First thank you for reading this. I am a desperate, sick 33 yr. old female with endo for over 10 years. I have had 4 laps and put on the shot at one point (cant remember the name of it) that puts you into menopause for 6 mos. to kill the endo. Nothing has worked. For the past 4 months before every period I get horrible pain under my right rib cage and shoulder blade (mimmicking gb attack). Ive had ct/ultrasound all normal except swollen bile duct, which drs are not concerned with. I had the hida scan last month and surgeon was rude because it was normal 98%. I was told and I quote "It's something to do with your endometriosis I'm sure and there is nothing I can do here for you. I suggest you go see a gyno." My family dr. is treating me almost like a "drug-seeker" cuz I beg her for ANYTHING to take the pain away and all my tests are normal. She has me on 5mg. vicodin, 90 of those a month and 600mg. ibprofen, 90 of those a month also. The ibprofen I cannot take often cuz it BURNS my belly but does help with the endo. cramps in my back. The vicodin only works for about 2 hours. Bentyl, did absolutely nothing but make me sleepy. And phenergan does work for the nausea but knocks me out.
My question is could it be endo.? The other 2 things they found that nobody was concerned was a fatty liver, elevated white blood cell count, and polyps or adhesions (cant remember) on my small colon. Please help me if youve been through this before. I lose weight on every attack, the last was the worse, 8 pounds in a week and was sent to ER by fam. dr. to get fluids. Please any advice, suggestions would be greatly appreciated.
I am very sorry you have such a big problem at a young age. I used to have that kind of problem without pain but I was not too aware of it until I got cancer on the inner area of uterus. Not to scare you, but it sure is something one has to watch out for. The worst thing that can happen is to take it off, cancer or not. But it is hard to do that since one would want to have kids. I am cured because I got uterus sarcoma and it is a rare one. The chemo cured it 10 years ago but I am now living without uterus. And that is lots of hardships with hotflashes and dry vagina and etc...
I know one person who has something like this, but I am not sure what area, but she has the growth all the time. She is fatter due to the growth. She had many surgeries but now she got tired of it and didn't want to have it. She takes painkillers for the pain. She has some chronic condition. Her tommy is bigger and she never had kids. (She adopted some kids.) I don't think it is endo for her but it is constant growth over that area.
I think you need to consider something for your health. Sometimes it is necessary to sacrifice the ability of having kids to treat this thing to gain your health. Living like this in pain or agony is really not an easy thing. I had very hard time with heavy periods and so on and I also have other defects that would not help.
Not to scare you, but you may need to find a permanent solution. One thing you can do is to have kids as early as possible and eventually you need to get rid of uterus if it is very chronical to you.
Eventually it will get worse on the organ since it is lots of torture. But everyone is different. Exercise can help.
Hi perhaps Lupron was one of them? Endo can go far but the good news is that it can improve with healthy lifestyle changes.
Some of the changes may be the extreme of difficult at first but it is worth it in the end. I would not use the ibuprofen anymore it can eventually cause a peforation of the gastrointestinal system.
A health professional has pointed out that for each time medicines are taken although it may temporarily seem to relieve pain the next period is worse. Medicines are hard on the liver and the kidneys and the body needs these in good condition to be in good shape.
If nausea is present I would skip the food until hungry when hungry I would use some sips of water to prevent hydration. If this is tolerated well then when hungry again a cracker or two of some home made oat crackers can be used. These can be baked using dextrinized oats. The oats are stirred in a dry glass or stainless steel pan with a wooden spoon then when the smallest peices start to change color and the smell of the oats changes slightly (nose far enough above pan so face is not burned) the heat is then turned off. Water is added and then cooked thoroughly some more the heat is turned off and the pan covered and let it sit about an hour then a metal spatula is used to skim of thin slices of thickened oat off the top and put on an olive oiled cookie sheet. Then it is put on low heat at 250 degrees Fahrenheit and slowly cooked until the top is mostly hardened then it is turned over to the other side and baked on that side. These can be made ahead of time when there is little or no pain.
I would be sure to walk outside in sun and fresh air every day. In winter I would not allow the limbs to become chilled. I would not use tight pants or tight underwear or tight belts or tight elastics around any body part. Thermals or even loose jeans underneath a long dress and long heavy down coat can be used outside to hide the clothes underneath with very warm flat heeled boots. Of course the jeans or thermals should not show in the long mirror. If it does another pair of pants can be chosen. The vast majority of the time the clothes should hang from the shoulders. I would use a wide variety of fruits grains nuts and vegetables the rest of the month. I would skip all alcohol, tobacco substances, tea, coffee, chocolate, especially skipping all sweets, desserts, honey cake etc. I would not use things with additives, pesticides should be removed from food.
Meal times should be regular with the evening meal being light perhaps a peice of fruit and a peice of bread.
An herbalist might be useful. Acupuncture is a useless waste however in my opinion I would not bother with that.
Juicing vegetables such as romaine lettuce and green peppers between meals (not during the period) might be useful to help catch up to lost nutrition. As with everything it should be in moderation.
The bowels should be kept regular without allowing constipation or diarrhea.
Sleep should be 8 hours and at the same time every night and the meals at the same time every day.
Candida is often associated with endometriosis for some information but the
medicines for that purpose do not always work and often have terrible side effects.
If a woman weighs 100 pounds they will need about 50 ounces of water a day.
Is obesity present?
In my opinion an obgyn is good to diagnose some things but not necessarily good for the cure and a lifetime of them in my opinion does no good but the true health measures go a long way.
Last edited by sjb; 03-23-2011 at 01:34 PM.
Reason: addition made
Also I think for you it is still Ok at this point. So maybe you need to shape up about your health issue like what the earlier post by SJB suggested. Exercise everyday and make sure the period goes smoothly and etc. If you try everything and still feel bad, then it may be some chronic issue there. Seeing the OB/GYN is important. At least you need to see her/him at least once to see what is going on. OB/GYN sometimes don't solve problems and I agree it is on your own at times.
Do make sure you are healthier by exericsing, eating right and etc.
yes i have endo i have been trying t get a dr, for it, Sounds to melike you need a different dr. Oh and instead of finogran ther is a naseau medicin they use on cancer patients works great and doesnt make you drowsy.
Hi yoshi I would like to know if any of the suggestions were tried and if their has been a slight improvement since health changes can take time. The medicines often seem to undo any health improvement things one tries to do since they are bad for kidneys and liver.