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Old 04-10-2011, 03:21 PM   #1
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Endometriosis reoccurrence

I had laproscopic surgery last July to diagnose endometriosis, I was having alot of pelvic pain on the left side especially during sex. During my surgery it was discovered that my uterus was attached to my abdominal wall where my c-section scar is...but I had a small amount of endo behind my uterus. Last fall I started having a brown discharge for two weeks after my period, gyno said it was my hormones. And I had bad period cramps. About 3months ago we decided to put me back on birthcontrol pills continuously to help with the cramps, spotting and my hormones. I bled for 6 straight weeks (cramp free) and had about 2weeks with no bleeding or cramps. I have since gone off the pill as I don't like the way it affects my libido. I have now had continuous brown discharge for about a month and pelvic pain that is uncomfortable but not really painfull. My gyno ordered an ultra sound that came back normal no fibroids or cysts. I am going to a new gyno on tue but I have a few questions about the endo.

How soon after laproscopic surgery can it come back? And could the surgery have made it come back worse? How often do they repeat the surgery? I was supposed to be checked to see if I could use the mirena during my surgery but my dr "forgot" ( I have had an endometrial ablation) would this affect me the same way the birth control pills do?

I will be asking my new dr all these questions as well but I always find people who have been dealing with things for years are more informative than alot of Drs.


Thanks

 
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Old 04-11-2011, 09:11 PM   #2
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Re: Endometriosis reoccurrence

Another thing I was wondering...does any have bladder pain? I don't know if this is caused by the endo or not... But my bladder hurts when my bladder gets too full and when I do pee it feels like my bladder is pulling down. I fad an ultrasound of my uterus about a week ago and I could hold all the water...I was in do much pain I thought I was going to cry...they let me relieve some and I had a sharp shooting pain in the back of my pelvic area...does anyone else with endo have these symptoms?

 
Old 04-12-2011, 04:50 PM   #3
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Re: Endometriosis reoccurrence

Well I see no knew the answers to my questions so I thought I would follow up with how my appointment went today.

All I can say is wow... She is very thorough and explained everything to me. Some of my pain is being caused by my uterus, it has reattached to my abdominal wall. And she is guessing my endo is back bleary she can't see with out doing the lap surgery and no point in doing that yet because I have been diagnosed already. So now for treatment I am starting back on birth control micranor and we are deciding on Lupron or danazol and if I want to go either of these routes. And she recommended a hysterectomy... My husband and I have been talking about this for months but to hear the dr actually say it was very tough. I am being put on the list for it. I can treat the endo with medication but it won't fix the problem I am having wit my scar attachingy uterus to my abdominal wall.

So now I am off to research all we talked about.

 
Old 04-18-2011, 09:51 AM   #4
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Re: Endometriosis reoccurrence

Hi some people like the results from juicing vegetables and drinking it an trying to live as healthy a lifestyle possible including walks everyday in the sunshine.

Corn, spinach, peanut butter, and beets may help libido a bit but also cause a bleeding time in between periods. Sesame tahini vinegar,mustard, additives, spices, soda, sweets an overabundance of fats, and even medicines may cause ovary and or uterine pain. If a motrin or other pill is taken it may be that the next period is worse, they have a bad effect on the liver, said by some to be involved in estrogen metabolism.

Pain has been known to return after surgery 6 months later. I have heard of some women with many surgeries 20 some odd I think, but to me it did not make sense to keep putting oneself through all that. Some women have a lot less of course and it probably depends on the woman herself as to how many she allows and is willing to put up with. Personally I would rather do lifestyle changes for some women in a lot of pain it can be very tough to do at first but it may be worth it in the end.

 
Old 04-18-2011, 10:06 AM   #5
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Re: Endometriosis reoccurrence

Misty,

I wish I would have caught this thread a few days ago, but I have been in the middle of a relapse of my endometriosis myself! I have been bleeding about 65 days now, everyday.

I have been treated for 6 months with Lupron depot (2 three month shots), followed by 3 shots of depo provera, the last one being just last month.

I am unable to have any surgeries or even an ablation or laproscopy, due to other serious health issues, in fact even getting a gyno to treat me has been quite difficult. Next my doctor wants to put me on a Mirena IUD. I am also under the care of a pain specialist to control the pain.

I would love to follow along your path as I am always trying to learn all I can about this horrible illness. I had thought I had it under control, until Feb, and now I feel back to square one!

How are you feeling today? Look forward to hearing from you...

Janet


I am very hesitant about the iud...

 
Old 04-19-2011, 02:36 PM   #6
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Re: Endometriosis reoccurrence

Thanks for the replies .

I am actually not feeling too bad I do have a constant ache in my pelvic area, but sometimes I am sure I am getting so used to it that it doesn't bother me. I do however get pain sometimes when I get up from sitting it feels like I have pulled a muscle in my pelvic area...then it's gone. I haven't really made any decisions yet and likely won't until I talk to the dr in may. I still have to tell my old gyno I am nit coming back...having some anxiety over that lol


I have heard good things about the mirena. I have a friend with endo and she said it's great. How did you find the Lupron? Was it worth it? I am terrified to try the depo Vera, for one I am already battling weight gain from having my kids and other meds, I heard it was bad for that. And I like being able to stop a med if its not working or I have side effects shots make me nervous for that reason. Lol

 
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Old 04-19-2011, 03:03 PM   #7
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Re: Endometriosis reoccurrence

Hi Misty,

I understand the pelvic pain, constant for me. Let me share my experiences with the Lupron Depot and the Depo Provera.

First of all, the Lupron depot was $2,000.00 per shot, and I had two, which lasted 6 months. After that, I went to the depo provera which was free, and between the two my pain and constant bleeding stopped for about 9 months.

I had my last depo shot in February, and have now been bleeding every single day for 60 days. That is why we are now switching to the Mirena IUD.

I liked the depo provera, the shots are a breeze, they don't hurt at bit, just a tiny stick ( I get that in the hip). For me it just stopped working! Don't know why...

We have been trying to get me into a medically induced menopause, as I am already 50 years old.

Hang in there Misty...and thanks for you thread.

Janet

 
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