battle with the never ending growth of endometriosis everywhere else. It is hard to find a good doctor but when you do you should do everything you can to stick with him/her and don't ever let them fool you into believing that your pain isn't as bad as you say it is. For the most part as long as you are under the supervision of a physician who specializes in endometriosis you should be just fine, but it never hurts to ask questions and totally educate yourself about the disease. I am 31 years old now and have gone 2 years without a surgery needed. This is the longest amount of time I have gone and I believe it is due to my diet, exercise, and overall mental well-being. I had an appointment today with my doctor and we did discuss the possibility of a future surgery (which I new was eventually gonna happen) but we are going to put it off as long as possible. I can't take any of the hormone therapies (lupron, depot, birth control) because the side effects are totally worse than the benefits of the medication. I am on a low dose of estrogen and am thankful that I am able to take that without the endo growing rapidly as it had in the past. I have a tendancey to ramble a bit so I am sorry for that, but I hope this helped . Take Care

Last edited by Administrator; 08-04-2010 at 11:56 PM.

 
Old 08-05-2010, 08:26 PM   #6
Inactive
(female)
 
Join Date: Aug 2008
Posts: 5,110
writeleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB User
Re: Can endometriosis spread to cause nerve damage?

nikki,

Welcome to the HealthBoards, and are we glad to have you! I have been watching out for all the stories women have, and yours is one that can help educate all of us, no matter what stage we have. It seems to be such an unspoken disease!

I have spent the last 6 years of my life battling back from 4 strokes, heart attack, and kidney failure, only to then get diagnoses with severe endometriosis! What a rip!

I have had it for many years, but could not get a diagnosis until 6 months ago. To finally have a name put to what I have been going through is a huge relief. It all makes sense now.

I feel as though part of mine is on my bladder, because when I need to urinate, I am bent over in pain. Night time is worse, because I don't jump up the second I feel it, like in the day.

My prescription for Lyrica was not accepted by my insurance, so it was replaced with Neutontin. I have taken my first dose at 5pm. I am taking Endocet 10-325 every 4 hours, so it will be easy for me to keep the neurontin dosages exactly every 8 hours.

After many years of taking medications, I have learned the importance taking your medications exactly on time. I use my cell phone alarm to ring every 4 hours, 24 hours a day, and I take my medication, day or night. When I go to bed, I set my nighttime medication out, and when the alarm goes off, I can take my medication and go right back to sleep. My caretaker wakes me for my 5 am dose.

But the original question remains unanswered..I think. We all seem to agree that endometriosis cause nerve pain, but does it actually cause nerve damage?

I would suspect that endometriosis would cause nerve damage, as by nature it attaches to whatever it lands on, it causes scar tissue, adhesions, and how could that not damage a nerve? Does this damage diminish when the endo does, or does the remains of it continue to injure the nerve?

We need to find women that have gotten through menopause, and have the answers. Does it really ever go away?

 
Old 08-16-2010, 04:42 PM   #7
Newbie
(female)
 
Join Date: Aug 2010
Location: USA
Posts: 1
dusttrail HB User
Re: Can endometriosis spread to cause nerve damage?

About 3 months ago, I had a lump appear above my right knee. It causes pain in my thigh area. It has also been causing pain in my right hip. It is making it difficult to walk. I have also been experiencing mostly non-stop periods for past 4 months with intermittent heavy days, spotting, clots. I was diagnosed almost a year ago with adenomyosis and years ago with PCOS and infertility. I had an MRI of the knee, thigh and lumbar spine with nothing noted of significance. There was a couple of disc protrusions but on the left side. Can endometriosis affect the sciatic nerve in the leg ?

 
Old 08-16-2010, 06:18 PM   #8
Junior Member
(female)
 
Join Date: Jun 2009
Location: Atlanta
Posts: 33
radcoco HB User
Re: Can endometriosis spread to cause nerve damage?

Quote:
Originally Posted by dusttrail View Post
About 3 months ago, I had a lump appear above my right knee. It causes pain in my thigh area. It has also been causing pain in my right hip. It is making it difficult to walk. I have also been experiencing mostly non-stop periods for past 4 months with intermittent heavy days, spotting, clots. I was diagnosed almost a year ago with adenomyosis and years ago with PCOS and infertility. I had an MRI of the knee, thigh and lumbar spine with nothing noted of significance. There was a couple of disc protrusions but on the left side. Can endometriosis affect the sciatic nerve in the leg ?
I haven't found too much on the internet about my problem but what I have found is about endometriosis effecting the sciatic nerve. There seems to be a lot on that specific subject. So, yes, according all that data, I'd say most certainly it can attack it. Good luck.

 
Old 08-18-2010, 02:15 PM   #9
Veteran
(female)
 
Join Date: Jul 2010
Posts: 326
dhurlbert3 HB Userdhurlbert3 HB Userdhurlbert3 HB User
Re: Can endometriosis spread to cause nerve damage?

My endo was so bad that it had wrappe ditself around my sciatic and i couldn't sleep or have any pressur on my stomach. I had to have a hysterectomy to get it to go away, i feel great and everything has improved.

 
Old 08-19-2010, 09:48 PM   #10
Inactive
(female)
 
Join Date: Aug 2008
Posts: 5,110
writeleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB Userwriteleft HB User
Re: Can endometriosis spread to cause nerve damage?

Boy do I feel dumb...It just occurred to me that I do have some meaningful information to add...

My endometriosis pain became to much to handle about six months ago, and I was sent to a pain specialist. He prescribed my Lyrica, among others. The Lyrica is used to treat nerve pain. It has been about a month since adding the pain medication, and the pain has changed into more of a pressure.

Other health issues make surgery for anything impossible, so the pain control was the only option. So far, so good, except no driving, and I fall asleep alot...

But damage? I still don't know the answer.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Endometriosis is ruining my life! writeleft Endometriosis 12 12-27-2010 07:53 PM
can postherpetic neuralgia (shingles pain) spread? kennyc Trigeminal Neuralgia 3 07-21-2008 07:48 AM
New Cause of Neuropathy don'tlikecold Neuropathy 14 05-04-2008 08:40 PM
Neck Pain? Stellate ganglion block? SPREAD? HELP!! martra1025 Reflex Sympathetic Dystrophy (RSD) (CRPS) 5 12-22-2007 07:23 AM
17-year-old wondering if she could have endometriosis Dark Stranger Endometriosis 3 11-02-2004 05:32 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VitoTheColon (4), WhistleDixie (4), writeleft (2), twinnotwo1971 (2), Ayria (2), ladybud (2), gmak (2), talkingtoclouds (2), Brianna (2), pinaay (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 08:06 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!