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Old 06-25-2011, 05:43 PM   #1
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Untreated Endometriosis

I'm 26 years old.I had surgery 2 years ago, reason being I was told I had a large endo cyst on my right ovary, after an ultrasound. I was told that if I didn't have the surgery, I would end up in the ER (burst cyst), without proper care for the problem. I was told my right ovary may need to be removed as well.

I woke up from surgery, to the DR gone home, even though she promised to stay or write me a note letting me know what was done. I was told by my parents that I didn't have an endo cyst, and was "a real mess, in surgery longer than expected". I didn't even find out all the details until the next day , after calling the DR.

My right ovary, fallopian tube, and bowel are all attached together by endo and scar tissue. She removed some of the scar tissue on my right side from my appendectomy I had as a child. Said she couldn't touch anything else, or I'd "have woken up with a bowel bag". She told me she didn't recommend any surgery, and to try and have children ASAP if I wanted them, tried to sell me a mirena IUD. My douglas pouch is also full of endo, it's stage 4-5, but my left ovary was good.


I cannot take estrogen, as I get blood clots. I take a POP.
I have asked my GP to send me to a new gyno, and her response was, "Do you know of another conservative one?"
I have tried to ask a general surgeon, while seeing him about another issue, what having my bowel frozen to other organs could mean for me in the future and just sort of got a, that's not good.

So my question is, is it normal not to receive any sort of treatment?

I also have questioned if the improper removal of burst appendix could have something to do with the whole condition, as it's impacted my right side so much. The surgeon I had in the ER "forgot" to leave my wound open to drain the (toxic) remains of my appendix out after surgery. I had to be re-cut open 2 weeks later. I was 7 years old. Surely this would cause the body to form scar tissue, and would have directly affected the organs on my right side.

 
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