I had forgotten about this thread, and now I have some more to add to the story too.
Several more gyno's have been consulted, now I have two working on my at once, and one of them is just like Judge Judy! No one will risk any procedure more than a biopsy so far. No belly-cam, no surgery, no anesthesia..no birth control pills. I am taking 800 mg Danazol with the recent Depo Provera injection. I also had the Lupron Depo which shot me into menopause too-what a ride that was!
For the last 3 months I have been bleeding, calling for another kind of treatment. It has left me anemic enough to need venafer (spell?) infusions. The next idea was an endometrial ablation so I was sent to another obgyn who specializes in them and has use of hospital facilities at our renowned Womens Hospital.
First he wanted a few more tests, biopsies of the endometrium, the uterus, and once he looked inside, he then wanted one of the cervix too-he said it did not appear normal. His idea is to insert a 5 year IUD, slowly producing hormones that will eventually stop the periods althogether.
My concern is...are these the same hormones that lead to stroke? I cannot have those, & I know very little about this area, I have only been sick with it for 8 months. I am being seen by a pain management doctor, the only solution for the pain so far.
I am planning on running all of this by my neph, just to make sure it's all good for my kidneys. Any thoughts on the Mirena IUD? I would rather not have one, but if it works-
I am waiting for my biopsies results and have 4 weeks to research and decide.
Any suggestions? Thanks Jenny!
ps. my mom had it too,